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Doctor defies terminal cancer diagnosis with breakthrough therapy

Dr Tina Willits was told she had just 24 months to live after being diagnosed with breast cancer, but against all odds she is now in remission. The mother-of-five's disease was "everywhere" with three golf-ball sized tumors in her breast and cancerous masses in her ribs, spine, lymph nodes and legs. "When my cancer was detected, it was pretty past a stage four diagnosis and I was too far gone for a mastectomy," she told the Daily Mail. She was placed on end-of-care chemotherapy and was told to "enjoy the time you have left". That was nearly three years ago. Now, the 53-year-old US mum is in remission thanks to a breakthrough cancer therapy that uses cold gases and the body's own cells to freeze and fight tumors. "I was devastated, but I was also like no, I was not ok with that diagnosis. I felt I had to do something," she recalled. "I was just really determined that I did not want to live my life with this cancer, even if they could stop it progressing, I didn't want that, I just wanted it gone." Dr Willits' cancer was HER2 positive, which account for about 20 percent of all diagnoses, and she had no family history of the disease. She underwent four rounds of chemotherapy before she sought alternative treatment at the Williams Cancer Institute. The institute sent her a list of supplements to begin taking and advised her to avoid sugar, which some researchers believe can help reduce inflammation and slow down the growth of cancer cells. She then underwent a treatment regimen that is not yet fully approved in the US, with cryoablation as the first step. Cryoablation is the process where doctors insert a small metal probe through the skin and into the tumor, extremely cold gasses are then released directly into the mass to kill its cells. In the second phase of her treatment, she received immunotherapy, where eight drugs were administered directly into her tumor, which doctors say can prompt the immune system to recognise cancer cells as a threat and trigger an immune response. Dr Willits told the Dailymail that she was shocked when she got the results from her six-week scan after the treatment. "There were none, no tumors. They were just completely gone," she said. "All the metastasis (cancerous growths outside the breast) had completely healed, and the cancer in my lymph nodes was no longer there." After the treatment she had another four rounds of chemotherapy, and still undergoes PET scans every six months. So far the cancer has not been detected in her body since the treatment, and will need to wait for five years of clear results before she can be declared cancer free. Dr Williams, the founder of the institute, developed the treatment regimen over several years, and believes it could offer a better way to treat cancer. He is currently running a trial of the treatment in hard-to-treat prostate cancer patients, although he did not reveal how long the study had been going on for or how many rounds of treatment the patients had received. Since going into remission Dr Willits has travelled to Honduras and Colorado, tried mountain biking and is training for a 5k marathon for breast cancer awareness. "I wouldn't appreciate life like this if I had not gone through the cancer," she said. "No one on their deathbed says I wish I had worked more or got that job, you all say I wish I had spent more time with my parents and kids or gone to that place I had always wanted to." Images: DailyMail

Caring

Terminally ill 23-year-old's final request

Liam Bulman was working a shift at The Illawarra Hotel in Wollongong last month when he asked to leave early, as he felt unwell. The following week he found himself in "crippling pain" and was rushed to hospital by his friend. After days of intensive testing, the 23-year-old was diagnosed with stage-four High Grade Neuroendocrine Carcinoma — a "rare" cancer that had spread. Now, his family and friends are doing everything they can to raise funds so he can have a "chance to make memories" through ticking off items on his bucket list in this "scary, sad and unknown" time. "He's smart and kind. He's been raised to work hard and contribute to people's lives, and our community. He's incredible," Liam's colleagues from The Illawarra Hotel wrote on the<a href="https://www.gofundme.com/f/youre-friendly-local-bartender-bulmans-bucket-list" target="_blank" rel="noopener"> GoFundMe</a> page. So far they have raised over $28,000 of their $50,000 goal, with most of the money raised going towards his medical costs, medical trial attendance and palliative care, and any remaining money will help fund his bucket list. His bucket list includes activities like attending the F1 in Melbourne, going for a joyride in a helicopter, learning to surf and taking a family photo session. Liam's mum, Emily Bulman, revealed his cancer is "incurable" and he has since started a bout of chemotherapy in hope it will "buy him more time" as the cancer has spread to his lymph nodes and lower digestive tract. "This will assist us to aim for longevity, quality of life, a chance to make memories, and receive the care and comfort that suits Liam best," she said on the fundraising page. "Anything we can raise to help take the burden off Liam, we would be incredibly grateful for." Images: GoFundMe/Facebook

Caring

Pioneering TV presenter reveals terminal diagnosis live on air

Popular New Zealand TV presenter Joanna Paul-Robie has revealed she is dying of cancer. The pioneering presenter, known for her work on TV3, shared the heartbreaking news during an interview with Radio New Zealand on Friday morning. Paul-Robie, who has been a beloved figure in the broadcasting world, made the announcement while accepting the Icon Award for her contributions to the creative industries. “I was so touched because this award means so much to me, coming from Tauranga Moana,” she said. “But more importantly, because I am, unfortunately, dying – I have terminal cancer – and really to have this award before one posthumously gets it is an even better break. I can’t tell you the lightness, the brightness, the feeling of aroha inside me last night.” Reflecting on her career, Paul-Robie recounted her experiences as one of the few Māori individuals on New Zealand's television screens. “The newsroom was really … it was being run by mostly a pair of middle-class, middle-aged white men who had the audacity and the balls to say ‘If it bleeds, it leads’ but these guys you know they had never been in a Māori world,” she remarked. Starting her career at Radio New Zealand, Paul-Robie later became a newsreader for TV3 and played a significant role in establishing Māori Television in 2004, serving as a program and production manager. During a 2011 interview with NZOnScreen, she spoke about the challenges and triumphs of setting up the network. “There’s been a handful of people in the world who have built a television station and taken it to air,” she said. “There are only a handful of people in the world who can do that and even though it nearly broke me in half on the day that we launched, I thought ‘hell we did that’. I think it is difficult for someone like me with an A-type personality to think now you have done your big thing maybe you should take it easy now.” Paul-Robie's courage and dedication have left an indelible mark on New Zealand's broadcasting landscape. Her announcement has been met with an outpouring of support and love from colleagues, fans and the wider community, who admire her strength and resilience in the face of such a personal battle. Images: NZOnScreen

Caring

Do you have a mental illness? Why some people answer ‘yes’, even if they haven’t been diagnosed

<div class="theconversation-article-body"> <a href="https://theconversation.com/profiles/jesse-tse-1429151">Jesse Tse</a>, <a href="https://theconversation.com/institutions/the-university-of-melbourne-722">The University of Melbourne</a> and <a href="https://theconversation.com/profiles/nick-haslam-10182">Nick Haslam</a>, <a href="https://theconversation.com/institutions/the-university-of-melbourne-722">The University of Melbourne</a> Mental illnesses such as depression and anxiety disorders have become more prevalent, especially among <a href="https://www.aihw.gov.au/mental-health/overview/prevalence-and-impact-of-mental-illness#changeovertime">young people</a>. Demand for treatment is surging and prescriptions of some <a href="https://pubmed.ncbi.nlm.nih.gov/35176912/">psychiatric medications</a> have climbed. These upswinging prevalence trends are paralleled by rising public attention to mental illness. Mental health messages saturate traditional and social media. Organisations and governments are developing awareness, prevention and treatment initiatives with growing urgency. The mounting cultural focus on mental health has obvious benefits. It increases awareness, reduces stigma and promotes help-seeking. However, it may also have costs. Critics worry <a href="https://www.bacp.co.uk/bacp-journals/therapy-today/2023/april-2023/the-big-issue/">social media</a> sites are incubating mental illness and that ordinary unhappiness is being pathologised by the overuse of diagnostic concepts and “<a href="https://www.bustle.com/wellness/is-therapy-speak-making-us-selfish">therapy speak</a>”. British psychologist <a href="https://www.psych.ox.ac.uk/team/lucy-foulkes">Lucy Foulkes</a> argues the trends for rising attention and prevalence are linked. Her “<a href="https://www.sciencedirect.com/science/article/pii/S0732118X2300003X">prevalence inflation hypothesis</a>” proposes that increasing awareness of mental illness may lead some people to diagnose themselves inaccurately when they are experiencing relatively mild or transient problems. Foulkes’ hypothesis implies that some people develop overly broad concepts of mental illness. Our research supports this view. In a new study, <a href="https://www.sciencedirect.com/science/article/pii/S2666560324000318?via%3Dihub">we show</a> that concepts of mental illness have broadened in recent years – a phenomenon we call “<a href="https://www.tandfonline.com/doi/full/10.1080/1047840X.2016.1082418">concept creep</a>” – and that <a href="https://bmcpsychiatry.biomedcentral.com/articles/10.1186/s12888-023-05152-6">people differ</a> in the breadth of their concepts of mental illness. <h2>Why do people self-diagnose mental illnesses?</h2> In our new <a href="https://doi.org/10.1016/j.ssmmh.2024.100326">study</a>, we examined whether people with broad concepts of mental illness are, in fact, more likely to self-diagnose. We defined self-diagnosis as a person’s belief they have an illness, whether or not they have received the diagnosis from a professional. We assessed people as having a “broad concept of mental illness” if they judged a wide variety of experiences and behaviours to be disorders, including relatively mild conditions. We asked a nationally representative sample of 474 American adults if they believed they had a mental disorder and if they had received a diagnosis from a health professional. We also asked about other possible contributing factors and demographics. Mental illness was common in our sample: 42% reported they had a current self-diagnosed condition, a majority of whom had received it from a health professional. Unsurprisingly, the strongest predictor of reporting a diagnosis was experiencing relatively severe distress. The second most important factor after distress was having a broad concept of mental illness. When their levels of distress were the same, people with broad concepts were substantially more likely to report a current diagnosis. The graph below illustrates this effect. It divides the sample by levels of distress and shows the proportion of people at each level who report a current diagnosis. People with broad concepts of mental illness (the highest quarter of the sample) are represented by the dark blue line. People with narrow concepts of mental illness (the lowest quarter of the sample) are represented by the light blue line. People with broad concepts were much more likely to report having a mental illness, especially when their distress was relatively high. People with greater mental health literacy and less stigmatising attitudes were also more likely to report a diagnosis. Two interesting further findings emerged from our study. People who self-diagnosed but had not received a professional diagnosis tended to have broader illness concepts than those who had. In addition, younger and politically progressive people were more likely to report a diagnosis, consistent with some <a href="https://www.sciencedirect.com/science/article/pii/S2666560321000438">previous research</a>, and held broader concepts of mental illness. Their tendency to hold these more expansive concepts partially explained their higher rates of diagnosis. <h2>Why does it matter?</h2> Our findings support the idea that expansive concepts of mental illness promote self-diagnosis and may thereby increase the apparent prevalence of mental ill health. People who have a lower threshold for defining distress as a disorder are more likely to identify themselves as having a mental illness. Our findings do not directly show that people with broad concepts over-diagnose or those with narrow concepts under-diagnose. Nor do they prove that having broad concepts causes self-diagnosis or results in actual increases in mental illness. Nevertheless, the findings raise important concerns. First, they suggest that rising mental health awareness may <a href="https://www.newscientist.com/article/mg25934573-900-why-being-more-open-about-mental-health-could-be-making-us-feel-worse/">come at a cost</a>. In addition to boosting mental health literacy it may increase the likelihood of people incorrectly identifying their problems as pathologies. Inappropriate self-diagnosis can have adverse effects. Diagnostic labels may become identity-defining and self-limiting, as people come to believe their problems are enduring, <a href="https://www.sciencedirect.com/science/article/abs/pii/S0165032724002489?via%3Dihub">hard-to-control</a> aspects of who they are. Second, unwarranted self-diagnosis may lead people experiencing relatively mild levels of distress to seek help that is unnecessary, inappropriate and ineffective. Recent <a href="https://pubmed.ncbi.nlm.nih.gov/37844607/">Australian research</a> found people with relatively mild distress who received psychotherapy worsened more often than they improved. Third, these effects may be particularly problematic for young people. They are most liable to hold broad concepts of mental illness, in part due to <a href="https://www.sciencedirect.com/science/article/pii/S0010440X22000682?via%3Dihub">social media</a> <a href="https://www.tandfonline.com/doi/full/10.1080/10810730.2023.2235563">consumption</a>, and they experience mental ill health at relatively high and rising rates. Whether expansive concepts of illness play a role in the youth mental health crisis remains to be seen. Ongoing cultural shifts are fostering increasingly expansive definitions of mental illness. These shifts are likely to have mixed blessings. By normalising mental illness they may help to remove its stigma. However, by pathologising some forms of everyday distress, they may have an unintended downside. As we wrestle with the mental health crisis, it is crucial we find ways to increase awareness of mental ill health without inadvertently inflating it.<img style="border: none !important; box-shadow: none !important; margin: 0 !important; max-height: 1px !important; max-width: 1px !important; min-height: 1px !important; min-width: 1px !important; opacity: 0 !important; outline: none !important; padding: 0 !important;" src="https://counter.theconversation.com/content/231687/count.gif?distributor=republish-lightbox-basic" alt="The Conversation" width="1" height="1" /> <a href="https://theconversation.com/profiles/jesse-tse-1429151">Jesse Tse</a>, PhD Candidate at Melbourne School of Psychological Sciences, <a href="https://theconversation.com/institutions/the-university-of-melbourne-722">The University of Melbourne</a> and <a href="https://theconversation.com/profiles/nick-haslam-10182">Nick Haslam</a>, Professor of Psychology, <a href="https://theconversation.com/institutions/the-university-of-melbourne-722">The University of Melbourne</a> Image credits: Shutterstock This article is republished from <a href="https://theconversation.com">The Conversation</a> under a Creative Commons license. Read the <a href="https://theconversation.com/do-you-have-a-mental-illness-why-some-people-answer-yes-even-if-they-havent-been-diagnosed-231687">original article</a>. </div>

Mind

"I am the Bicycle Bandit": Terminally-ill ex-cop confesses to 20-year-old mystery

In a startling twist to a 20-year-old mystery, 73-year-old Kym Allen Parsons, a terminally-ill former police officer and firefighter, has admitted to being the notorious "Bicycle Bandit" who terrorised South Australian banks and residents for a decade. Parsons' confession came just days after receiving approval for voluntary assisted dying (VAD) and being provided with a VAD kit by SA Health. Parsons, who has stage 4 cancer and who had previously denied the charges, changed his plea to guilty during a Supreme Court session on Monday, ending years of speculation and investigation. His sudden admission of guilt follows a plea bargain brokered by the Office of the Director of Public Prosecutions and his counsel after the VAD approval was granted. In a tearful apology read to the court, Parsons expressed deep remorse for his actions, acknowledging that his behaviour was both irrational and without excuse. "I have no excuse for my behaviour," he told the court. "My reasoning was illogical and irrational over that time, and over the past 10 years I have tried to rehabilitate, seek help and forgiveness and demonstrate my shame in distressing actions. "I was fearful of confessing my past and destroying their [my wife and family's] love and trust in the person they knew. "I do not expect your forgiveness, and I humbly ask you accept my sincerest apology and deepest remorse." Despite Parsons' request for bail ahead of his sentencing, Justice Sandi McDonald deemed his crimes too severe for continued freedom and ordered his immediate custody. His access to the VAD kit while in custody remains uncertain. The courtroom was filled with Parsons' victims and their supporters, many of whom had worked at the banks he robbed. Some were victimised multiple times. One victim described the lasting impact of being robbed at gunpoint, detailing the immense trauma and the development of an auto-immune disease likely induced by stress. Other victims recounted struggles with PTSD, anxiety, depression, and ongoing trust issues. Parsons had been scheduled for trial in February on charges of armed robbery, attempted armed robbery, and firearms offences, with prosecutors alleging he stole over $250,000 from 11 banks between 2004 and 2014. DNA evidence was cited as a link to the crimes. His guilty plea and impending death are expected to ignite a legal battle over his $2.4 million estate, involving prosecutors, his heirs, and his victims. Previously, Parsons had been granted home detention due to his terminal stage 4 cancer diagnosis, after significant weight loss while in custody. His defence lawyer, James Marcus, stated that Parsons pleaded guilty to provide closure to the victims and their families. Parsons' sentencing is scheduled for June 28, marking the conclusion of a complex and emotional case that has gripped the state for years. Images: ABC News / SA Police

Legal

3 common travel illnesses (and how to avoid them)

Nobody wants to fall sick when they’re on holidays but it happens and is actually quite common. Not every travel illness is foreseeable, but the most prevalent ones usually can be managed if you’re prepared and know what to look out for. Here are three of the most common illnesses travellers experience and what you can do to avoid them. Traveller’s diarrhoea It may be an unpleasant topic of conversation, but as diarrhoeais the most common travel sickness, it’s important to be prepared. It is estimated diarrhoeais experienced by almost half of travellers at some point on their holiday, but mainly by those visiting developing countries. It’s contracted by eating or drinking contaminated food and water and in severe cases can last for days. How to avoid it: Stick to bottled or purified water, freshly cooked meals and fruits and vegetables you can peel yourself. Talk to your doctor for antibiotics you can take in case you are struck with traveller’s diarrhoea. Motion sickness Whether it’s by boat, plane, or car, many travellers experience motion sickness. This occurs when your eyes see motion but your body doesn’t register it, leading to a conflict of the senses. It often results in nausea, vomiting, headaches, and sweating. How to avoid it: If flying, try to sit near the wings of plane. If cruising, get an outside cabin in the middle of ship, and if in a car, sit up front. Don’t play with your devices, as looking at a small screens often exacerbates the problem; instead try to look far to the horizon. Have a light meal before travelling and avoid spicy, greasy or rich foods. You can talk to your doctor about over-the-counter medication that can help motion sickness as well. Bug bites There are all sorts of infectious diseases like malaria, dengue, chikungunya and yellow fever you can pick up from bug bites, especially in developing nations. While you should always talk to your doctor about the types of vaccines you need to take for your travel destination, it is always advisable to protect against insect bites. How to avoid it: Apply insect repellent, wear long sleeves and pants where possible and try to avoid outside activity around dust and dawn when mosquitos are active. If sleeping outdoors, it is advisable to use curtain nettings. Image credits: Getty Images

Travel Tips

Terminal lucidity: why do loved ones with dementia sometimes ‘come back’ before death?

<div class="theconversation-article-body"><a href="https://theconversation.com/profiles/yen-ying-lim-355185">Yen Ying Lim</a>, <a href="https://theconversation.com/institutions/monash-university-1065">Monash University</a> and <a href="https://theconversation.com/profiles/diny-thomson-1519736">Diny Thomson</a>, <a href="https://theconversation.com/institutions/monash-university-1065">Monash University</a> Dementia is often described as “the long goodbye”. Although the person is still alive, dementia slowly and irreversibly chips away at their memories and the qualities that make someone “them”. Dementia eventually takes away the person’s ability to communicate, eat and drink on their own, understand where they are, and recognise family members. Since as early as the <a href="https://pubmed.ncbi.nlm.nih.gov/21764150/">19th century</a>, stories from loved ones, caregivers and health-care workers have described some people with dementia suddenly becoming lucid. They have described the person engaging in meaningful conversation, sharing memories that were assumed to have been lost, making jokes, and even requesting meals. It is estimated <a href="https://pubmed.ncbi.nlm.nih.gov/20010032/">43% of people</a> who experience this brief lucidity die within 24 hours, and 84% within a week. Why does this happen? <h2>Terminal lucidity or paradoxical lucidity?</h2> In 2009, researchers Michael Nahm and Bruce Greyson coined the term “<a href="https://pubmed.ncbi.nlm.nih.gov/21764150/">terminal lucidity</a>”, since these lucid episodes often occurred shortly before death. But not all lucid episodes indicate death is imminent. <a href="https://alz-journals.onlinelibrary.wiley.com/doi/10.1002/alz.13667">One study</a> found many people with advanced dementia will show brief glimmers of their old selves more than six months before death. Lucidity has also been <a href="https://www.sciencedirect.com/science/article/pii/S0167494311001865?via%3Dihub">reported</a> in other conditions that affect the brain or thinking skills, such as meningitis, schizophrenia, and in people with brain tumours or who have sustained a brain injury. Moments of lucidity that do not necessarily indicate death are sometimes called <a href="https://alz-journals.onlinelibrary.wiley.com/doi/10.1002/alz.12579">paradoxical lucidity</a>. It is considered paradoxical as it defies the expected course of neurodegenerative diseases such as dementia. But it’s important to note these episodes of lucidity are temporary and sadly do not represent a reversal of neurodegenerative disease. <h2>Why does terminal lucidity happen?</h2> Scientists have struggled to explain why terminal lucidity happens. Some episodes of lucidity have been reported to occur in the presence of loved ones. Others have reported that <a href="https://psywb.springeropen.com/articles/10.1186/s13612-014-0024-5">music can sometimes improve lucidity</a>. But many episodes of lucidity do not have a distinct trigger. <a href="https://www.sciencedirect.com/science/article/pii/S0300957223002162">A research team from New York University</a> speculated that changes in brain activity before death may cause terminal lucidity. But this doesn’t fully explain why people suddenly recover abilities that were assumed to be lost. Paradoxical and terminal lucidity are also very difficult to study. Not everyone with advanced dementia will experience episodes of lucidity before death. Lucid episodes are also unpredictable and typically occur without a particular trigger. And as terminal lucidity can be a joyous time for those who witness the episode, it would be unethical for scientists to use that time to conduct their research. At the time of death, it’s also difficult for scientists to interview caregivers about any lucid moments that may have occurred. Explanations for terminal lucidity extend beyond science. These moments of mental clarity may be a way for the dying person to say final goodbyes, gain closure before death, and reconnect with family and friends. Some believe episodes of terminal lucidity are representative of the person connecting with an afterlife. <h2>Why is it important to know about terminal lucidity?</h2> People can have a variety of reactions to seeing terminal lucidity in a person with advanced dementia. While some will experience it as being peaceful and bittersweet, others may find it deeply confusing and upsetting. There may also be an urge to modify care plans and request lifesaving measures for the dying person. Being aware of terminal lucidity can help loved ones understand it is part of the dying process, acknowledge the person with dementia will not recover, and allow them to make the most of the time they have with the lucid person. For those who witness it, terminal lucidity can be a final, precious opportunity to reconnect with the person that existed before dementia took hold and the “long goodbye” began.<img style="border: none !important; box-shadow: none !important; margin: 0 !important; max-height: 1px !important; max-width: 1px !important; min-height: 1px !important; min-width: 1px !important; opacity: 0 !important; outline: none !important; padding: 0 !important;" src="https://counter.theconversation.com/content/202342/count.gif?distributor=republish-lightbox-basic" alt="The Conversation" width="1" height="1" /> <a href="https://theconversation.com/profiles/yen-ying-lim-355185">Yen Ying Lim</a>, Associate Professor, Turner Institute for Brain and Mental Health, <a href="https://theconversation.com/institutions/monash-university-1065">Monash University</a> and <a href="https://theconversation.com/profiles/diny-thomson-1519736">Diny Thomson</a>, PhD (Clinical Neuropsychology) Candidate and Provisional Psychologist, <a href="https://theconversation.com/institutions/monash-university-1065">Monash University</a> Image credits: Getty Images This article is republished from <a href="https://theconversation.com">The Conversation</a> under a Creative Commons license. Read the <a href="https://theconversation.com/terminal-lucidity-why-do-loved-ones-with-dementia-sometimes-come-back-before-death-202342">original article</a>. </div>

Mind

Families including someone with mental illness can experience deep despair. They need support

<div class="theconversation-article-body"> <a href="https://theconversation.com/profiles/amanda-cole-1484502">Amanda Cole</a>, <a href="https://theconversation.com/institutions/edith-cowan-university-720">Edith Cowan University</a> In the aftermath of the <a href="https://theconversation.com/bondi-attacker-had-mental-health-issues-but-most-people-with-mental-illness-arent-violent-227868">tragic Bondi knife attack</a>, Joel Cauchi’s parents have <a href="https://www.theguardian.com/australia-news/video/2024/apr/15/bondi-junction-stabbings-joel-cauchis-father-extremely-sorry-for-victims-video">spoken</a> about their son’s long history of mental illness, having been diagnosed with schizophrenia at age 17. They said they were “devastated and horrified” by their son’s actions. “To you he’s a monster,” said his father. “But to me he was a very sick boy.” Globally, one out of every eight people <a href="https://www.who.int/news-room/fact-sheets/detail/mental-disorders">report a mental illness</a>. In Australia, <a href="https://www.aihw.gov.au/reports/mental-health-services/mental-health">one in five people experience a mental illness</a> in their lifetime. Mental illness and distress affects not only the person living with the condition, but <a href="https://www.aihw.gov.au/reports/australias-health/chronic-conditions-and-multimorbidity">family members and communities</a>. As the prevalence of mental health problems grows, the flow-on effect to family members, including caregivers, and the impact on families as a unit, is also rising. While every family is different, the words of the Cauchis draw attention to how families can experience distress, stress, fear, powerlessness, and still love, despite the challenges and trauma. How can they help a loved one? And who can they turn to for support? <h2>The role of caregivers</h2> Informal caregivers help others <a href="https://www.aihw.gov.au/reports/australias-welfare/informal-carers">within the context of an existing relationship</a>, such as a family member. The care they provide goes beyond the usual expectations or demands of such relationships. Around <a href="https://www.aihw.gov.au/reports/australias-welfare/informal-carers">2.7 million Australians</a> provide informal care. For almost a third of these the person’s primary medical diagnosis is psychological or psychiatric. It has <a href="https://journals.sagepub.com/doi/10.1177/1074840708323598">long been acknowledged</a> that those supporting a family member with ongoing mental illness need support themselves. In the 1980s, interest grew in caregiving dynamics within families of people grappling with mental health issues. Subsequent research recognised <a href="http://www.aihw.gov.au/chronic-diseases/">chronic health conditions</a> not only affect the quality of life and wellbeing of the people experiencing them, but also impose burdens that reverberate within relationships, caregiving roles, and family dynamics over time. Past studies have shown families of those diagnosed with chronic mental illness are increasingly forced to <a href="https://pubmed.ncbi.nlm.nih.gov/24943714/">manage their own depression</a>, experience elevated levels of <a href="https://pubmed.ncbi.nlm.nih.gov/23692348/">emotional stress</a>, negative states of mind and <a href="https://pubmed.ncbi.nlm.nih.gov/21165597/">decreased overall mental health</a>. Conditions such as depression, anxiety disorders, bipolar disorder, and schizophrenia can severely impact daily functioning, relationships, and <a href="https://pubmed.ncbi.nlm.nih.gov/36875411/">overall quality of life</a>. Living with mental illness is often accompanied by a myriad of challenges. From stigma and discrimination to difficulty accessing adequate health care and support services. Patients and their families navigate a complex and often isolating journey. <h2>The family is a system</h2> The concept of <a href="http://apps.who.int/iris/bitstream/10665/40336/1/16937_eng.pdf">family health</a> acknowledges the physical and psychological wellbeing of a person is significantly affected by the family. Amid these challenges, <a href="https://www.frontiersin.org/journals/psychology/articles/10.3389/fpsyg.2024.1330720/full">family support</a> emerges as a beacon of hope. Research consistently demonstrates strong familial relationships and support systems play a pivotal role in mitigating the adverse effects of mental illness. Families provide emotional support, practical assistance, and a sense of belonging that are vital for people struggling with mental illness. My recent <a href="https://www.collegianjournal.com/article/S1322-7696(24)00004-0/fulltext">research</a> highlights the profound impact of mental illness on family dynamics, emphasising the resilience and endurance shown by participants. Families struggling with mental illness often experience heightened emotional fluctuations, with extreme highs and lows. The enduring nature of family caregiving entails both stress and adaptation over an extended period. Stress associated with caregiving and the demands on personal resources and coping mechanisms builds and builds. Yet families I’ve <a href="https://www.collegianjournal.com/article/S1322-7696(24)00004-0/fulltext">interviewed</a> find ways to live “a good life”. They prepare for the peaks and troughs, and show endurance and persistence. They make space for mental illness in their daily lives, describing how it spurs adaptation, acceptance and inner strength within the family unit. When treating a person with mental illness, health practitioners need to consider the entire family’s needs and engage with family members. By fostering open and early dialogue and providing comprehensive support, health-care professionals can empower families to navigate the complexities of mental illness while fostering resilience and hope for the future. Family members <a href="https://www.collegianjournal.com/article/S1322-7696(24)00004-0/fulltext">express stories</a> of an inner struggle, isolation and exhaustion. <h2>Shifting the focus</h2> There is a pressing need for a shift in research priorities, from illness-centered perspectives to a <a href="https://shop.elsevier.com/books/child-youth-and-family-health-strengthening-communities/barnes/978-0-7295-4155-8">strengths-based focus</a> when considering families “managing” mental illness. There is transformative potential in harnessing strengths to respond to challenges posed by mental illnesses, while also <a href="https://www.collegianjournal.com/article/S1322-7696(24)00004-0/fulltext">supporting family members</a>. For people facing mental health challenges, having <a href="https://www.sane.org/information-and-resources/facts-and-guides/families-friends-carers">loved ones who listen without judgement</a> and offer empathy can alleviate feelings of despair. Beyond emotional support, families often serve as crucial caregivers, assisting with <a href="https://www.blackdoginstitute.org.au/emergency-help/helping-someone-else/">daily tasks, medication management and navigating the health-care system</a>. As the Cauchi family so painfully articulated, providing support for a family member with mental illness is intensely challenging. Research <a href="https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4804270/">shows</a> caregiver burnout, financial strain and strained relationships are common. Health-care professionals should prioritise support for family members at an early stage. In Australia, there are various support options available for families living with mental illness. <a href="https://www.carergateway.gov.au/?utm_source=google&utm_medium=paid-search&utm_campaign=10626744435&utm_adgroup=102994881737&utm_term=carer%20gateway%20wa&gad_source=1&gclid=EAIaIQobChMIt8T6pJzIhQMVjAyDAx2KiQl1EAAYASAAEgLj-fD_BwE">Carer Gateway</a> provides information, support and access to services. <a href="https://www.headspace.com/?utm_source=google&utm_medium=search&utm_campaign=HS_Headspace_Brand-Exact_Search_AU-INT_Google_NA&utm_content=&utm_term=headspace&gad_source=1&gclid=EAIaIQobChMI4uKKvpzIhQMVFheDAx1bZgk8EAAYASAAEgLy6vD_BwE">Headspace</a> offers mental health services and supports to young people and their families. Beyond these national services, GPs, nurses, nurse practitioners and local community health centres are key to early conversations. Mental health clinics and hospitals often target family involvement in treatment plans. While Australia has made strides in recognising the importance of family support, challenges persist. Access to services can vary based on geographic location and demand, leaving some families under-served or facing long wait times. And the level of funding and resources allocated to family-oriented mental health support often does not align with the demand or complexity of need. In the realm of mental illness, family support serves as a lifeline for people navigating the complexities of their conditions. <hr /> If this article has raised issues for you, or if you’re concerned about someone you know, call <a href="https://www.lifeline.org.au/">Lifeline</a> on 13 11 14.<img style="border: none !important; box-shadow: none !important; margin: 0 !important; max-height: 1px !important; max-width: 1px !important; min-height: 1px !important; min-width: 1px !important; opacity: 0 !important; outline: none !important; padding: 0 !important;" src="https://counter.theconversation.com/content/228007/count.gif?distributor=republish-lightbox-basic" alt="The Conversation" width="1" height="1" /> <a href="https://theconversation.com/profiles/amanda-cole-1484502">Amanda Cole</a>, Lead, Mental Health, <a href="https://theconversation.com/institutions/edith-cowan-university-720">Edith Cowan University</a> Image credits: Getty Images This article is republished from <a href="https://theconversation.com">The Conversation</a> under a Creative Commons license. Read the <a href="https://theconversation.com/families-including-someone-with-mental-illness-can-experience-deep-despair-they-need-support-228007">original article</a>. </div>

Caring

"I'm lowkey dying": Brave young woman with terminal illness shares her final wish

Samantha Bulloch was given three years to live after she was diagnosed with gut-wrenching stage four bowel cancer at the young age of 28. A year later, Bulloch has shared a heartfelt plea on social media in hopes of meeting her idol- pop star Taylor Swift. The Swiftie has scored a ticket to Taylor's final show in Sydney on the 26th of February, but she’s calling on “anyone to hook a sister up” so she can meet-and-greet the singer backstage. “I’m low key dying and honestly this would just make my year,” she said in a video shared to TikTok. “I’m going out on a limb here so I’m just shooting my shot and we’re going to see what happens. “If anyone has any connections... I would love you forever.” Bulloch has been a fan of the megastar since she was 15 years old. “Taylor means so much to me, and I’d love the opportunity to tell her just how much of an impact she’s made on my life,” she told 7Life. “I’ve loved her since I was 15, and her music has seen me through so many chapters in my life — including this one. “I love that her music transcends all kinds of walks of life, and so many of us connect with it so personally, despite the differences in our situations. “She has a real talent for making you feel less alone.I recently got a new tattoo of the lyric, ‘For the hope of it all’, from her song called August. “I adopted that lyric during my experience with cancer. I’m choosing to live for the hope of it all.” As she faces terminal cancer, Bulloch said that she is determined to live the rest of her life to the fullest. "I’m hoping and praying for many more years than what I’ve been given. But if not, I intend to try and maximise these few I’ve got left to the best of my ability," she said. “Thankfully I’ve always been quite a positive and hopeful person, and that hasn’t left me during this experience.” Bulloch was diagnosed with terminal cancer in 2023, after experiencing low iron levels, fatigue and blood in her stool. She is currently on a chemotherapy regime and an immunotherapy drug and added that she also hopes to tick off many of her bucket list destinations this year, including visiting UK, Paris, New York and Tasmania. “My doctor has said I can, providing the treatment I’m on now works," the hopeful 29-year-old said. “Thankfully treatment has been working so hopefully in a few months I’ll be able to do that." Images: Samantha Bulloch

Caring

Woman heartlessly steals terminally-ill man's pokies win after he collapsed

Thomas Purtill, 80, had “decided to go up and throw a few dollars in the pokies" at his local pub in Caboolture, Brisbane. To his surprise, the pensioner won $300. As the terminally-ill pensioner was about to collect his winnings, he collapsed during a medical episode and dropped his ticket. “I remember landing on the floor,” Purtill, who only has six months to live, told 7News. “I think I fell over before I got the ticket into the machine (to cash it in).” CCTV footage from the pub showed the alleged thief looking concerned as she rushed to call pub staff. When she returned, Purtill can be seen pointing to something by the machine, and this was when she noticed the ticket he had dropped. The woman then moved over to the machine and allegedly pocketed the pensioner's winnings. While Purtill received medical attention, the alleged thief escaped and used another machine to withdraw the cash. Now, the CCTV footage has been released to help police identify the mystery woman, as they urge anyone with information to come forward. The pensioner spend two days in hospital after the incident on November 27, and has since been diagnosed with terminal cancer. “I don’t want to die,” he said. “But I’m going to.” He was told he has between three to six months to live, and has since returned for treatment. When Purtill was asked what he thought of the alleged thief's actions he said: “I can’t really say on TV. It wouldn’t be allowed.” “If you’re that desperate … If someone came up to me and said, ‘You’ve had a win, can I have $10 to buy a loaf of bread, a bottle of milk for the kids?’, I would have given it to them.” He then went on to call her "weak", and urged anyone who might know her to “give her up”. Staff members have offered to reimburse Purtill for his stolen winnings. Images: 7News

Legal

Bec Judd's son taken to hospital with mystery illness

Bec Judd's seven-year-old son, Tom, has been hospitalised due to an undisclosed medical condition, as the concerned mother shared on her Instagram account. In the recent post, the 40-year-old WAG posted a heartwarming picture of Tom comfortably lying in a hospital bed. In the photo, Tom flashed a smile at the camera, clutching his teddy bear and savouring an ice cream treat. However, Bec did not reveal the specific reason for Tom's hospitalisation in her social media update. With a hopeful tone, Bec wrote, "Onwards and upwards, Tom," and expressed gratitude to Nurse Becky Bell for her care and support during this challenging time. Bec Judd, a mother of four, shares her children with her ex-AFL star husband, Chris Judd. Alongside her recent family concerns, Bec has also been actively involved in charitable endeavours. She disclosed her plans to contribute 25,000 meals to Food Bank Victoria, an organisation dedicated to addressing food insecurity. Bec's involvement extends beyond her vocal support, as she is using her design skills to create a unique spatula for fundraising purposes. The entirety of the proceeds from the spatula sales will be donated to Food Bank. In Bec's own words, each spatula sold translates into an impressive "25 meals on the table", with the ambitious goal of providing "250,000 extra meals by Christmas". She encouraged her substantial following to support the cause by considering the spatula as a unique Christmas gift option. Not only will buyers acquire an original Bec Judd creation, but they will also make a significant contribution to their community. This charitable campaign features other notable personalities, including New Zealand culinary expert Ben Shewry, radio and TV presenter Chrissie Swan, and Australian pastry chef Kirsten Tibballs. In addition to her philanthropic efforts, Bec Judd has been making appearances on the celebrity edition of The Amazing Race, where she teams up with her sister, Kate Twigley. During a recent interview on KIIS FM's Jase and Lauren show, Bec recounted some of the show's more challenging moments, including an encounter with elephant dung. "It was interesting; they really threw us into these challenges that were quite foul, like shovelling poo, and I was like, where are the gloves?" Bec shared. "You know, I worked at The Alfred Hospital; I have four kids, I've got a puppy. I'm used to vomit and poo and secretions, but we always had gloves and masks, so it was okay. But this is bare hands, and I was not happy about it." In a recent trailer for the Ten reality show, Bec also revealed her germophobic tendencies, adding a layer of intrigue to her adventures on The Amazing Race. Images: Instagram

Caring

F1 caller faces termination over "abhorrent" Schumacher comment

A Formula One pundit recently found himself issuing an apology for an unfortunate slip of the tongue during a live TV broadcast, where he inadvertently made an insensitive remark about the legendary Michael Schumacher. The incident unfolded in the aftermath of the Japanese Grand Prix during a post-race discussion on Spanish television, as reported by The Sun. Antonio Lobato, the pundit in question, raised Schumacher's name during the discussion. Regrettably, his comment quickly made its way online, inciting outrage among fans due to its insensitivity toward the Formula One icon's ongoing health struggles. In the clip in question, one of Lobato's fellow broadcaster quipped to him in Spanish, "Let Adrian Newey (Red Bull's chief technical officer) be shaking because Antonio Lobato is coming." Lobato, perhaps in an attempt at humour in the moment, shot back, "Let Michael be shaking! Well... not Michael, he cannot shake." Following this exchange, the pundits shared a laugh with their colleagues, Noemi de Miguel, Pedro de la Rosa, and Toni Cuquerella. The incident provoked a strong backlash from viewers, with many demanding that Lobato apologise to Michael Schumacher's family. Some even called for his removal from DAZN, the broadcasting platform. One individual on X (formerly Twitter) remarked, "An apology would be the minimum, a sign of decency. You don't disrespect ANYONE that way, especially when thousands of people are watching you. Journalism in Spain has a very bright present and future with people like this." Another comment read, "Using someone's medical condition as the punchline of a joke is unacceptable and abhorrent. Michael is beloved and respected in this sport, and [Lobato] doesn't deserve the platform he is given." Subsequently, Lobato released an apology video on X, which has since garnered over five million views. In the five-minute video, he attempted to explain the "accident" while justifying his actions. Lobato stated in Spanish, "I made a mistake without any bad intentions. It was simply a mistake of pure clumsiness, of pure inability to express myself correctly, maybe because of too many hours up, jet lag in Madrid, or whatever – which is not an excuse for those of you who didn't see it." He went on to clarify that he never intended to make a joke or mock Michael Schumacher and that anyone who knew him would understand this. Lobato acknowledged his error, saying, "I think that everyone who knows me and knows what I'm like knows perfectly well that I would never make a joke about something like that. Never, but I was clumsy." He admitted that he had realised his mistake instantly after making the comment. He also emphasised his deep regret, stating, "So the only thing I have to do, I think it's fundamental, is to apologise to all those who felt offended by that phrase yesterday. I really, really mean it. It was not my intention to say it to laugh, nor to make any kind of joke with Michael, whom I knew, whom I admire, and whom I think is a reference and who I think was quite unlucky." <blockquote class="twitter-tweet"> Creo que es necesario dar explicaciones y reconocer que me he equivocado. Por favor, escuchad mi vídeo. Es un poco largo, pero creo que necesario. <a href="https://t.co/89QlCMws2v">pic.twitter.com/89QlCMws2v</a> — Antonio Lobato (@alobatof1) <a href="https://twitter.com/alobatof1/status/1706287035445653736?ref_src=twsrc%5Etfw">September 25, 2023</a></blockquote> Images: Twitter (X) / Netflix

Legal

Terminally ill teacher convicted of child abuse granted end-of-life permit

A convicted child abuser from Adelaide, who was imprisoned for his acts of paedophilia against students during his tenure as a music teacher, has been authorised to pursue assisted dying, according to an exclusive report by <a href="https://www.9news.com.au/national/exclusive-adelaide-news-jailed-paedophile-teacher-malcolm-day-given-end-of-life-permit-voluntary-assisted-dying/cab7e95c-f3b1-4dbd-ae0d-cc8dbfee22c0" target="_blank" rel="noopener">9News</a>. Malcolm Day, aged 81, has emerged as the first incarcerated individual in Australia to receive approval for voluntary assisted dying following a terminal illness diagnosis, reportedly linked to cancer. Having received a 20-year prison sentence last June, Day's remaining term spans 17 years. Navigating the 11-step process required for accessing voluntary assisted dying in South Australia, Day's application is reported to be in its concluding stages, potentially reaching completion within the next few days. Dr Philip Nitschke, the director of the pro-euthanasia organisation Exit International, acknowledged that an incarcerated individual availing themselves of this scheme was an inevitable eventuality. "By the sounds of it, he satisfies all the conditions of the South Australian assisted dying legislation," Dr Nitschke told 9News. "So there should be no impediment… he should be given the option that any other person would have if they were terminally ill." During the 1980s, Day, while serving as a music teacher in South Australia, inflicted profound and lasting harm upon two of his students. After grooming and exploiting his victims, he vehemently refuted all allegations when investigated by educational authorities. When Day was sentenced, his legal representative, Stephen Ey, acknowledged the real possibility of his client passing away behind bars, saying at the time that it was "a real prospect... given his age." According to the latest data from SA Health, since the initiation of voluntary assisted dying in January of this year, 39 terminally ill residents of South Australia have opted to peacefully conclude their lives after being granted the necessary permits. Image: Nine News

Legal

Bruce Springsteen cancels shows after being "taken ill"

Bruce Springsteen's upcoming performances have been unexpectedly put on hold due to his falling ill, leading to the postponement of his scheduled shows. A sudden announcement, posted on the singer's official X account, has informed fans that the show dates will be rescheduled. "Due to Bruce Springsteen having been taken ill, his concerts with The E Street Band at Citizens Bank Park in Philadelphia on August 16 and 18 have been postponed. We are working on rescheduling the dates so please hold on to your tickets as they will be valid for the rescheduled shows." This announcement emerged mere hours before the debut show, just as eager fans were anticipating a memorable experience with Springsteen and his band. <blockquote class="twitter-tweet"> Due to Bruce Springsteen having been taken ill, his concerts with The E Street Band at Citizens Bank Park in Philadelphia on August 16 and 18 have been postponed. We are working on rescheduling the dates so please hold on to your tickets as they will be valid for the rescheduled… — Bruce Springsteen (@springsteen) <a href="https://twitter.com/springsteen/status/1691872953414115424?ref_src=twsrc%5Etfw">August 16, 2023</a></blockquote> This occurrence isn't the first instance where the music icon had to modify a show at the 11th hour due to health issues. Earlier this year, Springsteen communicated the postponement of his March 9 event at the Nationwide Arena in Ohio, attributing it to "illness." No explicit details about his health condition were disclosed in that instance either, but fans were encouraged to retain their original tickets for the rescheduled shows. Following the Ohio cancellation, two more postponements were subsequently declared. The performance originally slated for March 12 at the Mohegan Sun Arena in Connecticut has been rescheduled to September, while the March 14 show at the MVP Arena in Albany, upstate New York, was similarly postponed. Both changes were tied to unspecified health concerns. During this period, Steven Van Zandt, a member of the E Street Band, assuaged fans' concerns. He reassured them via Twitter, stating: "No need to be anxious or afraid. Nothing serious. Just a temporary situation. We will all be back in full force very soon." The band embarked on their tour in February, commencing in Tampa and traversing the United States before crossing the Atlantic to Europe in April. Returning to the United States in August, Springsteen and his crew intended to entertain audiences for several more months before culminating the extensive tour on December 10 in San Francisco. With a career spanning over 50 years, the seasoned singer-songwriter shows no signs of slowing down anytime soon.

Caring

Sandra Bullock mourns the passing of her longtime partner after private illness

Hollywood star Sandra Bullock's beloved partner, Bryan Randall, has passed away at the age of 57, with the heart-wrenching news confirmed by his grieving family in a statement shared on Monday. “It is with great sadness that we share that on Aug. 5, Bryan Randall passed away peacefully after a three-year battle with ALS,” the statement read. “Bryan chose early to keep his journey with ALS private and those of us who cared for him did our best to honour his request. We are immensely grateful to the tireless doctors who navigated the landscape of this illness with us and to the astounding nurses who became our roommates, often sacrificing their own families to be with ours. At this time we ask for privacy to grieve and to come to terms with the impossibility of saying goodbye to Bryan.” The statement was signed with a poignant, "His Loving Family". Amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig’s Disease, is a merciless neurological affliction that ravages motor neurons that command delicate voluntary muscle movement. Regrettably, there is currently no remedy for the condition. Bullock, aged 59, crossed paths with model-turned-photographer Randall when he was summoned to capture her son Louis’ birthday celebration in the early days of 2015. Their connection was immediate and profound. The mother-of-two, and an actress who has fiercely guarded her privacy over the years, chose to unveil fragments of her relationship's intimacy during a candid appearance on Red Table Talk in 2021. “I found the love of my life. We share two beautiful children — three children, [Randall’s] older daughter. It’s the best thing ever,” Bullock said at the time. “I don’t wanna say do it like I do it, but I don’t need a paper to be a devoted partner and devoted mother … I don’t need to be told to be ever present in the hardest of times. I don’t need to be told to weather a storm with a good man.” She added that Randall was also a superb “example” to her two children: “He’s the example that I would want my children to have... I have a partner who’s very Christian and there are two different ways of looking at things. I don’t always agree with him, and he doesn’t always agree with me. But he is an example even when I don’t agree with him... I’m stubborn but sometimes I need to sit back and listen and go, ‘You’re saying it differently but we mean exactly the same thing.’ “It’s hard to co-parent because I just want to do it myself.” "He was so happy, but he was scared. I'm a bulldozer. My life was already on the track, and here's this beautiful human being who doesn't want anything to do with my life but the right human being to be there." Images: Getty

Caring

23-year-old bravely dies on her own terms

A terminally ill young woman from Adelaide has ended her life under the state’s voluntary assisted dying laws. In a funeral notice published in the Adelaide Advertiser, the family of Lily Thai said she died at the Flinders Medical Centre on June 21. “Much loved daughter of Kate and Le. Beloved granddaughter, niece and cousin. Treasured friend to many,” the family wrote. The family have shared that her funeral will be held at Centennial Park Cemetery on June 29. She made the <a href="https://www.oversixty.com.au/health/caring/23-year-old-reveals-why-she-s-chosen-to-end-her-life" target="_blank" rel="noopener">heartbreaking decision</a> to take her own life after countless surgeries failed to improve her illness. Thai suffered from Ehlers Danlos Syndrome (EDS) – a genetic condition that left her completely bedridden and in constant pain. Her powerful story touched thousands nationwide before she passed away. Thai had long wished to take her own life with dignity after a battle with such a debilitating condition. “I decided that pain was so severe it wasn’t worth it, and I just wanted to take it into my own hands,” Thai told the Adelaide Advertiser. After her painful health battle, she spent her last days at the Flinders Medical Centre, where she said she mainly slept while in “excruciating pain” Thai had recently signed the paperwork to use South Australia’s voluntary assisted dying laws, which came into effect in January 2023, to end her life after being administered an IV medication. Image credit: The Advertiser / TikTok

Caring

Terminally-ill rugby player carried across marathon finish line by his best mate

There wasn’t a dry eye in the crowd when best friends Rob Burrow and Kevin Sinfield crossed the finish line of the inaugural Rob Burrow Leeds Marathon. The two Leeds Rhinos players have been raising money and awareness for people with Motor Neurone Disease since Burrow’s 2019 diagnosis, with the two raising an impressive total in the millions. And now, the pair have raised spirits and warmed hearts with Sinfield’s act at the end of their Leeds race, when he picked Burrow up from his chair and carried him over the finishing line. Before that, Sinfield had been pushing Burrow’s chair for 26.2 miles (42.2 km). The moment was met with cheering and applause as the wo concluded their marathon just after the 4 hour 22 minute mark, both from those who were there to witness it in person and from those who saw footage later when it circulated online. One Twitter user even went on to dub Burrow an “absolute gem of a human”, while another was certain that they were a “pair of absolute heroes”. “What a mate! Unbelievable in a world full of cr*p at the moment there are some genuinely lovely moments. These lads have been into battle together on the pitch for club and country,” one wrote. “It’s choked me up, I’m not going to lie.” “A bunch of legends,” someone else declared. “I’ve properly welled up watching this, this is what friendship is, to the ends of the earth and back.” <blockquote class="twitter-tweet"> Beautiful. Kevin Sinfield carried Rob Burrow over the finish line at the end of the first Rob Burrow Leeds Marathon 🥹 <a href="https://t.co/JFdd9XGgV4">pic.twitter.com/JFdd9XGgV4</a> — BBC Sport (@BBCSport) <a href="https://twitter.com/BBCSport/status/1657736670458916865?ref_src=twsrc%5Etfw">May 14, 2023</a></blockquote> Prior to the event, Sinfield had spoken about the race to The Sun, and its 12,500 reported participants, as well as the thousands lining the streets to watch, and what it meant to be undertaking the marathon together. “Even if it was just Rob and I, we’d have a great time,” he said, “there’s no better way to do it than with your mate. The fact people want to share in it and do their own little bit is incredible. “This will be with mates, for mates and alongside mates, absolutely. Look across the world at big cities where marathons are run, there’s nothing like this. “We’ve not done any training. We ran a 10km together last July and that’s part of the challenge, doing something neither of us have done before. The unknown adds to the fun of it. “He’s in a custom-made chair but it could be a bumpy ride. I’ll try and find him the safest, comfiest route but if there are hills, there are hills. If it rains, it rains.” And as Burrow himself said to The Guardian, when asked about the seven marathons in seven days that Sinfield had run on behalf of Burrow, his family, and their fight against MND, “we all need a friend like Kevin.” Images: Getty

Caring

Why young people are self-diagnosing illnesses

A lot of people turn to Google when they get symptoms of being sick, and jump to the conclusion that it may be a serious issue, however, for the younger crowd - Dr Google is now Dr TikTok. The social media app is filled with content about all sorts of topics, known for its 15-second clips it has been applauded for starting important conversations about mental health, especially among young people. It allows people to share experiences and support each other. However, as beneficial as that may be, it’s causing a lot of children to self-diagnose themselves with several mental and neurological disorders. These conditions include autism, attention deficit hyperactivity disorder (ADHD), borderline personality disorder (BPD), dissociative identity disorder (DID), obsessive-compulsive disorder (OCD), Tourette’s syndrome, and more. It’s troublesome as a doctor must diagnose a patient with an illness, and kids are taking it into their own hands based on videos that resonate with them. Psychologist Doreen Dodgen-Magee, said, “There are many accounts, hosted by educated, trained, and licensed professionals where reliable information can be found,” says Dr. Dodgen-Magee. But not all posts contain accurate, science-backed information — and many people scrolling through TikTok don’t know this”. It’s an issue that continues to grow as young people are getting medical advice from fellow TikTokers rather than seeing a doctor. If you have any symptoms of poor physical or mental health then you must be professionally diagnosed and set up with a treatment plan. Don’t rely on a social media app targeted towards children to diagnose you with health issues. Image credit: Shutterstock

Mind

KISS concert halted as Gene Simmons falls ill on stage

KISS singer Gene Simmons gave fans - and bandmates - a fright when dehydration got the better of him live on stage, and the group were forced to bring their entire concert to a halt. In a video from the event, KISS’ Paul Stanley can be seen addressing the crowd, telling them that “we’re gonna have to stop to take care of him. Because we love him, right?” He goes on to call for a cheer for Simmons, with the 73-year-old catching his breath on a chair on stage - the same chair that he remained in for the rest of the show, after a five minute break to assure he was well enough to continue. <blockquote class="twitter-tweet"> Gene Simmons, baixista e vocalista do Kiss, passa mal e show é brevemente interrompido na Arena da Amazônia. <a href="https://t.co/nphJEj1PQo">pic.twitter.com/nphJEj1PQo</a> — A Crítica (@ACritica) <a href="https://twitter.com/ACritica/status/1646372105523478529?ref_src=twsrc%5Etfw">April 13, 2023</a></blockquote> And while fans were concerned for the singer, he later took to social media to assure them that he was “fine” and looking forward to the band’s next stadium performance. “I’m fine. Yesterday at Manaus Stadium in Brazil, [I] experienced weakness because of dehydration,” he explained. “We stopped for about five minutes, I drank some water, and then all was well. Nothing serious.” “Brazil is hotter than hell!!” one fan responded, “so glad you're okay and I can't wait to see you in São Paulo! Take care, god of thunder!!” “Even the God of Thunder needs hydration,” another agreed. “Good to hear you're doing well.” <blockquote class="twitter-tweet"> Hey everybody, thanks for the good wishes. I’m fine. Yesterday at Manaus Stadium in Brazil, experienced weakness because of dehydration. We stopped for about five minutes, I drank some water, and then all was well. Nothing serious. Tomorrow, Bogota Stadium. See you there! — Gene Simmons (@genesimmons) <a href="https://twitter.com/genesimmons/status/1646530305791266818?ref_src=twsrc%5Etfw">April 13, 2023</a></blockquote> And as news broke around the world of what had gone down in Brazil, Simmons returned with another round of assurances, writing that it was “not a big deal” while again thanking everyone for their well wishes. “Last night we played Amazon jungle Stadium/Brazil. Humidity and temperature were sky high. I was dehydrated and was forced to sit for a song,” he said. “We got back on stage in 5 minutes & finished the show.” It was enough for his fans, who were quick to share their delight that their star was okay, as well as voicing their excitement for upcoming shows - with a good portion of requests for the singer to take care of himself, and avoid a repeat performance. “Happy to hear you're doing better,” one wrote. “Even more happy it wasn’t anything serious.Ya'll take care.” “Frankly, I don’t know [how] you do it every night. You’re amazing!” another declared. Meanwhile, some could see the humour in it all now that their fears had been put to rest, with one joking “and who says playing music couldn't be dangerous”. Images: Twitter

Caring

Rove gets candid about wife’s terminal cancer battle

Rove McManus has opened up about his late wife's battle with terminal cancer, and how the couple navigated her devastating diagnosis in the public eye. The former talk show host spoke candidly with Jess Rowe on her podcast The Jess Rowe Big Talk Show, and shared how he would feel uncomfortable when asked questions about Belinda Emmett. "It was a tricky thing to navigate without getting mad at people for prying," McManus admitted. "I'd maybe give a warning and I've had times where I'd literally just sit there with my arms folded and say 'I'm not going to talk about it'." Rove also shared the difficulties of juggling his high profile career and caring for his sick wife, all under the scrutiny of the public eye. "At the time it was difficult because you're trying to juggle what you're dealing with in life with what you're dealing with at work," he said. "Having to do promotion which was part of the job you have to let people know what you're doing but then people want to know what's happening at home." The former talk show host went on to say that details about Belinda's health were reserved only for close friends and family, as he felt a lot of people asking about her wellbeing were now asking out of genuine concern. "It's none of your business what's happening at home, I'm not here to talk about what's happening at home," he said. "There are people who are like 'I need to know so I can write it down and tell people, or take it out of context, or make that key piece out of this whole chat that we've had'." The star explained that he'd respond to questions about his late wife with very brief answers or no answers all together. "I'd just shut down," he added. "People were told that there's legitimate no-go zones and if you don't respect that then you understand that maybe the response you get is not going to be a good one, and that's a roll of the dice you take." Belinda Emmett sadly passed away after her battle with cancer in 2006. Rove then remarried in 2009, and he and his wife Tasma Walton have been happily married ever since. Image credits: Getty Images

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Rove gets candid about wife’s terminal cancer battle

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