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Readers response: What was the worst hotel experience you had?

We asked our readers to share their stories of the worst hotel experience that have endured while on holiday, and the response was overwhelming. Here's what they said. Deedee Cullum - At a 5 star in Beijing. Arrived from the airport after 1am. Let into the room to find it occupied with someone having a bath. Instead of changing our room we waited in the lobby for 1 and 1/2 hours while they changed to the correct room and cleaned ours. The wet towels were neatly folded on the towel rack and the used soap was on the basin. When I turned the bedside light on I got a shock. To be fair management were most apologetic and gave us free dining in their top restaurant for the 4 days we were there. It was a few years ago but never forgotten. Bruce Hopkins - I stopped at a Hotel in Hobart, arrived in the afternoon, checked out the next day, the whole time I stopped there, I never saw anyone on reception or any staff at all. Creepiest hotel I stayed in. Carol Henwood - When we went to have a shower, and the towels disintegrated! The shower had black mould in all the corners. The carpet was so sticky, we kept our shoes on. We slept on top of the bed as the sheets were crumpled and smelly. What a night. Sheila Kell - When my eldest son was about 2 years old we took a holiday to Shute Harbour in QLD and in middle of night we heard lots of scratching so turned on light and sat up in bed and there were hundreds of field mice crawling up walls and back of bed. They apparently were having a plague, but we dressed and left. Couldn't sleep in that motel. Christine Warner - A country pub only option one night. Our room has no lock on the door, and there were gaps in the floorboards so we could see straight down to the bar where it was very noisy. We had already been warned of people breaking in to hotel and motel rooms in that region, so we slept in the car and returned to the room in the morning for a shower. Helen Wilson - In Singapore, they gave us a “free” breakfast while someone rummaged through our belongings and took stuff. Image credits: Shutterstock

Travel Trouble

Readers response: What’s the most interesting cultural experience you've had while travelling?

When travelling abroad, we are often exposed to new and fascinating cultures that can open our eyes to different ways of life. We asked our readers to share the most interesting cultural experience they've had while travelling, and the response was overwhelming. Here's what they said. Sandra Beckett - Staying overnight in a Ger in Mongolia miles from anywhere, listening to Throat singing accompanied by two traditionally dressed musicians playing Horsehead fiddles. Also, travelling across Russia by train, visiting the Galapagos islands, Skara Brae in the Orkneys, the Hagia Sophia in Istanbul. Denise Ryan - Listening to glorious classical music played in Havana’s Plaza de la Catedral and attending a stunning performance of Swan Lake in the Grand Theatre of Havana. Deedee Cullum - Visiting Ypres in Belgium and staying the night so we could see the evening ceremony at the Menin gate. Alison Davenport - 50 years ago visiting a Fijian village made me realise everyone didn't live like I did. Have been amazed at all travel experiences since. Glenn Turton - Staying in a farmhouse in Normandy for a week. Visiting D-Day beaches and Mont St Michel from there and local villages and markets on the days between. Back to the farmhouse each night to cook local produce and sit by an open fire. Karen Psaila - Sitting in a small ally sipping black sweet tea in Egypt looking at the pyramids and sphinx whilst camels are strolling by. Amazing. Patricia Watson - Darwin. Spending a day with First Nation Women and Children in the bush and learning about food that grows and is edible in that area. James Langabeer - This are my three top three most interesting cultural experiences. 1. Japan's Tea Ceremony: Attending a traditional tea ceremony in Kyoto, Japan, where I learned about the intricate rituals and Zen Buddhism's influence. 2. Indian Holi Festival: Celebrating Holi, the Festival of Colors, in Mumbai, India, surrounded by vibrant colors, music, and joyful locals. 3. Moroccan Hammam: Experiencing a traditional Moroccan bathhouse (hammam) in Marrakech, where I discovered local customs and relaxation techniques. Margaret Mason - Staying for a couple of days in a small, traditional village in China. Image credits: Shutterstock

International Travel

Readers response: What's a pain you can't truly explain until you've endured it?

When it comes to experiencing pain, many of us are used to hearing people say "I know how you feel" while they're empathising with your suffering. However, there are some kinds of pain - either physical or emotional - that cannot be understood until you experience them yourself. We asked our readers what pain you can't truly explain until you've endured it yourself, and the response was overwhelming. Here's what they said. Anne Hare - Shingles! Absolutely excruciating. I seriously considered topping myself until I was finally prescribed Lyrica. Took five months to recover as misdiagnosed twice so antivirals prescribed too late. Have the shot! Karen Ambrose - Childbirth. 15.5 hours of agony. Annette Maree - Pain from a dying nerve in a tooth. Royce Jowett - The worst pain is always the one you are currently experiencing, especially as you get older and forgetful. Julia Santos - Hip pain is hard to explain how it affects your whole day. Even trying to sleep is an adventure. And sneezing while your hips are inflamed is always fun. Betty Weller Edwards - Gallbladder stones. I would rather go through labor for 12 hours than have 4 hours off gallbladder pain. Sandra Morris - The loss of your child. Kevin Chapman - Chronic arthritis. The pain is 24/7, it never goes away. Danny Bennett - Divorce. Patricia White - Dislocated shoulder. Jill Harker - A couple of bulging discs in my back! Linda Charlton - Clot in the lungs, couldn't breathe thought I was having a heart attack in my 30's. Other than that, definitely childbirth. George Dworcowyi - Back spasms after a 7 hour operation on my broken spine. Maxine Cuevas - Losing two adult children at separate times. Josephine Broughton - White tail spider bite. Shelley Woolley - Ruptured ovarian cysts. Image credits: Shutterstock

Body

Readers response: What was your worst flying experience?

When it comes to travelling by plane, some trips are better than others. While some people have a general fear of flying, others are traumatised from flights from hell that turn bumpy for a list of different reasons. We asked our readers to tell us about their worst flying experience, and the response was overwhelming. Here's what they said. Lee Ayles - On a flight Melbourne to LA. No kidding, 8hrs of rocking and rolling the whole time. The lady sitting behind me had her rosary beads and praying non- stop, my daughter slept through the whole ordeal. The flight attendants were so helpful and put us at ease. Think I drank gin and tonics through the whole thing. Needless to say slept the next 4 hours before a great landing in LA. Roz Weitenberg - Flying from Columbo (Sri Lanka) to the Maldives in a twin engine King Air 350. My husband was flying the airplane and we got caught up in a storm that was so intense, I really thought the poor little aircraft would break up. Even the Sri Lankan B777 ahead of us was going to turn back to Columbo. That was the worst flying experience I have ever had. Anne Morrison - Last year flying Singapore to Johannesburg, South Africa and return (which was worse). So much turbulence the whole way I was actually sick, lady in front said "we're all going to die" and I thought so too. Absolutely frightening. George Jan Cafcakis - Flying Qantas from Sydney to Dallas. Worst flight I have ever had. Tray broken, no screen and food and service nearly non existent. Disgusting, and the same on the way back. Never flown Qantas ever again. Jim Janush - Flying from Budapest to Vilnius in 1993, during an electrical storm late at night. The lightning was very intense, seemed to be so close that it appeared all the planes interior lights were on. Audrey Forrester - Flying out of Kununurra and the pilot forgot to put cap on fuel. We ran out and had to emergency land on Lake Argilewe, thankfully we were in a sea plane. Lorraine Taylor - Singapore to Zurich with Swiss Air. The woman in front of me lowered her seat far back I was pinned in my seat. I asked the air hostess for help and she said there was nothing she could do. I couldn’t move for 8 hours and despite continually asking her to raise her seat she just laughed. Worst trip ever and I’ll never fly Swiss Air again. Linda Sutherland - Looking out the window of the 747 over the Indian Ocean and watching the engine fall off. Image credits: Shutterstock

Travel Trouble

Hamlet: Experience the epic tragedy reimagined

Brett Dean and Matthew Jocelyn’s Hamlet has been one of the most universally applauded operas in recent memory, with successful performances at the Glyndebourne Festival, the Adelaide Festival, New York's Metropolitan Opera and the Bavarian State Opera. Now Opera Australia’s production of the incredible adaptation at the Sydney Opera House continues to bring new life to Shakespeare’s iconic tragedy. With its rich storytelling, the opera masterfully combines the profound themes of betrayal, revenge and madness with stunning musical compositions – but with a huge difference. For those familiar with Shakespeare’s work, this version of Hamlet provides a fresh perspective, blending the traditional elements of the play with operatic expression skilfully applied by Australian composer Brett Dean and Canadian librettist Matthew Jocelyn. Over60 was fortunate enough to secure an interview with librettist Matthew Jocelyn about his experience in adapting one of the world’s most famous plays into an opera. O60: Firstly, by way of an introduction, you’re a director and librettist – can you summarise your career and your current roles? Matthew: “I have led a particularly speckled career, navigating happily between directing theatre and opera, writing, teaching, running arts institutions in France and Canada, and walking. I always look forward to more of the latter. Right now I direct Koffler Arts, a gallery and multi-disciplinary arts project in Toronto, Canada, the first time I have had the opportunity to work directly with visual arts projects.” O60: How did you get involved with working on this production of Hamlet? Was this a project you’d be looking for or did an offer come as a surprise? Had you done a lot of work with Shakespeare works before this project? Matthew: “Brett Dean contacted me in 2013, through the recommendation of a couple of mutual friends in Berlin, a composer and a singer – both of whom I had worked with on a new opera in 2010. Brett was looking for someone crazy enough to embark on a project of adapting Hamlet for the opera. It was a cold call, but after a few conversations it was clear we shared similar ideas about what the opera could look like, and how to go about it.” O60: How did you approach turning Shakespeare’s famous lines into an opera? Did you write the libretto first or did Brett write the music first? Did you feel pressure making changes to the great Bard’s iconic piece? Matthew: “One of the most important decisions we made very early on was to use only Shakespeare’s own words to compose the libretto. But as three different versions of Hamlet were published during Shakespeare’s lifetime, or shortly after he died, there is no one definitive version – giving us both a multitude of choices for various lines, but also a deep sense that Shakespeare himself was continually rewriting his own text, giving us licence to continue doing the same. “The other major decision was to give ourselves freedom in who would say/sing each line. In our version, Hamlet may sing lines from Laertes or Ophelia, Ophelia sings lines from Polonius, Hamlet and Gertrude, lines get moved from one scene to another, and certain scenes appear in unexpected places for those who know the play. But at the end of the day – and this was the goal – the story is clear, and the emotions strong.” O60: You’ve collaborated with Brett Dean on other projects. What do you like about working with this Australian composer? Do you have future plans for work in Australia? Matthew: "Brett and I worked on numerous projects over a nearly ten-year period. This included chamber works, works for large orchestra with solo voices, and this opera. It was a rich and productive collaboration – with deeply thoughtful exchanges and a shared sense of play. Now we are both working on separate projects.” O60: What are your current projects / what’s coming up in the future? Matthew: “I am writing the libretto for a couple of new operas right now – one in Canada, one in France. And my most recent project, Cassandra by Belgian composer Bernard Foccoulle, will be performed at the Berlin Stadtsoper in June, 2025, after opening at the Théâtre Royal de la Monnaie in Brussels last autumn. Reconceiving Koffler Arts is also a bit of a passion project – I’m very lucky that way.” Attending Opera Australia’s Hamlet is not just a night out but an opportunity to witness a masterful adaptation of a classic story. Whether you’re a seasoned opera lover or new to the genre, this production promises to be an enthralling experience. Don’t miss the chance to see this exceptional interpretation of Hamlet and immerse yourself in the beauty and drama of opera at its finest. Visit <a href="https://opera.org.au/" target="_blank" rel="noopener">https://opera.org.au/</a> for more info. Images: Opera Australia \ Tony Hauser

Music

How you experience the menopause may have a lot to do with your family

<div class="theconversation-article-body"><a href="https://theconversation.com/profiles/megan-arnot-416253">Megan Arnot</a>, <a href="https://theconversation.com/institutions/ucl-1885">UCL</a> The <a href="https://www.ncbi.nlm.nih.gov/pubmed/30346539">menopause</a> happens around the age of 50, and for many women, the end of their fertile life is accompanied by uncomfortable symptoms, such as hot flashes, night sweats and anxiety. In the West, it is generally taken as read that these symptoms are a normal part of the menopause. But <a href="https://www.ncbi.nlm.nih.gov/pubmed/11330770">cross-cultural research</a> suggests that menopause symptoms are not necessarily inevitable. For example, <a href="https://www.ncbi.nlm.nih.gov/pubmed/18521049">Japanese women</a> rarely report hot flashes, whereas for European women they are a common complaint. As a result, scientists have begun to focus on what causes this difference in experience and the potential impact that behavioural and lifestyle factors, such as <a href="https://www.ncbi.nlm.nih.gov/pubmed/16735636">smoking</a>, might have. Our latest <a href="https://onlinelibrary.wiley.com/doi/full/10.1002/ece3.5705">study</a> adds to this knowledge. We found that living away from your genetic family may worsen the menopause. <h2>Family matters?</h2> Where people live once they’re married varies across cultures. To investigate whether these different living arrangements affect menopause symptoms, we travelled to south-west China to collect data. In this region, there are groups with distinct living arrangements. First, the Han and the Yi, in which women typically leave their family after they’ve got married and live with their husband’s family. Second, the Mosuo and Zhaba, who engage in the practice of zou hun (“<a href="https://www.ncbi.nlm.nih.gov/pubmed/23486437">walking marriage</a>”), where the husband and wife live separately with their own related families, and only visit each other at night. We found that women who remained living with their own family following marriage had significantly less severe menopause symptoms than those who went to live with their husband’s family. <h2>In-law conflict</h2> Many anthropologists are interested in how different levels of relatedness within households can have behavioural and physiological implications. For the menopause, we think the difference in symptom severity between the groups may be the result of the different levels of conflict that result from being more or less related to other members of your household. If a woman lives with her husband’s family, then until she has children, she is unrelated to anyone in the household. This lack of relatedness can cause <a href="https://link.springer.com/article/10.1007/s40806-017-0114-8">tension</a> between the new wife and her husband’s relatives as they have little direct genetic interest in her. As well as conflict with non-related household members, <a href="https://onlinelibrary.wiley.com/doi/abs/10.1002/evan.20226">earlier research</a> has shown that women who live with their husband’s family tend to argue with their partners more and are also more likely to get divorced. Additionally, rates of domestic violence are <a href="https://www.ncbi.nlm.nih.gov/pubmed/27279077">higher</a> when women live away from their genetic family. But how does this relate to the severity of menopause symptoms? We think that increased levels of household conflict would result in the woman being more stressed. <a href="https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4795524/">Stress</a> is known to worsen pain perception and so could aggravate menopause symptoms. In contrast to women who leave their kin group, women who live with their own family once they’re married also tend to have higher levels of <a href="https://scholar.harvard.edu/slowes/publications/matrilineal-spousal-cooperation">social support</a>. There are more people to help with childcare and more shoulders to cry on. This can help to lower stress and thus soften the mental and physical burden of the menopause. <h2>Global perspectives</h2> While our research was conducted in China, globally, we see a wide range of living arrangements, which themselves can bring different levels of conflict and social support. In the West, many women live away from their families, which may mean that they lack social support, perhaps contributing to more turbulent menopause symptoms. Distance from one’s own family can also be seen to increase <a href="https://onlinelibrary.wiley.com/doi/full/10.1111/j.1741-3737.2005.00155.x">conflict</a> within the household – be it between a husband and wife, or wife and in-laws. These results aren’t an excuse to visit your in-laws less, but they show that menopause symptoms are not only about hormonal irregularities. They may also be a product of your social environment, which should be worth bearing in mind when approaching and going through the menopause.<img style="border: none !important; box-shadow: none !important; margin: 0 !important; max-height: 1px !important; max-width: 1px !important; min-height: 1px !important; min-width: 1px !important; opacity: 0 !important; outline: none !important; padding: 0 !important;" src="https://counter.theconversation.com/content/123621/count.gif?distributor=republish-lightbox-basic" alt="The Conversation" width="1" height="1" /> <a href="https://theconversation.com/profiles/megan-arnot-416253">Megan Arnot</a>, PhD Candidate, Evolutionary Anthropology and Behavioural Ecology, <a href="https://theconversation.com/institutions/ucl-1885">UCL</a> Image credits: Shutterstock This article is republished from <a href="https://theconversation.com">The Conversation</a> under a Creative Commons license. Read the <a href="https://theconversation.com/how-you-experience-the-menopause-may-have-a-lot-to-do-with-your-family-123621">original article</a>. </div>

Body

Hope: A double-edged sword in the human experience

Hope has long been cherished as a source of strength in times of adversity. Yet, as explored in this edited extract from his new book The Human Condition by author Tony Grey, this fundamental emotion is not without its complexities and potential pitfalls. --- As in the host of challenges explored in The Human Condition, the feeling of expectation and desire for something beneficial to happen, which we call hope, is as fundamental to the human condition as the will to survive; they’re linked within the evolutionary imperative. As Cicero pointed out, “dum spiro spero” (while I breathe I hope). Hope is a rolling prayer to life as time moves on, a whisper to the soul that things will turn out all right. The sentiment is generally unchallenged. Why should it be? In times of trouble, we need the balm of hope. Samuel Johnson said, “Hope is a species of pleasure, and perhaps, the chief pleasure this world affords.” While usually positive about hope, Greek philosophers were sometimes ambivalent about it, citing its propensity, through wishful thinking, to encourage indolence or actually cause harm. In Sophocles’ play Antigone, the Chorus sings, “Hope whose wanderings are so wide is to many men a comfort, but to many a false lure of giddy desires.” Plato observes that hope breeds a confidence which can exacerbate a precondition of arrogance in the powerful, leading to serious wrongdoing. “It is among these men that we find the ones who do the greatest evils.” Napoleon and Hitler are examples. And so is the Japanese government responsible for the Pearl Harbour attack. At the World War Two surrender on the deck of the USS Missouri, a Japanese general was heard to say when he looked at the sky blackened by Allied aircraft flying past and the sea bursting with warships, “How did we ever hope we could win?” On the other hand, Plato stressed the motivational properties of hope when directed towards a good aim. And Aristotle links hope with the virtue of megalopsychia (high-mindedness) resulting from its inspirational role. I have an experience of this in my family. My nephew was born to my sister with intellectual disability, and other difficulties. His condition seemed hopeless. Nevertheless, from the first, hope was my sister’s support; it gave her the energy to carry on. Through the gloom it afforded a glimpse into the future where progress beckoned. And all along she demonstrated that hope is ineluctably linked to love. Aided by her husband, the father, she worked day and night teaching and inspiring the boy. When old enough he went to a special needs school and gradually progressed, indefatigably supported at home. Over time his condition improved so that eventually he could take and keep a simple job, cook food, and have friends (similarly disabled), a state absolutely unforeseeable at his early stage of life. Throughout all the difficulties, frustrations and threats of despair, hope sustained my sister and guided her to the wonderful achievement of saving a human life. In most instances, hope is personal in the sense that something specific to the individual or those who are close is wanted. However, it can range far beyond that into areas involving others such as team sports, politics, economic activity, justice, national and tribal identity, international relations – notably war, and pandemics like Covid. Within these fields, hope calls out for the survival and well-being of humanity and its prospects for moral and material progress. Such hope embraces faith in something bigger than the individual. If human beings have a purpose, its linked to that, and its fulfillment is somehow bound up in hope. This approach cries out for exploring a whole array of other challenges inherent in the human condition. ABOUT THE AUTHOR Tony Grey is an accomplished author residing in Sydney. His latest book, The Human Condition, ambitiously explores the hurly burly of human existence, and is available now for purchase through Halstead Press Publishers. Tony is the founder of Pancontinental Mining, a former director of Opera Australia and the Conservatorium of Music, and a former trustee of the Art Gallery of New South Wales. Other books by Tony Grey include Jabiluka, East Wind and Seven Gateways. His writings have featured in the Australian Financial Review, Quadrant and the Australian. Image: Getty Images

Mind

Families including someone with mental illness can experience deep despair. They need support

<div class="theconversation-article-body"> <a href="https://theconversation.com/profiles/amanda-cole-1484502">Amanda Cole</a>, <a href="https://theconversation.com/institutions/edith-cowan-university-720">Edith Cowan University</a> In the aftermath of the <a href="https://theconversation.com/bondi-attacker-had-mental-health-issues-but-most-people-with-mental-illness-arent-violent-227868">tragic Bondi knife attack</a>, Joel Cauchi’s parents have <a href="https://www.theguardian.com/australia-news/video/2024/apr/15/bondi-junction-stabbings-joel-cauchis-father-extremely-sorry-for-victims-video">spoken</a> about their son’s long history of mental illness, having been diagnosed with schizophrenia at age 17. They said they were “devastated and horrified” by their son’s actions. “To you he’s a monster,” said his father. “But to me he was a very sick boy.” Globally, one out of every eight people <a href="https://www.who.int/news-room/fact-sheets/detail/mental-disorders">report a mental illness</a>. In Australia, <a href="https://www.aihw.gov.au/reports/mental-health-services/mental-health">one in five people experience a mental illness</a> in their lifetime. Mental illness and distress affects not only the person living with the condition, but <a href="https://www.aihw.gov.au/reports/australias-health/chronic-conditions-and-multimorbidity">family members and communities</a>. As the prevalence of mental health problems grows, the flow-on effect to family members, including caregivers, and the impact on families as a unit, is also rising. While every family is different, the words of the Cauchis draw attention to how families can experience distress, stress, fear, powerlessness, and still love, despite the challenges and trauma. How can they help a loved one? And who can they turn to for support? <h2>The role of caregivers</h2> Informal caregivers help others <a href="https://www.aihw.gov.au/reports/australias-welfare/informal-carers">within the context of an existing relationship</a>, such as a family member. The care they provide goes beyond the usual expectations or demands of such relationships. Around <a href="https://www.aihw.gov.au/reports/australias-welfare/informal-carers">2.7 million Australians</a> provide informal care. For almost a third of these the person’s primary medical diagnosis is psychological or psychiatric. It has <a href="https://journals.sagepub.com/doi/10.1177/1074840708323598">long been acknowledged</a> that those supporting a family member with ongoing mental illness need support themselves. In the 1980s, interest grew in caregiving dynamics within families of people grappling with mental health issues. Subsequent research recognised <a href="http://www.aihw.gov.au/chronic-diseases/">chronic health conditions</a> not only affect the quality of life and wellbeing of the people experiencing them, but also impose burdens that reverberate within relationships, caregiving roles, and family dynamics over time. Past studies have shown families of those diagnosed with chronic mental illness are increasingly forced to <a href="https://pubmed.ncbi.nlm.nih.gov/24943714/">manage their own depression</a>, experience elevated levels of <a href="https://pubmed.ncbi.nlm.nih.gov/23692348/">emotional stress</a>, negative states of mind and <a href="https://pubmed.ncbi.nlm.nih.gov/21165597/">decreased overall mental health</a>. Conditions such as depression, anxiety disorders, bipolar disorder, and schizophrenia can severely impact daily functioning, relationships, and <a href="https://pubmed.ncbi.nlm.nih.gov/36875411/">overall quality of life</a>. Living with mental illness is often accompanied by a myriad of challenges. From stigma and discrimination to difficulty accessing adequate health care and support services. Patients and their families navigate a complex and often isolating journey. <h2>The family is a system</h2> The concept of <a href="http://apps.who.int/iris/bitstream/10665/40336/1/16937_eng.pdf">family health</a> acknowledges the physical and psychological wellbeing of a person is significantly affected by the family. Amid these challenges, <a href="https://www.frontiersin.org/journals/psychology/articles/10.3389/fpsyg.2024.1330720/full">family support</a> emerges as a beacon of hope. Research consistently demonstrates strong familial relationships and support systems play a pivotal role in mitigating the adverse effects of mental illness. Families provide emotional support, practical assistance, and a sense of belonging that are vital for people struggling with mental illness. My recent <a href="https://www.collegianjournal.com/article/S1322-7696(24)00004-0/fulltext">research</a> highlights the profound impact of mental illness on family dynamics, emphasising the resilience and endurance shown by participants. Families struggling with mental illness often experience heightened emotional fluctuations, with extreme highs and lows. The enduring nature of family caregiving entails both stress and adaptation over an extended period. Stress associated with caregiving and the demands on personal resources and coping mechanisms builds and builds. Yet families I’ve <a href="https://www.collegianjournal.com/article/S1322-7696(24)00004-0/fulltext">interviewed</a> find ways to live “a good life”. They prepare for the peaks and troughs, and show endurance and persistence. They make space for mental illness in their daily lives, describing how it spurs adaptation, acceptance and inner strength within the family unit. When treating a person with mental illness, health practitioners need to consider the entire family’s needs and engage with family members. By fostering open and early dialogue and providing comprehensive support, health-care professionals can empower families to navigate the complexities of mental illness while fostering resilience and hope for the future. Family members <a href="https://www.collegianjournal.com/article/S1322-7696(24)00004-0/fulltext">express stories</a> of an inner struggle, isolation and exhaustion. <h2>Shifting the focus</h2> There is a pressing need for a shift in research priorities, from illness-centered perspectives to a <a href="https://shop.elsevier.com/books/child-youth-and-family-health-strengthening-communities/barnes/978-0-7295-4155-8">strengths-based focus</a> when considering families “managing” mental illness. There is transformative potential in harnessing strengths to respond to challenges posed by mental illnesses, while also <a href="https://www.collegianjournal.com/article/S1322-7696(24)00004-0/fulltext">supporting family members</a>. For people facing mental health challenges, having <a href="https://www.sane.org/information-and-resources/facts-and-guides/families-friends-carers">loved ones who listen without judgement</a> and offer empathy can alleviate feelings of despair. Beyond emotional support, families often serve as crucial caregivers, assisting with <a href="https://www.blackdoginstitute.org.au/emergency-help/helping-someone-else/">daily tasks, medication management and navigating the health-care system</a>. As the Cauchi family so painfully articulated, providing support for a family member with mental illness is intensely challenging. Research <a href="https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4804270/">shows</a> caregiver burnout, financial strain and strained relationships are common. Health-care professionals should prioritise support for family members at an early stage. In Australia, there are various support options available for families living with mental illness. <a href="https://www.carergateway.gov.au/?utm_source=google&utm_medium=paid-search&utm_campaign=10626744435&utm_adgroup=102994881737&utm_term=carer%20gateway%20wa&gad_source=1&gclid=EAIaIQobChMIt8T6pJzIhQMVjAyDAx2KiQl1EAAYASAAEgLj-fD_BwE">Carer Gateway</a> provides information, support and access to services. <a href="https://www.headspace.com/?utm_source=google&utm_medium=search&utm_campaign=HS_Headspace_Brand-Exact_Search_AU-INT_Google_NA&utm_content=&utm_term=headspace&gad_source=1&gclid=EAIaIQobChMI4uKKvpzIhQMVFheDAx1bZgk8EAAYASAAEgLy6vD_BwE">Headspace</a> offers mental health services and supports to young people and their families. Beyond these national services, GPs, nurses, nurse practitioners and local community health centres are key to early conversations. Mental health clinics and hospitals often target family involvement in treatment plans. While Australia has made strides in recognising the importance of family support, challenges persist. Access to services can vary based on geographic location and demand, leaving some families under-served or facing long wait times. And the level of funding and resources allocated to family-oriented mental health support often does not align with the demand or complexity of need. In the realm of mental illness, family support serves as a lifeline for people navigating the complexities of their conditions. <hr /> If this article has raised issues for you, or if you’re concerned about someone you know, call <a href="https://www.lifeline.org.au/">Lifeline</a> on 13 11 14.<img style="border: none !important; box-shadow: none !important; margin: 0 !important; max-height: 1px !important; max-width: 1px !important; min-height: 1px !important; min-width: 1px !important; opacity: 0 !important; outline: none !important; padding: 0 !important;" src="https://counter.theconversation.com/content/228007/count.gif?distributor=republish-lightbox-basic" alt="The Conversation" width="1" height="1" /> <a href="https://theconversation.com/profiles/amanda-cole-1484502">Amanda Cole</a>, Lead, Mental Health, <a href="https://theconversation.com/institutions/edith-cowan-university-720">Edith Cowan University</a> Image credits: Getty Images This article is republished from <a href="https://theconversation.com">The Conversation</a> under a Creative Commons license. Read the <a href="https://theconversation.com/families-including-someone-with-mental-illness-can-experience-deep-despair-they-need-support-228007">original article</a>. </div>

Caring

Experience a unique glimpse into the private life of Princess Diana

When you think of the royal family, most people picture their most high profile moments and the same anecdotes that have been recycled for years. But there is much more to them as a family, and as an institution, than meets the eye. For many royal fans, they have their favourite members of the family who they share an unspoken affinity with, and are often yearning to find out more about the princes and princesses. Around the world, there are few members of the royal family who are as fiercely loved as Princess Diana. Now, for the first time in Sydney, royal fanatics can take a never-before-seen look at the emotional private journey of the People’s Princess through the lens of one of her most trusted confidants: official royal photographer Anwar Hussein. <a href="https://princessdianaexperience.com/sydney/" target="_blank" rel="noopener">Princess Diana: Accredited Access Exhibition</a>, launching in Sydney on Wednesday April 10th, reveals the inside look at royal life from Diana’s perspective, while exploring the deep personal relationships between a princess and her photographer. Royal fans will learn about all sides of the late Princess of Wales, from how she portrayed herself in the public eye, to how she interacted with her inner circle behind closed doors. While the one of a kind exhibition covers all things Princess Diana, royal fans will also see the parallels of Anwar’s relationship with Diana, compared to Anwar’s sons, who went on to photograph Diana’s sons Prince William and Prince Harry, and their lasting relationships with the royal family at large. Throughout the exhibit, Anwar Hussein and his sons Samir and Zak, share their first-hand accounts of the stories behind the world-famous moments of Princess Diana and her family, recounting experiences they shared with the royals over their collective four decades working side-by-side with the royal family. Named one of the "Top 12 Immersive Experiences Around the World You Need to Visit” by CNN, the Princess Diana: Accredited Access Exhibition has sold out in Los Angeles, Chicago, Toronto, and Puerto Rico, and recently wowed audiences in Melbourne. Guests of the Princess Diana: Accredited Access Exhibition will embark on a captivating exploration through various themed sections covering all aspects of royal life, and will be guided by an easy to use audio guide. When arriving at the exhibit (which is housed in an accessible building for those with mobility issues), guests will be instructed to download an audio guide on their smartphone, letting guests move through the exhibition at their own pace. After being provided headphones, guests control the easy to use audio guide at their own speed, with each photograph corresponding to a number on the guide where the audience can learn the inside story behind each captured moment. If guests are hard of hearing, fear not. Each part of the audio guide also features the written script of the Hussein’s commentary, making sure visitors don’t miss any vital information. <img src="https://oversixtydev.blob.core.windows.net/media/2024/04/Diana-instructions.jpg" alt="" width="1280" height="720" /> Working your way through the exhibit can take anywhere up to one hour, with royal fans bound to leave with a new sense of connection and understanding to princess Diana’s private life, and the royal family at large. Princess Diana: Accredited Access Exhibition, presented by leading entertainment discovery platform<a href="http://feverup.com/sydney" target="_blank" rel="noopener"> Fever</a>, in partnership with global entertainment agency, SBX Group is a family-friendly experience that will leave visitors with a new perspective on royal life. Sessions run from 9am to 3pm on Wednesday to Friday, and 9am to 6pm on Saturday and Sunday, with the exhibition running until the end of May 2024. This is not a story you have heard before. Whether you are a hard-core fan or new to her legacy, you will be blown away by the fascinating depth and detail shared by the Hussein family. To purchase tickets, head to<a href="http://princessdianaexperience.com/sydney" target="_blank" rel="noopener"> princessdianaexperience.com/sydney</a>, to not miss out on this incredibly unique insight into the behind the scenes world of the royal family. Image credits: Supplied

Art

"Worst experience of our lives": Aussies break silence after being stranded by cruise ship

An Australian couple have spoken out about how their dream holiday turned into a nightmare after they were abandoned by their cruise ship and left stranded in Africa. Violetta and Doug Sanders were two of eight travellers on the Norwegian Dawn cruise ship who took off on a private tour not organised by the cruise while they were docked on the small African island of São Tomé. After their <a href="https://oversixty.com.au/travel/travel-trouble/the-key-decision-that-led-to-cruise-passengers-being-abandoned-by-ship" target="_blank" rel="noopener">private tour ran late</a>, the Aussie pensioners and their fellow travellers were unable to rejoin the cruise as the ship was ready to disembark from the port, and were left stranded. Doug and Violetta are still attempting to rejoin the cruise in Senegal to be reunited with valuables such as their passports to finish out their journey. The couple spoke to Sunrise on Wednesday, detailing their nightmarish experience in the foreign country. “It’s been the worst experience of our lives to be abandoned like that in a strange country, can’t speak the language — Portuguese or an African (language),” Violeta said. “We have no money, our credit cards aren’t accepted.” The group of stranded travellers have been racing through six African countries to get to where the ship is docking in Senegal in time, but US travellers Jill and Jay Campbell have cast doubt on whether they will re-board the ship. “We believe that it was a basic duty of care that they have forgotten about — although there are a set of rules, they have followed them too rigidly,” Jill told US media overnight. The group, which included four elderly people, a pregnant woman, a quadriplegic and a person with a heart condition, were set to rejoin the ship last Sunday in The Gambia, however, low-tide meant the ship couldn’t dock at the African port. The Campbells have been using their credit card to look after the entire group, spending more than $5,000 USD so far. Norwegian Cruise Lines has said it is up to guests to be back on time. “Guests are responsible for ensuring they return to the ship at the published time, which is communicated broadly over the ship’s intercom, in the daily communication and posted just before exiting the vessel,” it said. The cruise line later said it was in contact with passengers and had been “working closely with authorities” to allow the guests to re-join the ship. Image credits: Sunrise

Travel Trouble

We talked to dozens of people about their experience of grief. Here’s what we learned (and how it’s different from what you might think)

<a href="https://theconversation.com/profiles/michelle-peterie-564209">Michelle Peterie</a>, <a href="https://theconversation.com/institutions/university-of-sydney-841">University of Sydney</a> and <a href="https://theconversation.com/profiles/alex-broom-121063">Alex Broom</a>, <a href="https://theconversation.com/institutions/university-of-sydney-841">University of Sydney</a> Have you ever felt a sudden pang of sadness? A bird seems to stop and look you in the eye. A photo drops out of a messy drawer from long ago, in the mundanity of a weekend spring clean. Your day is immediately derailed, unsettled. You are pulled into something you thought was past. And yet, in being pulled back, you are grateful, reconnected, and grief-stricken all over again. “You’ll get over it”. “Give it time”. “You need time to move on”. These are common cultural refrains in the face of loss. But what if grief doesn’t play by the rules? What if grief is a different thing altogether? We talked to 95 people about their experiences of grief surrounding the loss of a loved one, and <a href="https://journals.sagepub.com/doi/10.1177/00380261241228412">their stories</a> provided a fundamentally different account of grief to the one often presented to us culturally. <h2>Disordered grief?</h2> Grief is often imagined as a time-bound period in which one processes the pain of loss – that is, adjusts to absence and works toward “moving on”. The bereaved are expected to process their pain within the confines of what society deems “normal”. The <a href="https://theconversation.com/explainer-what-is-the-dsm-and-how-are-mental-disorders-diagnosed-9568">DSM-5 psychiatric manual</a> says if grief drags on too long, in fact, it becomes a pathology (a condition with a medical diagnosis). “Prolonged grief disorder” is the name given to “persistent difficulties associated with bereavement that exceeded expected social, cultural, or religious expectations”. While there can be <a href="https://theconversation.com/why-prolonged-grief-should-be-listed-as-a-mental-disorder-4262">value</a> in clinical diagnostic categories such as this, the danger is they put artificial boundaries around emotions. The pathologisation of grief can be deeply alienating to those experiencing it, for whom the pressure to “move on” can be hurtful and counterproductive. The stories we gathered in our research were raw, complex and often fraught. They did not sit comfortably with commonsense understandings of how grief “should” progress. As bereaved daughter Barbara told us: "Grief is not in the little box, it doesn’t even come close to a little box." <h2>Grief starts early</h2> The tendency is to think of grief as something that happens post death. The person we love dies, we have a funeral, and the grief sets in. Then it slowly subsides with the steady march of time. In fact, grief often begins earlier, often in a clinical consultation where the words “terminal” or “nothing more we can do” are used. Or when a loved one is told “go home and get your life in order”. Grief can begin months or even years before bereavement. As the people we interviewed experienced it, loss was also cumulative. The gradual deterioration of a loved one’s health in the years or months before their death imposed other painful losses: the loss of chosen lifestyles, the loss of longstanding relational rhythms, the loss of shared hopes and anticipated futures. Many participants felt their loved ones – and, indeed, the lives they shared with them – slipping away long before their physical deaths. <h2>Living with the dead</h2> Yet the dead do not simply leave us. They remain with us, in memories, rituals and cultural events. From <a href="https://theconversation.com/what-ancient-cultures-teach-us-about-grief-mourning-and-continuity-of-life-86199">Mexico’s Dia de los Muertos</a> to <a href="https://theconversation.com/japans-obon-festival-how-family-commemoration-and-ancestral-worship-shapes-daily-life-179890">Japan’s Opon</a>, festivals of the dead play a key role in cultures around the world. In that way, remembering the dead remains a critical aspect of living. So too does <a href="https://theconversation.com/theres-not-always-closure-in-the-never-ending-story-of-grief-3096">the ongoing experience of grief</a>. Events of this kind are not merely celebratory. They are critical forms through which life and death, joy and grief, are brought together and integrated. The absence of remembering can hold its own trouble, as our participants’ accounts revealed. As bereaved wife Anna explained: "I just find it really frustrating and I do get quite angry and upset sometimes. I know that life goes on. I’d be talking to girlfriends and stuff like that and it’s like they’ve forgotten that I’ve lost my husband. They haven’t, but nothing really changed in their life. But for me, and my family, it has." Part of the problem, here, is the ambivalent role grief plays in advanced industrialised societies like ours. Many of our participants felt pressure to perform resilience or (in clinical terms) to <a href="https://journals.sagepub.com/doi/full/10.1177/1363459317724854">“recover” quickly after loss</a>. But whose interests does a swift recovery serve? An employer’s? Friends who just want to get on with a death-free life? And, even more importantly, mightn’t ongoing connections with the dead enable better living? Might bringing the dead along with us actually make for better deaths and better lives? Many of our participants felt their loved ones remained with them, and experienced their “absent presence” as a source of comfort. Grieving, in this context, involved spending time “with” the dead. Anna described her practice as follows: "I had a diary, so I just write stuff in it about how I’m feeling or something happened and I’ll say to [my deceased husband], it’s all to [my deceased husband], “Do you remember, blah, blah, blah.” I’ll just talk about that memory that I have of that particular time and I find that that helps." <h2>Caring for those who grieve</h2> Grief does not begin at death, but neither do relationships end there. To rush the bereaved through grief – to usher them towards “recovery” and the more comfortable territories of happiness and productivity – is to do them a disservice. And, perhaps more critically, ridding our lives of the dead and grief may, in the end, make for more limited and muted emotional lives.<img style="border: none !important; box-shadow: none !important; margin: 0 !important; max-height: 1px !important; max-width: 1px !important; min-height: 1px !important; min-width: 1px !important; opacity: 0 !important; outline: none !important; padding: 0 !important;" src="https://counter.theconversation.com/content/223848/count.gif?distributor=republish-lightbox-basic" alt="The Conversation" width="1" height="1" /> <a href="https://theconversation.com/profiles/michelle-peterie-564209">Michelle Peterie</a>, Research Fellow, Sydney Centre for Healthy Societies, <a href="https://theconversation.com/institutions/university-of-sydney-841">University of Sydney</a> and <a href="https://theconversation.com/profiles/alex-broom-121063">Alex Broom</a>, Professor of Sociology & Director, Sydney Centre for Healthy Societies, <a href="https://theconversation.com/institutions/university-of-sydney-841">University of Sydney</a> Image credits: Getty Images This article is republished from <a href="https://theconversation.com">The Conversation</a> under a Creative Commons license. Read the <a href="https://theconversation.com/we-talked-to-dozens-of-people-about-their-experience-of-grief-heres-what-we-learned-and-how-its-different-from-what-you-might-think-223848">original article</a>.

Caring

Experience the magic of Ireland down under: A Taste of Ireland 2024 Australian Tour

Get ready to immerse yourself in the rich culture, captivating music and mesmerising dance of Ireland as <a href="https://www.atasteofirelandshow.com/" target="_blank" rel="noopener">A Taste of Ireland</a> returns to enchant audiences across Australia in 2024. Featuring World Champion dancers from Lord of the Dance and Riverdance, prepare to be transported to the rolling green hills and vibrant streets of the Emerald Isle, right in your hometown! What is A Taste of Ireland? A Taste of Ireland is not just a performance; it's an unforgettable journey through the heart and soul of Ireland. Combining traditional and contemporary Irish music and dance, this spectacular show showcases the incredible talent and passion of some of Ireland's finest performers. What to expect From the moment the first note is struck, and the first step is danced, you'll be captivated by the energy and artistry on stage. Feel the rhythm of the bodhrán drum reverberate through your bones, and let the fiddles whisk you away to a land of ancient myths and legends. Prepare to be dazzled by the lightning-fast footwork and intricate choreography of the dancers as they weave tales of love, loss and triumph through their movements. Each step tells a story, each leap a celebration of life itself. Why attend? Whether you're a die-hard fan of Irish culture or simply looking for a night of entertainment unlike any other, A Taste of Ireland offers something for everyone. It's an opportunity to witness the magic of Ireland's rich heritage brought to life before your very eyes. Forget your troubles for an evening and let the music and dance sweep you away on a journey you won't soon forget. Whether you're tapping your feet to the lively jigs and reels or wiping away tears during a poignant ballad, A Taste of Ireland is an experience that will touch your heart and soul. Tour dates and locations The 2024 Australian Tour of A Taste of Ireland will be making stops across Australia for 80 shows from March to July, bringing the magic of Ireland to a venue near you. <a href="https://www.atasteofirelandshow.com/" target="_blank" rel="noopener">Check the tour schedule</a> to find out when this unforgettable experience will be coming to your area. Get your tickets now! Don't miss your chance to experience the beauty and excitement of A Taste of Ireland. Tickets are selling fast, so book yours today and get ready for a night of music, dance, and memories that will last a lifetime. Witness the show that has received rave reviews across the globe. Don't rely on the luck of the Irish – <a href="https://www.atasteofirelandshow.com/" target="_blank" rel="noopener">book now</a>, because tickets are selling out fast! Images: Supplied. This is a sponsored article produced in partnership with Pace Live.

Music

It’s 4 years since the first COVID case in Australia. Here’s how our pandemic experiences have changed over time

<a href="https://theconversation.com/profiles/deborah-lupton-9359">Deborah Lupton</a>, <a href="https://theconversation.com/institutions/unsw-sydney-1414">UNSW Sydney</a> It might be hard to believe, but four years have now passed since the <a href="https://www.health.gov.au/topics/covid-19/about">first COVID case</a> was confirmed in Australia on January 25 2020. Five days later, the <a href="https://www.who.int/publications/m/item/covid-19-public-health-emergency-of-international-concern-(pheic)-global-research-and-innovation-forum">World Health Organization</a> (WHO) declared a “public health emergency of international concern”, as the novel coronavirus (later named SARS-CoV-2) began to spread worldwide. On March 11 the WHO would declare COVID a pandemic, while around the same time Australian federal and state governments hastily <a href="https://www.aph.gov.au/About_Parliament/Parliamentary_departments/Parliamentary_Library/pubs/rp/rp2021/Chronologies/COVID-19StateTerritoryGovernmentAnnouncements">introduced measures</a> to “stop the spread” of the virus. These included shutting Australia’s international borders, closing non-essential businesses, schools and universities, and limiting people’s movements outside their homes. I began my project, <a href="https://www.frontiersin.org/articles/10.3389/fpubh.2023.1092322/full">Australians’ Experiences of COVID-19</a>, in May 2020. This research has continued each year to date, allowing me to track how Australians’ attitudes around COVID have changed over the course of the pandemic. <h2>Evolving pandemic experiences</h2> We recruited participants from across Australia, including people living in regional cities and towns. Participants range in age from early adulthood to people in their 80s. The first three stages of the project each involved 40 interviews with separate groups of participants (so 120 people in total). These interviews were done in May to July 2020 (stage 1), September to October 2021 (stage 2), and September 2022 (stage 3). Stage 4 was an online survey with 1,000 respondents, conducted in September 2023. Limitations of this project include the small sample sizes for the first three stages (as is common with qualitative interview-based research). This means the findings from those phases are not generalisable, but they do provide rich insights into the experiences of the interviewees. The quantitative stage 4 survey, however, is representative of the Australian population. The findings show that as the conditions of the pandemic and government management have changed across these years, so have Australians’ experiences. In the <a href="https://bmcpublichealth.biomedcentral.com/articles/10.1186/s12889-021-10743-7">early months of the pandemic</a>, some people reported becoming confused, distressed and overwhelmed by the plethora of information sources and the fast-changing news environment. On the other hand, seeking out information provided reassurance and comfort in response to their anxiety and uncertainty about this new disease. Australians <a href="https://www.taylorfrancis.com/chapters/edit/10.4324/9781003280644-28/covid-19-crisis-communication-deborah-lupton">continued to rely heavily</a> on news reports and government announcements in the first two years of the pandemic. Regular briefings from premiers and <a href="https://theconversation.com/chief-health-officers-are-in-the-spotlight-like-never-before-heres-what-goes-on-behind-the-scenes-166828?utm_source=twitter&utm_medium=bylinetwitterbutton">chief health officers in particular</a> were highly important for how they learned what was happening, as were updates in the media on case numbers, hospitalisations, deaths and progress towards vaccination targets. <h2>Trust has eroded</h2> Australians appear to have lost a lot of trust in COVID information sources such as news media reports, health agencies and government leaders. Early strong support of federal, state and territory governments’ pandemic management in <a href="https://bmcpublichealth.biomedcentral.com/articles/10.1186/s12889-021-10743-7">2020</a> and <a href="https://www.tandfonline.com/doi/full/10.1080/14649365.2023.2240290">2021</a> has given way to much lower support more recently. My <a href="https://papers.ssrn.com/sol3/papers.cfm?abstract_id=4626720">2023 survey</a> (this is published as a report, not peer-reviewed) found doctors were considered the most trustworthy sources of COVID information, but even they were trusted by only 60% of respondents. After doctors, participants trusted other experts in the field (53%), Australian government health agencies (52%), global health agencies (49%), scientists (45%) and community health organisations (35%). Australian government leaders were towards the lower end of the spectrum (31%). In <a href="https://academic.oup.com/heapro/article/38/1/daac192/7026242?login=false">2021</a>, Australians responded positively to the vaccine targets and “<a href="https://www.premier.vic.gov.au/victorias-roadmap-delivering-national-plan">road maps</a>” set by governments. These clear guidelines, and especially the promise that the initial doses would remove the need for lockdowns and border closures, were strong incentives to get vaccinated in 2021. Unfortunately, the prospect that vaccines would control COVID was shown to be largely unfounded. While COVID vaccines were and continue to be very effective at protecting against severe disease and death, they’re less effective at <a href="https://coronavirus.jhu.edu/vaccines/vaccines-faq">stopping people becoming infected</a>. Once very high numbers of eligible Australians became vaccinated against the delta variant, <a href="https://pubmed.ncbi.nlm.nih.gov/37068078/">omicron reached Australia</a>, resulting in Australia’s first big wave of infection. This led to disillusionment about vaccines’ value for many participants. In the <a href="https://papers.ssrn.com/sol3/papers.cfm?abstract_id=4626720">2023 survey</a>, respondents reported a high uptake of the first three COVID shots. But when asked whether they planned to get another vaccine in the next 12 months, almost two-thirds said they did not, or they were unsure. <h2>Enter complacency</h2> Complacency now seems to have set in for many Australians. This can be linked to the progressive withdrawal of strong public health measures such as quarantine, mandatory isolation when infected, and testing and tracing regimens. Meanwhile, the media, government leaders and health agencies have played less of an active public role in conveying COVID information. This has led to uncertainty about the extent to which COVID is still a risk and lack of incentive to take protective actions such as mask wearing. In <a href="https://papers.ssrn.com/sol3/papers.cfm?abstract_id=4626720">2023</a>, after mandates had ended, only 9% of respondents said they always wore a mask in indoor public places. Only a narrow majority of respondents even supported compulsory masking for workers in health-care facilities. The <a href="https://papers.ssrn.com/sol3/papers.cfm?abstract_id=4626720">2023 survey</a> confirmed many Australians no longer feel at risk from COVID. Some 17% of respondents said COVID was definitely still posing a risk to Australians, while a further 42% saw COVID as somewhat of a risk. This left 28% who did not view COVID as much of a continuing risk, and 13% who thought it was not a risk at all. <h2>COVID is still a risk</h2> Whether or not people feel at continuing risk from COVID, the pandemic is still significantly affecting Australians. The <a href="https://papers.ssrn.com/sol3/papers.cfm?abstract_id=4626720">2023 survey</a> found more than two-thirds of respondents (68%) reported having had at least one COVID infection to their knowledge, including 13% who had experienced three or more. Of those who’d had COVID, 40% said they experienced ongoing symptoms, or long COVID. If the pandemic loses visibility in public forums, people have no way of knowing the risk of infection continues, and are therefore unlikely to take steps to protect themselves and others. Updated case, hospitalisation, death and vaccination numbers should be communicated regularly, as <a href="https://theconversation.com/covid-is-surging-in-australia-and-only-1-in-5-older-adults-are-up-to-date-with-their-boosters-220839">used to be the case</a>. To combat confusion, complacency and misinformation, all health advice should be based on the latest robust science. Australians are operating in a vacuum of information from trusted sources. They need much better and more frequent public health campaigns and risk communication from their leaders.<img style="border: none !important; box-shadow: none !important; margin: 0 !important; max-height: 1px !important; max-width: 1px !important; min-height: 1px !important; min-width: 1px !important; opacity: 0 !important; outline: none !important; padding: 0 !important;" src="https://counter.theconversation.com/content/220336/count.gif?distributor=republish-lightbox-basic" alt="The Conversation" width="1" height="1" /> <a href="https://theconversation.com/profiles/deborah-lupton-9359">Deborah Lupton</a>, SHARP Professor, Vitalities Lab, Centre for Social Research in Health and Social Policy Centre, and the ARC Centre of Excellence for Automated Decision-Making and Society, <a href="https://theconversation.com/institutions/unsw-sydney-1414">UNSW Sydney</a> Image credits: Getty Images This article is republished from <a href="https://theconversation.com">The Conversation</a> under a Creative Commons license. Read the <a href="https://theconversation.com/its-4-years-since-the-first-covid-case-in-australia-heres-how-our-pandemic-experiences-have-changed-over-time-220336">original article</a>.

Caring

Michael Bublé's terrifying near-death experience

Michael Bublé has recalled the terrifying moment he faced "certain death" while he was out on a walk with actor Barry Pepper. The close call occurred during the holiday season after a wrap party in Manitoba, Canada, the singer shared in an interview with Kelly Clarkson. “I think, in the moment, we’re like, ‘You know what we should do? We should like race down the beach’,” Bublé shared the idea the two friends had after a few drinks. “And so me and him and another guy came running down this beach. “A guy that lived there just started swearing, literally swearing at us and just screaming — I mean screaming bloody murder.” “We didn’t realise we were running to our certain death," he explained. “Because there were polar bears all down the beach. And yes, they’re the most aggressive," the singer added, gushing about how "cuddly" they looked despite their aggressive nature. “Sometimes I wonder about that, how close I was to being like a little polar bear lunch.” Shocked by his odd close call, host Kelly Clarkson remarked, “Who would’ve thought there were just polar bears — nobody ever hears that. ‘Oh, there’s polar bears hanging on the beach.’ It just doesn’t happen.” Image: Getty

Travel Trouble

About 1 in 6 older Australians experiences elder abuse. Here are the reasons they don’t get help

<a href="https://theconversation.com/profiles/eileen-obrien-95332">Eileen O'Brien</a>, <a href="https://theconversation.com/institutions/university-of-south-australia-1180">University of South Australia</a>; <a href="https://theconversation.com/profiles/catriona-stevens-1455614">Catriona Stevens</a>, <a href="https://theconversation.com/institutions/edith-cowan-university-720">Edith Cowan University</a>, and <a href="https://theconversation.com/profiles/loretta-virginia-baldassar-1485078">Loretta Virginia Baldassar</a> Each year, many older Australians experience abuse, neglect or financial exploitation, usually at the hands of their adult children or other close relatives. A recent <a href="https://aifs.gov.au/research/research-reports/national-elder-abuse-prevalence-study-final-report">national prevalence study</a> revealed one in six older Australians living at home experiences elder abuse. This may encompass various forms of abuse, such as emotional, financial, social, physical and sexual abuse, or neglect. Despite elder abuse being such a common problem, older people often don’t get the help they need. With the right responses, we can make it easier for those working with older people, and the wider community, to support them. Our <a href="https://www.wa.gov.au/system/files/2023-11/everyones_business_research_into_responses_to_the_abuse_of_older_in_wa_report.pdf">new research</a> reveals the key reasons older people experiencing harm do not receive the support they so desperately need. Our study included a survey of nearly 700 service providers throughout Western Australia. Respondents worked in diverse fields including healthcare, law, aged care, financial services and law enforcement. We found four key obstacles to people getting help with elder abuse. 1. Older people are too scared to report abuse. Older people are often afraid to report abuse because they fear repercussions both for themselves and for the perpetrator, usually an adult child or other close relative. These concerns can mean an older person endures abuse for a long time. They may only seek help when the situation escalates to an extreme level or when someone else notices the ongoing mistreatment. Equally important, they may fear other negative outcomes of reporting abuse. They may fear having to leave their home and enter residential care. They may fear increased isolation and loneliness, or that the abuse will get worse. All these fears combined create a formidable barrier to older people promptly reporting abuse and getting the help they need. <blockquote class="twitter-tweet"> <a href="https://twitter.com/hashtag/ElderAbuse?src=hash&ref_src=twsrc%5Etfw">#ElderAbuse</a> is more common than people realize. It can happen: In their own homes In hospitals In nursing homes or other kinds of long-term care facilities Learn more, including how to prevent elder abuse: <a href="https://t.co/CAkBHQO4gm">https://t.co/CAkBHQO4gm</a><a href="https://twitter.com/hashtag/Alzheimers?src=hash&ref_src=twsrc%5Etfw">#Alzheimers</a> <a href="https://twitter.com/hashtag/dementia?src=hash&ref_src=twsrc%5Etfw">#dementia</a> <a href="https://twitter.com/hashtag/aging?src=hash&ref_src=twsrc%5Etfw">#aging</a> <a href="https://twitter.com/hashtag/geriatrics?src=hash&ref_src=twsrc%5Etfw">#geriatrics</a> <a href="https://t.co/gO3Dc6Dy3Z">pic.twitter.com/gO3Dc6Dy3Z</a> — Ian Kremer (@LEAD_Coalition) <a href="https://twitter.com/LEAD_Coalition/status/1720567529200918550?ref_src=twsrc%5Etfw">November 3, 2023</a></blockquote> 2. Older people don’t know where to turn for help Elder abuse cases are often complex, involving long family histories and complicated relationships. Older people trying to improve their situation may need support from multiple service providers. The challenge of accessing the right services and acting on their advice can be daunting. Addressing complicated matters may require intensive support and advocacy for an extended time. In the words of one experienced advocate, <blockquote> People don’t need to know the next ten steps. They need to know one step, maybe two, and then see where they are at. </blockquote> Helping older people feel empowered to seek help requires simple, accessible channels of assistance, promoted through multiple formats and outreach efforts. 3. Government-funded responses to family violence are more focused on intimate partner violence and child protection, leaving elder abuse out of the picture Most programs targeting family violence prioritise intimate partner violence and child protection, inadvertently sidelining elder abuse. Services such as shelters and perpetrator programs are not always compatible with the distinct characteristics of elder abuse. Additionally, the gendered nature of family violence responses fails to address the diverse demographics of elder abuse, which includes older men. As a result, older people, regardless of gender, may struggle to access supports suited to their needs. A refuge manager explained: <blockquote> When a bed becomes available we have this awful job of deciding who’s more high-risk and who gets the bed. If an older person needs the bed, as opposed to a single mum with a newborn, unfortunately we would go with the mum. That really presents a barrier where there isn’t refuge accommodation specifically for older people. </blockquote> There is a pressing need for a shift in focus to better recognise elder abuse as a significant issue and tailor responses to meet the specific needs of older people. This includes creating safe and accessible refuge options and providing specialised support services to address the multifaceted nature of elder abuse. 4. There’s low public awareness about what elder abuse looks like or how to respond Awareness of elder abuse remains surprisingly low, hindering effective responses. Changing this requires clear public information campaigns and community-wide conversations about abuse. This includes greater awareness of the challenge for well-meaning adult children who might limit the choices of their older relatives, thinking they know best. This can result in unintended social isolation or even neglect. A society that speaks openly about elder abuse, without stigma, is better equipped to support victims and intervene. By building public knowledge and promoting a culture where such issues can be freely discussed, we lay the groundwork for reducing its incidence. We are living longer lives than ever before, meaning we can expect to spend more years in older age than previous generations. This is good news, but also means we need to do more work to support people to age well. Positive steps we can all take include tackling ageism when we see it and normalising conversations about abuse so older people can feel confident to seek help when it’s needed.<img style="border: none !important; box-shadow: none !important; margin: 0 !important; max-height: 1px !important; max-width: 1px !important; min-height: 1px !important; min-width: 1px !important; opacity: 0 !important; outline: none !important; padding: 0 !important;" src="https://counter.theconversation.com/content/216827/count.gif?distributor=republish-lightbox-basic" alt="The Conversation" width="1" height="1" /> <a href="https://theconversation.com/profiles/eileen-obrien-95332">Eileen O'Brien</a>, Professor of Law, Discipline of Law, Justice and Society, <a href="https://theconversation.com/institutions/university-of-south-australia-1180">University of South Australia</a>; <a href="https://theconversation.com/profiles/catriona-stevens-1455614">Catriona Stevens</a>, Forrest Prospect Fellow in Sociology and Anthropology, <a href="https://theconversation.com/institutions/edith-cowan-university-720">Edith Cowan University</a>, and <a href="https://theconversation.com/profiles/loretta-virginia-baldassar-1485078">Loretta Virginia Baldassar</a>, Vice Chancellor Professorial Research Fellow, School of Arts and Humanities, Edith Cowan University This article is republished from <a href="https://theconversation.com">The Conversation</a> under a Creative Commons license. Read the <a href="https://theconversation.com/about-1-in-6-older-australians-experiences-elder-abuse-here-are-the-reasons-they-dont-get-help-216827">original article</a>.

Legal

Australia can learn from the UK’s experience by making banks pay for scam losses

<a href="https://theconversation.com/profiles/muhammad-al-mamun-1454182">Muhammad Al Mamun</a>, <a href="https://theconversation.com/institutions/la-trobe-university-842">La Trobe University</a> British banks will soon be required to reimburse customers who fall victim to authorised push payment fraud – where a scammer convinces you to authorise a payment, generally by masquerading as a legitimate business or person. The new rules from the UK’s <a href="https://www.psr.org.uk/">Payment Systems Regulator</a> are intended to incentivise all businesses involved in payments to take more action against scam activity, with reimbursement costs split 50:50 between the bank that sends and the bank that receives the payment. There is a strong case that banks and other payment providers in Australia (and New Zealand) should be made to do the same. Scam-related losses are soaring, and banks are falling short of detecting, stopping and recovering losses. In 2022 Australians <a href="https://www.accc.gov.au/system/files/Targeting%20scams%202022.pdf">lost at least $3.1 billion</a> to scams – an 80% increase on 2021. The Australian Competition and Consumer Commission says the actual losses were far higher, because about 30% of victims don’t report their loss to anyone. While the biggest losses came from investment scams (totalling $1.5 billion), payment redirection scams – where a scammer impersonates a business or individual asking for payment – amounted to A$224 million. Among the most vulnerable groups are older people (25% of losses were reported by those aged 65+), people with a disability (6% of reported losses), and people from culturally and linguistically diverse communities (almost 10% of reported losses). <h2>What are Australian banks doing?</h2> No regulations oblige Australian banks to reimburse scam victims, though some banks have self-governed reimbursement policies. While banks have dedicated fraud teams to prevent scams and support victims, the most recent review of the four major banks’ processes by the Australian Investments and Securities Commission, <a href="https://download.asic.gov.au/media/mbhoz0pc/rep761-published-20-april-2023.pdf">published in April</a>, says they detected and stopped just 13% of scam payments. Reimbursement policies and practices varied from bank to bank but the overall rate was low – ranging from 2% to 5%. The review described the banks’ approaches to liability, reimbursement and compensation as “inconsistent and generally very narrow”. <h2>Why the UK has made banks responsible</h2> The greater obligations being imposed on British banks follows attempts by the UK’s <a href="https://www.psr.org.uk/">Payment Systems Regulator</a> to improve consumer protections through a voluntary code of conduct. Introduced in May 2019, this voluntary code was intended, under certain conditions, to ensure the reimbursement of victims of “authorised push payment” scams. These conditions included the customer taking reasonable care and notifying any scam incident to the bank. It had modest success, with <a href="https://www.psr.org.uk/news-and-updates/latest-news/news/psr-sets-out-proposals-to-give-greater-protection-against-app-scams/">46% of reported scam losses</a> being reimbursed between 2020 and 2022. But the Payment Systems Regulator wants 95%. So it has pressed for a mandatory reimbursement scheme. Under the new provisions money must be reimbursed within 48 hours of a fraud being reported. The idea is to get banks to put more effort into detecting and preventing scams. Overall, the UK has accepted the need for a more regimented regulatory approach over a market-based one. <h2>A more pragmatic approach needed</h2> While the Australian Investments and Securities Commission’s own reports have revealed the sorry state of scam prevention, management, and reimbursement practices at major banks, the regulatory body is still not walking in the footsteps of the UK. It is instead advising banks to improve their governance and scam management practices. The Australian Banking Association, which represents the banking sector, has strongly argued against regulation supporting mandatory reimbursement. It has even suggested this <a href="https://www.smh.com.au/business/banking-and-finance/big-banks-fight-push-for-billions-of-dollars-in-scam-refunds-20220131-p59sp3.html">could increase scamming losses</a> because of the risk customers will take less care if they know any losses will be covered by their bank. It has called for greater personal responsibility in preventing scam losses. But such an argument ignores the effects of the digitisation push by financial service providers, which has made scamming so much easier. Scammers are also becoming more sophisticated. The statistics speak for themselves. Scamming losses are increasing. Recovery rates are meagre. A more pragmatic approach based on this reality and banks’ fiduciary responsibilities is needed.<img style="border: none !important; box-shadow: none !important; margin: 0 !important; max-height: 1px !important; max-width: 1px !important; min-height: 1px !important; min-width: 1px !important; opacity: 0 !important; outline: none !important; padding: 0 !important;" src="https://counter.theconversation.com/content/209585/count.gif?distributor=republish-lightbox-basic" alt="The Conversation" width="1" height="1" /> <a href="https://theconversation.com/profiles/muhammad-al-mamun-1454182">Muhammad Al Mamun</a>, Senior Lecturer in Finance, <a href="https://theconversation.com/institutions/la-trobe-university-842">La Trobe University</a> Image credits: Getty Images This article is republished from <a href="https://theconversation.com">The Conversation</a> under a Creative Commons license. Read the <a href="https://theconversation.com/australia-can-learn-from-the-uks-experience-by-making-banks-pay-for-scam-losses-209585">original article</a>.

Money & Banking

Travelers will refuse an upgrade to sit near a loved one – new research into when people want to share experiences

<a href="https://theconversation.com/profiles/ximena-garcia-rada-1238853">Ximena Garcia-Rada</a>, <a href="https://theconversation.com/institutions/texas-aandm-university-1672">Texas A&M University</a>; <a href="https://theconversation.com/profiles/michael-norton-145591">Michael Norton</a>, <a href="https://theconversation.com/institutions/harvard-university-1306">Harvard University</a>, and <a href="https://theconversation.com/profiles/rebecca-k-ratner-1439964">Rebecca K. Ratner</a>, <a href="https://theconversation.com/institutions/university-of-maryland-1347">University of Maryland</a> The <a href="https://theconversation.com/us/topics/research-brief-83231">Research Brief</a> is a short take about interesting academic work. <h2>The big idea</h2> People will often sacrifice a better experience and opt for one that’s less enjoyable if it means they can do it alongside a loved one – whether that’s a romantic partner, close friend or relative. That’s the main finding of <a href="https://doi.org/10.1002/jcpy.1352">our research</a> published in the Journal of Consumer Psychology in April 2023. For example, when taking a flight, two friends might decide to sit in adjacent seats in coach rather than accept a free upgrade to nonadjacent seats in first class. Failing to choose togetherness can have consequences, as in the “<a href="https://www.youtube.com/watch?v=d2JKXbVGq7A">Seinfeld” episode</a> in which Elaine suffers the indignities of economy class, leading to rage against Jerry after he chooses to accept an upgrade. We conducted five studies in a variety of settings and featuring different social bonds, including friendships and romantic relationships. In one study, just over half of people chose two adjacent seats far from the stage over two nonadjacent seats closer to the stage when imagining they were attending a Cirque du Soleil performance with a close friend, compared with only about one-third who chose the adjacent seats when imagining attending with an acquaintance. In another study, we asked students whether they wanted to eat one chocolate with another person – either a new friend or a stranger – or two chocolates alone. Half the people chose the shared experience – but only if the other person was a friend. Fewer people – 38% – opted for the shared experience if the other person was a stranger. <h2>Why it matters</h2> One reason people prioritize physical proximity with close partners is because they want to create shared memories. Importantly, people believe that physical distance can disrupt the creation of shared memories, and so they forgo enjoyable experiences apart from their loved one. This also matters for companies seeking to improve customer experience, such as an airline offering free upgrades or shorter wait times. Our findings suggest that, for example, consumers traveling with a companion might not take advantage of services like TSA PreCheck, an airline VIP lounge or a free upgrade if it is available only for themselves. It also helps explain why consumers do not like when <a href="https://www.nytimes.com/2023/03/06/travel/airlines-family-seating-dashboard.html">airlines split up families</a> in their seat assignments. However, we also tested a few initiatives marketers can use to encourage people to choose a higher-quality experience that requires them to be apart from their companion. In another experiment, we described a train ride as either a fun part of an excursion or as a practical way to reach a final destination. More participants accepted a free upgrade – even though it required sitting apart from their romantic partner – when they perceived the train ride as utilitarian. That’s because they cared less about creating shared memories during the experience. <h2>What still isn’t known</h2> We still don’t know how this preference affects relationship quality. For example, when can time apart from your partner actually strengthen the relationship? And how should couples split their time between lower-quality activities done together and higher-quality activities done alone? One option for separate activities, for example, might be when one partner’s desired activity does not interest the other. Also, given that people believe physical proximity is a prerequisite for creating shared memories, how can partners who live in different places also cultivate shared memories? This question is especially important in light of how COVID-19 has enabled more people to work and study remotely.<img style="border: none !important; box-shadow: none !important; margin: 0 !important; max-height: 1px !important; max-width: 1px !important; min-height: 1px !important; min-width: 1px !important; opacity: 0 !important; outline: none !important; padding: 0 !important;" src="https://counter.theconversation.com/content/205363/count.gif?distributor=republish-lightbox-basic" alt="The Conversation" width="1" height="1" /> Image credit: Getty <a href="https://theconversation.com/profiles/ximena-garcia-rada-1238853">Ximena Garcia-Rada</a>, Assistant Professor of Marketing, <a href="https://theconversation.com/institutions/texas-aandm-university-1672">Texas A&M University</a>; <a href="https://theconversation.com/profiles/michael-norton-145591">Michael Norton</a>, Professor of Business Administration, <a href="https://theconversation.com/institutions/harvard-university-1306">Harvard University</a>, and <a href="https://theconversation.com/profiles/rebecca-k-ratner-1439964">Rebecca K. Ratner</a>, Professor of Marketing, <a href="https://theconversation.com/institutions/university-of-maryland-1347">University of Maryland</a> This article is republished from <a href="https://theconversation.com">The Conversation</a> under a Creative Commons license. Read the <a href="https://theconversation.com/travelers-will-refuse-an-upgrade-to-sit-near-a-loved-one-new-research-into-when-people-want-to-share-experiences-205363">original article</a>.

International Travel

Most amazing animal experiences to have when travelling

These are some unbelievable opportunities around the world to get up close (really close) to your favourite wild animals. Monkey business / Viewing The orangutan is Asia’s only great ape and Borneo is one of only two places in the world that they are found. Decades of deforestation have left the Bornean orangutan seriously endangered. At the Sepilok Orangutan Rehabilitation Centre 60 to 80 of the great apes live on a 43 square kilometre reserve while 25 orphaned babies are rehabilitated in the nursery. Though they look perfect for cuddling, guests can’t get too close – but you can visit during the two feeding times each day and walk among the boardwalks through the forest while the orangutans swoop from the trees to eat the fruit and sugar cane left on feeding platforms around 20 metres away from you Baby elephant walk / Hands on The Asian elephant is an endangered species and Thailand is home to more Asian elephants than anywhere in the world. For a hands-on experience with these gentle giants, Patara Elephant Farm in Chiang Mai allows you to participate in their day to day caring. There are six residents elephants that are “adopted” by guests for the day and you are trained to approach the elephant, know its temperament, feed and check its health, bathe and brush it in the river, learn how to ride on its neck and communicate through spoken commands. King of the jungle / Interaction You’re generally not encouraged to get up close to really dangerous animals, but at Lion Encounter in Zambia you can walk alongside some of the eight resident lion cubs – with no fence in between. The cubs range from three to 18 months old and will happily walk through the bush with you, pounce and play with each other and, if you’re lucky, even nuzzle in for a pat. Walks are escorted by guides, scouts and lion handlers so you are never in danger. The program is part of a larger breeding program and once lions graduate from this stage they will be removed from human interaction, integrated with a pack and eventually released into the wild. A whale of a time / Interaction The might be called dwarf minke whales but at eight metres long and weighing several tonnes, they are still pretty substantial. Dwarf minkes pass through the Great Barrier Reef each winter and this is the only place in the world that you can snorkel and dive with them. The whales are very inquisitive and an experience will generally involve interacting with two to three whales for around 90 minutes. Very little is known about these huge mammals so guests are often asked to participate in ongoing research programs and record their observations or submit photos to the minke whale database. One for the bucket list / Viewing With around half of Canada’s grizzly population, British Columbia is the best place to see the bears in the wild. A number of lodges have been established inside the Great Bear Rainforest where guests can participate in guided viewing sessions from boats, getting up very close to the action. Bears can be seen fishing for salmon in rivers, feeding on berries or succulents, and (very rarely) napping in the sun. Tours run from May to October, but visit from August onwards for the best chance to see cubs. At around $1,000 per person per night these tours aren’t cheap, but they are certainly unforgettable. Image credit: Shutterstock Related links: <a href="../travel/travel-club/2015/02/unusual-places-you-can-stay/" target="_blank" rel="noopener">5 of the most unusual places your spend the night</a> <a href="../travel/travel-club/2015/01/classic-rail-journeys-around-the-world/" target="_blank" rel="noopener">All aboard! Classic rail journeys around the world</a> <a href="../travel/travel-club/2014/11/worlds-beautiful-landscapes/" target="_blank" rel="noopener">6 of the world’s most beautiful (and surreal) landscapes</a>

Travel Tips

People with long COVID continue to experience medical gaslighting more than 3 years into the pandemic

<a href="https://theconversation.com/profiles/simran-purewal-1405366">Simran Purewal</a>, <a href="https://theconversation.com/institutions/simon-fraser-university-1282">Simon Fraser University</a>; <a href="https://theconversation.com/profiles/kaylee-byers-766226">Kaylee Byers</a>, <a href="https://theconversation.com/institutions/simon-fraser-university-1282">Simon Fraser University</a>; <a href="https://theconversation.com/profiles/kayli-jamieson-1431392">Kayli Jamieson</a>, <a href="https://theconversation.com/institutions/simon-fraser-university-1282">Simon Fraser University</a>, and <a href="https://theconversation.com/profiles/neda-zolfaghari-1431577">Neda Zolfaghari</a>, <a href="https://theconversation.com/institutions/simon-fraser-university-1282">Simon Fraser University</a> It’s increasingly clear that the <a href="https://www.worldometers.info/coronavirus/country/canada/">SARS-CoV-2 virus is not going away</a> any time soon. And for some patients, their symptoms haven’t gone away either. In January 2023, our team of researchers at the <a href="https://pipps.ca/">Pacific Institute on Pathogens, Pandemics and Society</a> published a <a href="https://pipps.cdn.prismic.io/pipps/bd160219-3281-4c5d-b8be-57c301e7f99b_Long+Covid+Brief+Feb+2023.pdf">research brief</a> about how people seek out information about long COVID. The brief was based on a scoping review, a type of study that assesses and summarizes available research. Our interdisciplinary team aims to understand the experiences of people with long COVID in order to identify opportunities to support health care and access to information. <h2>Lingering long COVID</h2> Long COVID (also called <a href="https://www.canada.ca/en/public-health/services/diseases/2019-novel-coronavirus-infection/symptoms/post-covid-19-condition.html">Post COVID-19 condition</a>) is an illness that occurs after infection with COVID-19, lasting weeks to months, and even years. First coined by a <a href="https://doi.org/10.1016%2Fj.socscimed.2020.113426">patient on Twitter</a>, the term also represents a collective movement of people experiencing the long-term effects of COVID-19 and advocating for care. <a href="https://science.gc.ca/site/science/sites/default/files/attachments/2023/Post-Covid-Condition_Report-2022.pdf">Around 15 per cent</a> of adults who have had COVID still have symptoms after three months or more. Long COVID affects systems <a href="https://doi.org/10.1016/j.socscimed.2021.114619">throughout the body</a>. However, symptom fluctuations and limited diagnostic tools make it challenging for health-care providers to diagnose, especially with <a href="https://doi.org/10.1038/s41579-022-00846-2">over 200 symptoms</a> that may present in patients. Perhaps because long COVID presents itself in many different ways, the illness has <a href="https://doi.org/10.1016/j.socscimed.2021.114619">been contested</a> across the medical field. To identify opportunities to reduce barriers to long COVID care, our team has explored how patients and their caregivers access <a href="https://pipps.cdn.prismic.io/pipps/bd160219-3281-4c5d-b8be-57c301e7f99b_Long+Covid+Brief+Feb+2023.pdf">information about long COVID</a>. We have found that one of the most significant barriers faced by patients is <a href="https://doi.org/10.1177/20552076211059649">medical gaslighting</a> by the people they have turned to for help. <h2>Lack of validation leads to stigma</h2> <a href="https://doi.org/10.1136/bmj.o1974">Medical gaslighting</a> occurs when health-care practitioners dismiss or falsely blame patients for their symptoms. While new information about long COVID has become more readily available, some patients continue to face gaslighting and feel that their symptoms are <a href="https://doi.org/10.1016%2Fj.ssmqr.2022.100177">treated less seriously</a> by some health-care professionals. This dismissal can <a href="https://doi.org/10.1111/hex.13602">erode trust</a> in the health-care system and can also lead to <a href="https://doi.org/10.1111/hex.13518">stigma and shame</a>. Preliminary findings from our ongoing study with long COVID patients indicate that, when medical practitioners do not validate a patient’s condition, this extends into community networks of family and friends who may also dismiss their symptoms, contributing to further stigmatization at home. Medical gaslighting can present additional barriers to treatment, such as not being referred to specialists or long COVID clinics. This can, in turn, compound other symptoms such as fatigue, and <a href="https://doi.org/10.1192/bjo.2022.38">exacerbate the psychological symptoms of long COVID</a>, such as depression and anxiety. Medical gaslighting isn’t new. It has been documented by patients with other chronic conditions, such as <a href="https://doi.org/10.5772/intechopen.107936">myalgic encephalomyelitis or chronic fatigue syndrome</a>. And while this is common for patients with <a href="https://doi.org/10.1001/amajethics.2021.512">non-visible illnesses</a>, medical gaslighting is more commonly experienced by <a href="https://doi.org/10.1111/1467-9566.13367">women and racialized people</a>. Long COVID patients also note gender biases, as women with prolonged symptoms feel they are not believed. This is particularly worrisome, as studies have found that <a href="https://doi.org/10.1001/jama.2020.17709">women are disproportionately more likely to experience long COVID</a>. <h2>Where do we go from here?</h2> While long COVID information is constantly shifting, it’s clear that patients face many barriers, the first of which is having their illness minimized or disregarded by others. To ensure that patients have access to compassionate care, we suggest: 1. Educating physicians on long COVID Because definitions of long COVID, and its presentation, vary widely, primary care physicians need support to recognize and acknowledge the condition. General practitioners (GPs) must also provide patients with information to help manage their symptoms. This requires actively listening to patients, documenting symptoms and <a href="https://doi.org/10.1136/bmj.m3489">paying close attention to symptoms that need further attention</a>. Training physicians on the full range of symptoms and referring patients to available supports would reduce stigma and assist physicians by reducing their need to gather information themselves. 2. Raise awareness about long COVID To increase awareness of long COVID and reduce stigma, public health and community-based organizations must work collaboratively. This may include a public awareness and information campaign about long COVID symptoms, and making support available. Doing so has the potential to foster community support for patients and improve the mental health of patients and their caregivers. 3. Ensure information is accessible In many health systems, GPs are <a href="https://doi.org/10.1186/s12913-019-4419-0">gatekeepers to specialists</a> and are considered trusted information sources. However, without established diagnostic guidelines, patients are left to <a href="https://doi.org/10.2196/37984">self-advocate</a> and prove their condition exists. Because of negative encounters with health-care professionals, patients turn to social media platforms, including long COVID <a href="https://doi.org/10.7861%2Fclinmed.2020-0962">online communities</a> on Facebook. While these platforms allow patients to validate experiences and discuss management strategies, patients should not rely only on social media given the <a href="https://doi.org/10.3389/fpubh.2022.937100">potential for misinformation</a>. As a result, it is crucial to ensure information about long COVID is multi-lingual and available in a wide range of formats such as videos, online media and physical printouts. The <a href="https://science.gc.ca/site/science/en/office-chief-science-advisor/initiatives-covid-19/post-covid-19-condition-canada-what-we-know-what-we-dont-know-and-framework-action">recent recommendations of the Chief Science Advisor of Canada</a> to establish diagnostic criteria, care pathways and a research framework for long COVID are a positive development, but we know patients need support now. Improving long COVID education and awareness won’t resolve all of the issues faced by patients, but they’re foundational to compassionate and evidence-based care.<img style="border: none !important; box-shadow: none !important; margin: 0 !important; max-height: 1px !important; max-width: 1px !important; min-height: 1px !important; min-width: 1px !important; opacity: 0 !important; outline: none !important; padding: 0 !important;" src="https://counter.theconversation.com/content/203744/count.gif?distributor=republish-lightbox-basic" alt="The Conversation" width="1" height="1" /> <a href="https://theconversation.com/profiles/simran-purewal-1405366">Simran Purewal</a>, Research Associate, Health Sciences, <a href="https://theconversation.com/institutions/simon-fraser-university-1282">Simon Fraser University</a>; <a href="https://theconversation.com/profiles/kaylee-byers-766226">Kaylee Byers</a>, Regional Deputy Director, BC Node of the Canadian Wildlife Health Cooperative; Senior Scientist, Pacific Institute on Pathogens, Pandemics and Society, <a href="https://theconversation.com/institutions/simon-fraser-university-1282">Simon Fraser University</a>; <a href="https://theconversation.com/profiles/kayli-jamieson-1431392">Kayli Jamieson</a>, Master's Student in Communication, Research Assistant for Pacific Institute on Pathogens, Pandemics and Society, <a href="https://theconversation.com/institutions/simon-fraser-university-1282">Simon Fraser University</a>, and <a href="https://theconversation.com/profiles/neda-zolfaghari-1431577">Neda Zolfaghari</a>, Project Coordinator, Pacific Institute on Pathogens, Pandemics and Society, and the Pandemics & Borders Project, <a href="https://theconversation.com/institutions/simon-fraser-university-1282">Simon Fraser University</a> Image credits: Getty Images This article is republished from <a href="https://theconversation.com">The Conversation</a> under a Creative Commons license. Read the <a href="https://theconversation.com/people-with-long-covid-continue-to-experience-medical-gaslighting-more-than-3-years-into-the-pandemic-203744">original article</a>.

Caring

Must-have food experiences when in Rome

There are only two reasons people go to Rome – for the sights such as the Trevi Fountain, the Colosseum, St Peter’s Basilica. The second, people will tell you, is the culture. But that’s a lie. Don’t believe them. They’re really just there for the food. Not that we’re judging, we’re just pointing out the obvious. And it is obvious, because Rome’s food scene is wonderful. To help you do Rome like a foodie, here are four absolutely essential things to do when you’re there. Eating tours Got some time to spare and a stomach that needs serious filling? Go on one of Rome’s many eating tours. There are loads to choose from so do your research about which one is best for you, then eat your way around the city. TOP TIP: If you go back a day or two later, it’ll be a different group or people and possibly a different tour guide, so no one will judge you for doing it all again. The Pasta Museum Got a love for carbs that is as high as the Tower of Pisa? Then you might want to visit the Pasta Museum – one of Rome’s more obscure tourist destinations. You can lean about all things pasta: its history, nutritional values, how it’s made. You can see pasta-making machines from different eras and pick up some, you guessed it – pasta – from the gift shop on your way out. WHERE: Piazza Scanderbeg 117 (not far from the Trevi Fountain) Mozarella madness Perfect for when you want a light meal, mozzarella bars will serve you out-of-this-world cheese with salad, smoked salmon or prosciutto. Treat yourself and add a glass of wine for the ultimate indulgence. Gelato everywhere If you don’t know the nutritional benefits of gelato, let us give you a refresher: it’s delicious. When you’re in Rome, you have to eat as much gelato as you can so you can rave about it to your friends and family when you get home. Try to avoid the tourist traps that charge through the nose – do your research and find out where the locals go for their gelato. Related links: <a href="../travel/travel-club/2015/03/paris-on-any-budget/" target="_blank" rel="noopener">Do Paris on any budget</a> <a href="../travel/travel-club/2015/01/best-wine-regions-for-gourmet-holiday/" target="_blank" rel="noopener">The best wine regions around the world for gourmet getaways</a> <a href="../travel/travel-club/2015/03/strange-beaches/" target="_blank" rel="noopener">8 of the strangest beaches in the world</a> Image credit: Shutterstock

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Must-have food experiences when in Rome

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