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Tragic flaw sees man use voluntary assisted dying drugs prescribed for his wife

Warning: This article contains discussions of suicide and depression that some readers may find upsetting A Queensland coroner has criticised the state's voluntary assisted dying laws, after an elderly man took his own life using drugs prescribed for his wife. The Coroner's Court in Brisbane held an inquest into the May 2023 death of a man in his 80s, referred to by the pseudonym ABC. The man's partner, who had a terminal illness, was found eligible for the voluntary assisted dying [VAD] program in March 2023. Under that law a person can self-administer a VAD substance in a private location but they must nominate a "contact person" who will be legally required to return any unused or leftover portion within 14 days. The self-administered drug was delivered to the couple's home a month later, and the man was the "contact person" responsible for the substance. On the same day the drug arrived, his wife was admitted to hospital with Covid, where they decided to take an intravenous VAD drug. She died in hospital on May 8, 2023. The man was told to return the drug within two days of his partner's death, but he failed to do so, using it to take his own life eight days later. He did not return the drug as he was unable to leave his home, and there was no arrangement made for a health professional to collect it. ABC’s adult daughter recalled the moment she found her lifeless father after returning from running errands. “I thought he was asleep in the chair. I put my arms around him. He was cold,” she told the inquest. The woman became emotional and said that she found an empty box in the kitchen and “knew immediately it was the VAD”. In his findings, coroner David O’Connell said he was not judging the merits of VAD, but it had led to a "tragedy" only 107 days after it was legalised. “Persons should not be placed in a position where they can be led into unwise decisions,” the coroner said in his findings handed down on Wednesday. O'Connell said that the laws had failed to find a balance between a patient's autonomy and lethal medication safety. “The VAD law has (the substance) provided to persons with no medical training, no regulatory oversight, and in a period of great personal and emotional turmoil,” he said. The inquest heard ABC had previously been diagnosed with, and received medication for depression, which should've been considered before approving someone as a contact person. "The fact that ABC had been medically diagnosed with depression and took medication was not something the VAD authorities considered, or even enquired on, when approving them to be a Contact Person. Indeed, there are simply no checks or enquiries of the Contact Person's suitability," he said. He added that while there was no breach of protocol or legislative processes by QVAD personnel, it was "not a well-considered law". O'Connell recommended the Queensland government implement an earlier draft of VAD laws that required oversight by a medical professional at all times. Queensland Health Minister Shannon Fentiman said the government would consider the coroner’s recommendations. “Following that case, we are working on a review of that legislation coming up to three years that will start next year, and that will obviously be one of the things that we look at,” she said. Image: Shutterstock

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"I don't call that a life": Couple sign up to die in double suicide pod

Warning: This article contains sensitive content that some readers may find distressing. A couple from the UK has signed up to be the first to die in a double suicide pod, invented by an Australian doctor, after 46 years of marriage. Peter and Christine Scott, from Suffolk in England’s east, have shared their plans to travel to Switzerland to die together after Ms Scott, a former nurse, was diagnosed with early-stage vascular dementia. After meeting at a jazz club, the pair married 46 years ago, and shared that they have opted out of potentially years of hospital treatment and the crippling costs of care which could eat into their life savings. “We have had long, happy, healthy, fulfilled lives but here we are in old age and it does not do nice things to you,” Mr Scott, 86, told<a title="www.dailymail.co.uk" href="https://www.dailymail.co.uk/news/article-13825105/Former-RAF-engineer-nurse-wife-sign-British-couple-use-double-suicide-pod-Switzerland-dementia.html"> The Daily Mail</a>. “The idea of watching the slow degradation of Chris’s mental abilities in parallel to my own physical decline is horrific to me,” the former Royal Air Force pilot added. “Obviously I would care for her to the point I could not, but she has nursed enough people with dementia during her career to be adamant she wants to remain in control of herself and her life”. “I would not want to go on living without her,” he said of his 80-year-old wife. “I don’t want to go into care, to be lying in bed dribbling and incontinent – I don’t call that a life”. As English law does not allow for euthanasia, the couple have planned their trip to Switzerland for the procedure, where Ms Scott has planned out her final days with her husband. “I’d like to go walking with Peter in the Swiss Alps, by a river. I’d have a beautiful plate of fish for my last supper, and enjoy a great bottle of Merlot,” she said. “I’d make a playlist including Wild Cat Blues and The Young Ones by Cliff Richard and I’ve found a poem called Miss Me But Let Me Go, which sums up exactly how I feel”. The suicide pod, known as Sarco, can be turned on with a simple flick of a switch from inside the futuristic capsule that resembles a modern car. The machine was invented by Australian Dr Philip Nitschke, who has long been behind a number of initiatives to allow legal euthanasia in Australia. The 3D printed Sarco capsule ends the lives of those inside by pumping the pod with nitrogen which replaces the oxygen in the pod, which renders the occupants unconscious within about a minute without, its claimed, any panic or distress. With falling oxygen, the person eventually suffocates. Dr Nitschke said the machine is activated by a button from inside the pod. “The capsule for two people works exactly the same as the single Sarco but there is only one button so they will decide between them who will push it,” he told <a title="www.dailymail.co.uk" href="https://www.dailymail.co.uk/news/article-13825105/Former-RAF-engineer-nurse-wife-sign-British-couple-use-double-suicide-pod-Switzerland-dementia.html">The Daily Mail</a>. “Then they’ll be able to hold each other”. Image credits: Courtesy of Exit International

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New study links Ozempic and Wegovy to suicidal thoughts

A new study has found a link between weight reduction drugs and reports of suicidal thoughts. Semaglutide, the drug sold under the brand names Ozempic and Wegovy, has been widely used for weight loss despite only being approved for the treatment of diabetes. An analysis of data on the adverse drug reactions database of the World Health Organisation found a disproportionate number of people reporting suicidal thoughts while using semaglutide. The research published in JAMA Network also found that the effect was "significant" compared to other diabetes medication, and that people with anxiety and depression were more likely to report suicidal thoughts when taking the drug. The researches have called for "urgent clarification" and larger studies around how semaglutide medications impact the brain. "The study raises key questions about whether additional precautions are needed when prescribing semaglutide," Trevor Steward, a neurobiology researcher from the University of Melbourne said. However, there are a few limitations with the study as there were a lack of information about the dosages, and did not adjust for things like alcohol and substance misuse and off-label use. While the study did not find a direct cause between suicidal thoughts and the use of semaglutide, it is important to raise concerns, especially for those who may want to use these drugs based on information they found on social media, and therefore do not fully understand the risks. The use of semaglutide for weight loss in Australia is considered 'off label', meaning that it has been prescribed for purposes outside of its approved use. The Therapeutic Goods Administration (TGA) believes that these prescriptions have been driving shortages, which they are trying to address and believe will last until 2025. Images: Shutterstock

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Shocking theory behind grandma's broad daylight murder-suicide

Warning: This article contains distressing content that some readers may find upsetting. Court papers have revealed the sinister reason behind why a grandmother allegedly killed her daughter-in-law before killing herself. Terminally ill ex-probation officer Kathleen Leigh, 65, fatally shot 45-year-old Marisa Galloway, who shares a child with Leigh’s son, Zachariah Reed, on a New York street before taking her own life. Now Ms Galloway’s grieving parents, Nancy and John, have filed an emergency court petition claiming Mr Reed has run off to his “multimillion-dollar home” in Chicago with their grandchild Lili under the pretext of “mourning” his mother’s death. He has also barred the Galloways from any contact, either in person or via technology, with the child. “Clearly, [Mr Reed’s] mother had a deliberate plan to kill Marisa in order to provide custody for her son,” the court papers charge, according to an exclusive report by the <a title="nypost.com" href="https://nypost.com/2024/08/18/us-news/killer-nyc-granny-carried-out-slay-suicide-to-give-son-full-custody-of-child-heartbreaking-suit/" target="_blank" rel="noopener">New York Post</a>. “Unfortunately, [Mr Reed] has demonstrated an absolute intention to further those same goals of his mother as he has refused to provide us with any access to Lili at all in almost 3 weeks.” According to legal papers filed on Friday, the grandparents, who live a 12 hour drive away in New Jersey, are asking a Manhattan Supreme Court judge to pass on Marisa’s parenting time, hashed out in a 2022 custody agreement with Mr Reed. They are also asking that Mr Reed be forced to live in the New York until Lili is 18 so that she can keep a close relationship with her grandparents and with her half-sister, Mariel, the 1-year-old daughter Marisa had with a sperm donor who currently lives with the grandparents. “While Marisa was always the best mother, we would love to be involved with all aspects of taking care of an infant, toddler, and ultimately the little girl that Lili currently is,” Nancy wrote. Nancy said she is “extremely uncomfortable” being forced to file the petition but worried Lili would become estranged from her mum’s side of the family if they didn’t intervene. The grandmother laid out the history of Marisa and Mr Reed’s “tumultuous relationship” since the pair split and their “contentious” custody battle while she also claimed the pair dated before Marisa became pregnant but said their relationship ended “driven by the interference of [Mr Reed’s] mother.” On the day of the heinous crime on July 26th 2024, Marisa was loading her car and had put Mariel in her seat with plans to visit her parents for a few days. She was approached by Leigh while she was putting something in the boot, and shot her once in the back of the head and again in the back before taking her own life. Before her heinous crime, Leigh scrawled a seven-page letter “For Police” describing how she felt Marisa was trying to alienate Lili from her dad and saying she suspected Marisa of abusing Lili, despite child services clearing Marisa in two probes launched by Mr Reed. “She took away the child’s mother in order to make her son happy … it’s shocking,” a law-enforcement source had told the New York Post of Leigh right after the alleged murder-suicide. Image credits: Manhattan Supreme Court

Legal

"The most gorgeous family": Tributes flow for slain mother and daughter

Police are continuing their investigation into the tragic deaths of Jennifer Petelczyc and her daughter Gretel, who were shot dead in their own home by a 63-year-old man. The mother and daughter were killed on Friday, when the man was allegedly searching for his ex-partner before he fatally shot the pair in their home at Floreat, north-west of the Perth CBD. Since their tragic deaths, loved ones and members of the community have come out in droves to pay their respects. "They're the most gorgeous family and it's absolutely just heartbreaking that this has happened," said family friend Imogen Harrris. She added the slain mum, 59, and her 18-year-old daughter were the "kindest, most light-hearted, beautiful people". Neighbour Claire Andrews remembered them as people who "always gave back to the community". Jennifer Petelczyc was known to be a caring and generous member of the community, as she installed a $5,000 defibrillator to be installed outside her home for local people to use in a health emergency. According to police, the man who allegedly killed the mother and daughter, Mark Bombara, was a licensed firearms owner who possessed at least 13 guns and took multiple firearms to the Floreat home as he searched for his ex-wife, who detectives say was a friend of Jennifer. It is understood that Bombara’s wife left him weeks ago and had been staying with Ms Petelczyc. Officers confirmed the man's former partner was not at the home but the two women were tragically killed. WA's Premier Roger Cook has described the murders as "chilling and horrific", saying, "This is a circumstance in which a woman has sought refuge from a friend. It would appear that as a result of that, that friend and her daughter have come to harm." "They're innocent people ... simply doing what we'd all want someone to do when we're facing difficult circumstances. By every measure it looks senseless, chilling and absolutely horrific." "I think we need to take the opportunity today ... to reflect on it and think about how we can all continue to make the world a safer place." Image credits: 9News

Caring

What happens if you want access to voluntary assisted dying but your nursing home won’t let you?

<div class="theconversation-article-body"> <a href="https://theconversation.com/profiles/neera-bhatia-15189">Neera Bhatia</a>, <a href="https://theconversation.com/institutions/deakin-university-757">Deakin University</a> and <a href="https://theconversation.com/profiles/charles-corke-167297">Charles Corke</a>, <a href="https://theconversation.com/institutions/deakin-university-757">Deakin University</a> Voluntary assisted dying is now lawful in <a href="https://theconversation.com/voluntary-assisted-dying-will-soon-be-legal-in-all-states-heres-whats-just-happened-in-nsw-and-what-it-means-for-you-183355">all Australian states</a>. There is also <a href="https://nationalseniors.com.au/uploads/VAD-Report-correct-month-12.8.21.pdf">widespread community support</a> for it. Yet some residential institutions, such as hospices and aged-care facilities, are obstructing access despite the law not specifying whether they have the legal right to do so. As voluntary assisted dying is implemented across the country, institutions blocking access to it will likely become more of an issue. So addressing this will help everyone – institutions, staff, families and, most importantly, people dying in institutions who wish to have control of their end. <h2>The many ways to block access</h2> While voluntary assisted dying legislation recognises the right of doctors to <a href="https://theconversation.com/was-take-on-assisted-dying-has-many-similarities-with-the-victorian-law-and-some-important-differences-121554">conscientiously object</a> to it, the law is generally silent on the rights of institutions to do so. While the institution where someone lives has no legislated role in voluntary assisted dying, it can refuse access in various ways, including: <ul> <li> restricting staff responding to a discussion a resident initiates about voluntary assisted dying </li> <li> refusing access to health professionals to facilitate it, and </li> <li> requiring people who wish to pursue the option to leave the facility. </li> </ul> <h2>Here’s what happened to ‘Mary’</h2> Here is a hypothetical example based on cases one of us (Charles Corke) has learned of via his role at Victoria’s <a href="https://www.safercare.vic.gov.au/about/vadrb">Voluntary Assisted Dying Review Board</a>. We have chosen to combine several different cases into one, to respect the confidentiality of the individuals and organisations involved. “Mary” was a 72-year-old widow who moved into a private aged-care facility when she could no longer manage independently in her own home due to advanced lung disease. While her intellect remained intact, she accepted she had reached a stage at which she needed significant assistance. She appreciated the help she received. She liked the staff and they liked her. After a year in the facility, during which time her lung disease got much worse, Mary decided she wanted access to voluntary assisted dying. Her children were supportive, particularly as this desire was consistent with Mary’s longstanding views. Mary was open about her wish with the nursing home staff she felt were her friends. The executive management of the nursing home heard of her intentions. This resulted in a visit at which Mary was told, in no uncertain terms, her wish to access voluntary assisted dying would not be allowed. She would be required to move out, unless she agreed to change her mind. Mary was upset. Her family was furious. She really didn’t want to move, but really wanted to continue with voluntary assisted dying “in her current home” (as she saw it). Mary decided to continue with her wish. Her family took her to see two doctors registered to provide assessments for voluntary assisted dying, who didn’t work at the facility. Mary was deemed eligible and the permit was granted. Two pharmacists visited Mary at the nursing home, gave her the medication and instructed her how to mix it and take it. These actions required no active participation from the nursing home or its staff. Family and friends arranged to visit at the time Mary indicated she planned to take the medication. She died peacefully, on her own terms, as she wished. The family informed the nursing home staff their mother had died. Neither family nor staff mentioned voluntary assisted dying. <h2>Staff are in a difficult position too</h2> There is widespread community support for voluntary assisted dying. In a 2021 survey by National Seniors Australia, <a href="https://nationalseniors.com.au/uploads/VAD-Report-correct-month-12.8.21.pdf">more than 85%</a> of seniors agreed it should be available. So it’s likely there will be staff who are supportive in most institutions. For instance, in a survey of attitudes to voluntary assisted dying in a large public tertiary hospital, <a href="https://onlinelibrary.wiley.com/doi/abs/10.1111/imj.15285">88% of staff</a> supported it becoming lawful. So a blanket policy to refuse dying patients access to voluntary assisted dying is likely to place staff in a difficult position. An institution risks creating a toxic workplace culture, in which clandestine communication and fear become entrenched. <h2>What could we do better?</h2> 1. Institutions need to be up-front about their policies Institutions need to be completely open about their policies on voluntary assisted dying and whether they would obstruct any such request in the future. This is so patients and families can factor this into deciding on an institution in the first place. 2. Institutions need to consult their stakeholders Institutions should consult their stakeholders about their policy with a view to creating a “<a href="https://bmcpalliatcare.biomedcentral.com/articles/10.1186/s12904-021-00891-3">safe</a>” environment for residents and staff – for those who want access to voluntary assisted dying or who wish to support it, and for those who don’t want it and find it confronting. 3. Laws need to change Future legislation should define the extent of an institution’s right to obstruct a resident’s right to access voluntary assisted dying. There should be safeguards in all states (as is already legislated <a href="https://documents.parliament.qld.gov.au/tp/2021/5721T707.pdf">in Queensland</a>), including the ability for individuals to be referred in sufficient time to another institution, should they wish to access voluntary assisted dying. Other states should consider whether it is reasonable to permit a resident, who does not wish to move, to be able to stay and proceed with their wish, without direct involvement of the institution. <hr /> The opinions expressed in this article are those of the authors and do not necessarily reflect the views of Victoria’s Voluntary Assisted Dying Review Board.<img style="border: none !important; box-shadow: none !important; margin: 0 !important; max-height: 1px !important; max-width: 1px !important; min-height: 1px !important; min-width: 1px !important; opacity: 0 !important; outline: none !important; padding: 0 !important;" src="https://counter.theconversation.com/content/183364/count.gif?distributor=republish-lightbox-basic" alt="The Conversation" width="1" height="1" /> <a href="https://theconversation.com/profiles/neera-bhatia-15189">Neera Bhatia</a>, Associate Professor in Law, <a href="https://theconversation.com/institutions/deakin-university-757">Deakin University</a> and <a href="https://theconversation.com/profiles/charles-corke-167297">Charles Corke</a>, Associate Professor of Medicine, <a href="https://theconversation.com/institutions/deakin-university-757">Deakin University</a> Image credits: Shutterstock This article is republished from <a href="https://theconversation.com">The Conversation</a> under a Creative Commons license. Read the <a href="https://theconversation.com/what-happens-if-you-want-access-to-voluntary-assisted-dying-but-your-nursing-home-wont-let-you-183364">original article</a>. </div>

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People with dementia aren’t currently eligible for voluntary assisted dying. Should they be?

<div class="theconversation-article-body"><a href="https://theconversation.com/profiles/ben-white-15387">Ben White</a>, <a href="https://theconversation.com/institutions/queensland-university-of-technology-847">Queensland University of Technology</a>; <a href="https://theconversation.com/profiles/casey-haining-1486290">Casey Haining</a>, <a href="https://theconversation.com/institutions/queensland-university-of-technology-847">Queensland University of Technology</a>; <a href="https://theconversation.com/profiles/lindy-willmott-15386">Lindy Willmott</a>, <a href="https://theconversation.com/institutions/queensland-university-of-technology-847">Queensland University of Technology</a>, and <a href="https://theconversation.com/profiles/rachel-feeney-140352">Rachel Feeney</a>, <a href="https://theconversation.com/institutions/queensland-university-of-technology-847">Queensland University of Technology</a> Dementia is the <a href="https://www.dementia.org.au/about-dementia">second leading cause of death</a> for Australians aged over 65. More than 421,000 Australians <a href="https://www.dementia.org.au/about-dementia">currently live with dementia</a> and this figure is expected to almost double in the next 30 years. There is ongoing public <a href="https://www.mja.com.au/journal/2024/220/9/should-voluntary-assisted-dying-victoria-be-extended-encompass-people-dementia">discussion</a> about whether dementia should be a qualifying illness under Australian voluntary assisted dying laws. Voluntary assisted dying is <a href="https://www.unswlawjournal.unsw.edu.au/wp-content/uploads/2023/12/Issue-464-10-Waller-et-al.pdf">now lawful in all six states</a>, but is not available for a person living with dementia. The Australian Capital Territory has <a href="https://www.canberratimes.com.au/story/8631104/marisa-paterson-to-consult-on-voluntary-assisted-dying-amendments/?cs=14329">begun debating</a> its voluntary assisted dying bill in parliament but the government has <a href="https://www.legislation.act.gov.au/DownloadFile/es/db_68610/current/PDF/db_68610.PDF">ruled out</a> access for dementia. Its view is that a person should retain decision-making capacity throughout the process. But the bill includes a requirement to <a href="https://www.legislation.act.gov.au/b/db_68609/">revisit the issue</a> in three years. The Northern Territory is also considering reform and <a href="https://www.theaustralian.com.au/subscribe/news/1/?sourceCode=TAWEB_WRE170_a_GGL&dest=https%3A%2F%2Fwww.theaustralian.com.au%2Fnation%2Fpolitics%2Fconcerning-territory-nt-surveys-public-support-on-euthanasia-for-mentally-ill%2Fnews-story%2F4e45111bb293af4cf32ac3c6df058869&memtype=anonymous&mode=premium&v21=GROUPA-Segment-2-NOSCORE&V21spcbehaviour=append">has invited views</a> on access to voluntary assisted dying for dementia. Several public figures have also entered the debate. Most recently, former Australian Chief Scientist, Ian Chubb, <a href="https://www.abc.net.au/listen/programs/melbourne-drive/voluntary-assisted-dying-dementia-victoria/103467864">called for the law to be widened</a> to allow access. Others <a href="https://www.smh.com.au/national/voluntary-assisted-dying-should-not-be-available-to-dementia-patients-20230607-p5deqo.html">argue</a> permitting voluntary assisted dying for dementia would present unacceptable risks to this vulnerable group. <h2>Australian laws exclude access for dementia</h2> Current Australian voluntary assisted dying laws <a href="https://www.unswlawjournal.unsw.edu.au/wp-content/uploads/2023/12/Issue-464-10-Waller-et-al.pdf">exclude access</a> for people who seek to qualify because they have dementia. In New South Wales, the <a href="https://legislation.nsw.gov.au/view/html/inforce/current/act-2022-017">law specifically states</a> this. In the other states, this occurs through a <a href="https://www.unswlawjournal.unsw.edu.au/wp-content/uploads/2022/04/Issue-451-White-et-al.pdf">combination of the eligibility criteria</a>: a person whose dementia is so advanced that they are likely to die within the 12 month timeframe would be highly unlikely to retain the necessary decision-making capacity to request voluntary assisted dying. This does not mean people who have dementia cannot access voluntary assisted dying if they also have a terminal illness. For example, a person who retains decision-making capacity in the early stages of Alzheimer’s disease with terminal cancer may access voluntary assisted dying. <h2>What happens internationally?</h2> Voluntary assisted dying laws in some other countries allow access for people living with dementia. One mechanism, used in the Netherlands, is through <a href="https://agsjournals.onlinelibrary.wiley.com/doi/full/10.1111/jgs.16692">advance directives or advance requests</a>. This means a person can specify in advance the conditions under which they would want to have voluntary assisted dying when they no longer have decision-making capacity. This approach depends on the person’s family identifying when those conditions have been satisfied, generally in consultation with the person’s doctor. Another approach to accessing voluntary assisted dying is to allow a person with dementia to choose to access it while they still have capacity. This involves regularly assessing capacity so that just before the person is predicted to lose the ability to make a decision about voluntary assisted dying, they can seek assistance to die. In Canada, this has been referred to as the “<a href="https://www.unswlawjournal.unsw.edu.au/wp-content/uploads/2022/04/Issue-451-White-et-al.pdf">ten minutes to midnight</a>” approach. <h2>But these approaches have challenges</h2> International experience reveals these approaches have limitations. For advance directives, it can be difficult to specify the conditions for activating the advance directive accurately. It also requires a family member to initiate this with the doctor. Evidence also shows doctors are <a href="https://link.springer.com/article/10.1186/1472-6939-16-7">reluctant</a> to act on advance directives. Particularly challenging are <a href="https://bmcmedethics.biomedcentral.com/articles/10.1186/s12910-019-0401-y">scenarios</a> where a person with dementia who requested voluntary assisted dying in an advance directive later appears happy and content, or no longer expresses a desire to access voluntary assisted dying. Allowing access for people with dementia who retain decision-making capacity also has practical problems. Despite regular assessments, a person may lose capacity in between them, meaning they miss the window before midnight to choose voluntary assisted dying. These capacity assessments can also be very complex. Also, under this approach, a person is required to make such a decision at an early stage in their illness and may lose years of otherwise enjoyable life. Some also argue that regardless of the approach taken, allowing access to voluntary assisted dying would involve unacceptable risks to a vulnerable group. <h2>More thought is needed before changing our laws</h2> There is <a href="https://www.parliament.qld.gov.au/Documents/TableOffice/TabledPapers/2020/5620T490.pdf">public demand</a> to allow access to voluntary assisted dying for dementia in Australia. The mandatory reviews of voluntary assisted dying legislation <a href="https://www.publish.csiro.au/ah/pdf/AH23005">present an opportunity</a> to consider such reform. These reviews generally happen after three to five years, and in some states they will occur regularly. The scope of these reviews can vary and sometimes governments may not wish to consider changes to the legislation. But the Queensland review “<a href="https://www.legislation.qld.gov.au/view/pdf/asmade/act-2021-017">must include a review of the eligibility criteria</a>”. And the ACT bill requires the review to <a href="https://www.legislation.act.gov.au/b/db_68609/">consider</a> “advanced care planning”. Both reviews would require consideration of who is able to access voluntary assisted dying, which opens the door for people living with dementia. This is particularly so for the ACT review, as advance care planning means allowing people to request voluntary assisted dying in the future when they have lost capacity. This is a complex issue, and more thinking is needed about whether this public desire for voluntary assisted dying for dementia should be implemented. And, if so, how the practice could occur safely, and in a way that is acceptable to the health professionals who will be asked to provide it. This will require a careful review of existing international models and their practical implementation as well as what would be feasible and appropriate in Australia. Any future law reform should be <a href="https://www.publish.csiro.au/AH/AH19201">evidence-based</a> and draw on the views of people living with dementia, their family caregivers, and the health professionals who would be relied on to support these decisions.<img style="border: none !important; box-shadow: none !important; margin: 0 !important; max-height: 1px !important; max-width: 1px !important; min-height: 1px !important; min-width: 1px !important; opacity: 0 !important; outline: none !important; padding: 0 !important;" src="https://counter.theconversation.com/content/224075/count.gif?distributor=republish-lightbox-basic" alt="The Conversation" width="1" height="1" /> <a href="https://theconversation.com/profiles/ben-white-15387">Ben White</a>, Professor of End-of-Life Law and Regulation, Australian Centre for Health Law Research, <a href="https://theconversation.com/institutions/queensland-university-of-technology-847">Queensland University of Technology</a>; <a href="https://theconversation.com/profiles/casey-haining-1486290">Casey Haining</a>, Research Fellow, Australian Centre for Health Law Research, <a href="https://theconversation.com/institutions/queensland-university-of-technology-847">Queensland University of Technology</a>; <a href="https://theconversation.com/profiles/lindy-willmott-15386">Lindy Willmott</a>, Professor of Law, Australian Centre for Health Law Research, Queensland University of Technology, <a href="https://theconversation.com/institutions/queensland-university-of-technology-847">Queensland University of Technology</a>, and <a href="https://theconversation.com/profiles/rachel-feeney-140352">Rachel Feeney</a>, Postdoctoral research fellow, <a href="https://theconversation.com/institutions/queensland-university-of-technology-847">Queensland University of Technology</a> Image credits: Getty Images This article is republished from <a href="https://theconversation.com">The Conversation</a> under a Creative Commons license. Read the <a href="https://theconversation.com/people-with-dementia-arent-currently-eligible-for-voluntary-assisted-dying-should-they-be-224075">original article</a>. </div>

Caring

Terminally ill teacher convicted of child abuse granted end-of-life permit

A convicted child abuser from Adelaide, who was imprisoned for his acts of paedophilia against students during his tenure as a music teacher, has been authorised to pursue assisted dying, according to an exclusive report by <a href="https://www.9news.com.au/national/exclusive-adelaide-news-jailed-paedophile-teacher-malcolm-day-given-end-of-life-permit-voluntary-assisted-dying/cab7e95c-f3b1-4dbd-ae0d-cc8dbfee22c0" target="_blank" rel="noopener">9News</a>. Malcolm Day, aged 81, has emerged as the first incarcerated individual in Australia to receive approval for voluntary assisted dying following a terminal illness diagnosis, reportedly linked to cancer. Having received a 20-year prison sentence last June, Day's remaining term spans 17 years. Navigating the 11-step process required for accessing voluntary assisted dying in South Australia, Day's application is reported to be in its concluding stages, potentially reaching completion within the next few days. Dr Philip Nitschke, the director of the pro-euthanasia organisation Exit International, acknowledged that an incarcerated individual availing themselves of this scheme was an inevitable eventuality. "By the sounds of it, he satisfies all the conditions of the South Australian assisted dying legislation," Dr Nitschke told 9News. "So there should be no impediment… he should be given the option that any other person would have if they were terminally ill." During the 1980s, Day, while serving as a music teacher in South Australia, inflicted profound and lasting harm upon two of his students. After grooming and exploiting his victims, he vehemently refuted all allegations when investigated by educational authorities. When Day was sentenced, his legal representative, Stephen Ey, acknowledged the real possibility of his client passing away behind bars, saying at the time that it was "a real prospect... given his age." According to the latest data from SA Health, since the initiation of voluntary assisted dying in January of this year, 39 terminally ill residents of South Australia have opted to peacefully conclude their lives after being granted the necessary permits. Image: Nine News

Legal

23-year-old reveals why she's chosen to end her life

23-year-old Lily Thai has made the crippling decision to end her life. The Adelaide native, who suffers from Ehlers Danlos Syndrome (EDS), will use recently passed voluntary assisted dying laws after signing the final paperwork a week prior. In January 2023, South Australia legalised assisted dying with the government funnelling in $18 million over the next five years to support safe access to the service. “I realised that I can’t have any more anaesthesia, so I (couldn’t) have any more feeding tube changes (or) surgeries,” Thai told The Advertiser. EDS is a debilitating genetic condition which has left the 23-year-old completely bedridden and in constant pain. It affects her joints, skin and walls of the blood vessels so severely she is reliant on her father as a caregiver to do everything for her, “even the most intimate things”. Doctors will administer an IV medication that will terminate the young woman’s life within 10 seconds. “I’ll no longer have any pain, I will no longer suffer with any of these issues, and I’ll finally be free of all the suffering that I have endured for so many years.” Thai had initially thought her health deterioration was caused by a spinal fluid leak, but after undergoing treatment to fix it, her condition did not improve and doctors couldn’t give her a definitive diagnosis. As a desperate last measure, she travelled to Sydney to meet a surgeon who “specialised in spinal issues (for) patients with EDS” when she was 21. She was then confined to a halo brace and required a nasal feeding tube as she "couldn’t keep anything down,” and weighed just 40kg. In May 2021, Thai had spinal fusion surgery and just a week later was fitted with a gastro Jejenul feeding tube to vent out stomach acid and secretion. Through her rehab period, hospitals were under strict Covid-19 protocols, so Thai suffered alone without any visitors. “I couldn’t stand not seeing my dad, so I got discharged early,” she said. She was later diagnosed with auto-immune autonomic ganglionopathy — a rare condition where the body’s immune system attacks the nervous system. “The neurologist said that I was in multi-organ failure, but it wasn’t until I had a severe decline after one of my surgeries, (and) when I saw my rehab doctor they found a large lesion of the left side of my brain,” she said. “He suspected I had a type of motor neurone disease.” Thai has spent the past two years at Flinders Medical Centre’s Laurel Hospice, where she shared that most of her days are filled with sleep to avoid being in “excruciating pain”. Healthcare staff there granted one of her final wishes, which was to visit a beach, and so they took Thai in the back of an ambulance to the coastline. An image (at top) shows Lily resting on a bed, enjoying her Maccas fries and looking out at the golden sand and blue water in front of her. While at the hospice, Thai also formed a strong bond with another young woman, Annaliese Holland, who was also suffering a terminal illness at the hospice. The pair say young people with a terminal illness often mourn the “life (they) never got to have.” “For elderly or older people, (they) have memories to look back on to laugh about and cry about,” Holland said. “But for a young person in palliative hospice, you haven’t formed many of them.” “You never do the normal things like going to your high school graduation,” Thai said. “What makes me sad is that … you just want to push on, but at the same time it’s really hard because you know you won’t have babies or any of that,” Holland said. Holland has vowed to do everything in her power to make Thai’s last days in hospice more bearable. “All I can do is brush her (Lily’s) hair or moisturise her legs. I just want her to know that I’m there and people care,” a tearful Holland said. Thai has been able to plan parts of her own funeral and has been busy saying goodbye to family and friends. As part of her legacy, she’s inviting donations for palliative research to The Hospital Research Foundation on her memorial card to be given to funeral attendees. Image credit: Facebook

Caring

People thinking of voluntary assisted dying may be able to donate their organs. We need to start talking about this

<a href="https://theconversation.com/profiles/robert-ray-1441988">Robert Ray</a>, <a href="https://theconversation.com/institutions/deakin-university-757">Deakin University</a> The number of people needing an organ transplant vastly outweighs the number of organs available. <a href="https://www.donatelife.gov.au/sites/default/files/2023-02/OTA%202022%20Donation%20and%20Transplantation%20Activity%20Report.pdf">In 2022</a> there were about 1,800 Australians waiting for an organ but only about 1,200 people received an organ transplant. But in <a href="https://onlinelibrary.wiley.com/doi/10.1111/imj.16085">a recent paper</a>, I outline one unexplored option for increasing the number of potential organ donors in Australia – transplanting organs from people undergoing voluntary assisted dying. This would involve transplanting organs only after someone had died. It’s estimated <a href="https://jamanetwork.com/journals/jama/article-abstract/2616383">about 10%</a> of people eligible for voluntary assisted dying are likely to be medically suitable to donate their organs. Based on <a href="https://www.safercare.vic.gov.au/sites/default/files/2022-09/Voluntary%20Assisted%20Dying%20Review%20Board%20Report%20of%20Operations%20July%202021-June%2022_FINAL.pdf">Victorian figures</a> alone, this could lead to about an extra 40 potential organ donors each year. This type of organ donation has taken place <a href="https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9297969/">for more than 20 years</a> in Europe, and more recently in Canada. Organs transplanted from donors undergoing voluntary assisted dying <a href="https://jamanetwork.com/journals/jamasurgery/article-abstract/2769118">have</a> <a href="https://onlinelibrary.wiley.com/doi/abs/10.1111/ajt.16267">similar</a> <a href="https://onlinelibrary.wiley.com/doi/abs/10.1111/ajt.16971">success rates</a> to more traditional donations. Yet, this is a discussion we’ve yet to have in Australia. Here are some of the ethical and practical issues we need to start talking about. <h2>Is this ethical? It’s tricky</h2> The main ethical challenge is ensuring a person isn’t motivated to end their life prematurely so they can donate their organs. <a href="https://onlinelibrary.wiley.com/doi/abs/10.1111/ajt.13746">Internationally</a>, <a href="https://jme.bmj.com/content/42/8/486.short">this challenge</a> is mainly addressed by having <a href="https://www.sciencedirect.com/science/article/pii/S1600613523000291">independent assessments</a> by multiple doctors. This is to ensure the motivation is genuine and honest, much like assessing someone before voluntary assisted dying. Similarly, it is important the doctor of someone undergoing voluntary assisted dying isn’t persuading them to donate an organ. This means any doctor overseeing voluntary assisted dying may be limited in how much they can discuss organ donation with their patient. Again, this <a href="https://onlinelibrary.wiley.com/doi/abs/10.1111/ajt.13746">has been managed internationally</a> by having separate, independent doctors overseeing organ donation and voluntary assisted dying, <a href="https://www.cmaj.ca/content/190/44/E1305.short">without one influencing</a> the other. <figure class="align-center zoomable"><a href="https://images.theconversation.com/files/528192/original/file-20230525-27-sjwdaa.jpg?ixlib=rb-1.1.0&q=45&auto=format&w=1000&fit=clip"><img src="https://images.theconversation.com/files/528192/original/file-20230525-27-sjwdaa.jpg?ixlib=rb-1.1.0&q=45&auto=format&w=754&fit=clip" sizes="(min-width: 1466px) 754px, (max-width: 599px) 100vw, (min-width: 600px) 600px, 237px" srcset="https://images.theconversation.com/files/528192/original/file-20230525-27-sjwdaa.jpg?ixlib=rb-1.1.0&q=45&auto=format&w=600&h=437&fit=crop&dpr=1 600w, https://images.theconversation.com/files/528192/original/file-20230525-27-sjwdaa.jpg?ixlib=rb-1.1.0&q=30&auto=format&w=600&h=437&fit=crop&dpr=2 1200w, https://images.theconversation.com/files/528192/original/file-20230525-27-sjwdaa.jpg?ixlib=rb-1.1.0&q=15&auto=format&w=600&h=437&fit=crop&dpr=3 1800w, https://images.theconversation.com/files/528192/original/file-20230525-27-sjwdaa.jpg?ixlib=rb-1.1.0&q=45&auto=format&w=754&h=549&fit=crop&dpr=1 754w, https://images.theconversation.com/files/528192/original/file-20230525-27-sjwdaa.jpg?ixlib=rb-1.1.0&q=30&auto=format&w=754&h=549&fit=crop&dpr=2 1508w, https://images.theconversation.com/files/528192/original/file-20230525-27-sjwdaa.jpg?ixlib=rb-1.1.0&q=15&auto=format&w=754&h=549&fit=crop&dpr=3 2262w" alt="Elderly woman in bed hand on covers" /></a><figcaption>Is this what people really want, with so little time left? <a class="source" href="https://www.shutterstock.com/image-photo/senior-woman-laying-on-bed-hospital-1054837748">Shutterstock</a></figcaption></figure> Organ donation may also affect the way voluntary assisted dying is conducted, which <a href="https://www.sciencedirect.com/science/article/pii/S1600613523000291">may impact</a> participants’ very limited quality of life. That’s because determining if someone is eligible to donate an organ involves a number of <a href="https://jme.bmj.com/content/43/9/601.short">investigations</a>. These may include blood tests, radiology (imaging) and numerous clinical encounters to exclude diseases such as cancer, which would prevent someone donating their organs. These investigations may be exhausting but necessary. This burden must be weighed against the participant’s wishes and motivation to donate their organs. So people must also be informed of the impact organ donation will have on their limited life left. The choices of people considering this option must be respected and they must be given multiple opportunities to review their decision, without undue influence or bias. <h2>Practical issues: coordination, location, regulation</h2> Practically, combining organ donation and voluntary assisted dying is <a href="https://onlinelibrary.wiley.com/doi/abs/10.1111/ajt.13746">challenging</a>. This includes the difficulty organising and coordinating specialists in organ donation, voluntary assisted dying and transplantation. This is why, internationally, organ donation of this nature mostly occurs in large hospitals, where it’s easier to coordinate. So if people want to donate an organ this way, they may spend their last moments in an unfamiliar environment. <figure class="align-center zoomable"><a href="https://images.theconversation.com/files/528195/original/file-20230525-15-irsqg9.jpg?ixlib=rb-1.1.0&q=45&auto=format&w=1000&fit=clip"><img src="https://images.theconversation.com/files/528195/original/file-20230525-15-irsqg9.jpg?ixlib=rb-1.1.0&q=45&auto=format&w=754&fit=clip" sizes="(min-width: 1466px) 754px, (max-width: 599px) 100vw, (min-width: 600px) 600px, 237px" srcset="https://images.theconversation.com/files/528195/original/file-20230525-15-irsqg9.jpg?ixlib=rb-1.1.0&q=45&auto=format&w=600&h=400&fit=crop&dpr=1 600w, https://images.theconversation.com/files/528195/original/file-20230525-15-irsqg9.jpg?ixlib=rb-1.1.0&q=30&auto=format&w=600&h=400&fit=crop&dpr=2 1200w, https://images.theconversation.com/files/528195/original/file-20230525-15-irsqg9.jpg?ixlib=rb-1.1.0&q=15&auto=format&w=600&h=400&fit=crop&dpr=3 1800w, https://images.theconversation.com/files/528195/original/file-20230525-15-irsqg9.jpg?ixlib=rb-1.1.0&q=45&auto=format&w=754&h=503&fit=crop&dpr=1 754w, https://images.theconversation.com/files/528195/original/file-20230525-15-irsqg9.jpg?ixlib=rb-1.1.0&q=30&auto=format&w=754&h=503&fit=crop&dpr=2 1508w, https://images.theconversation.com/files/528195/original/file-20230525-15-irsqg9.jpg?ixlib=rb-1.1.0&q=15&auto=format&w=754&h=503&fit=crop&dpr=3 2262w" alt="Patient being wheeled on stretcher through hospital corridors" /></a><figcaption>People may have to be moved to a large hospital with the facilities and staff on hand. <a class="source" href="https://www.shutterstock.com/image-photo/surgeon-assistant-team-transport-move-stretcher-2062330820">Shutterstock</a></figcaption></figure> Efforts have been made <a href="https://jamanetwork.com/journals/jamasurgery/article-abstract/2776765">internationally</a> to prioritise these valuable last moments by giving people the choice of where voluntary assisted dying occurs (<a href="https://www.cmaj.ca/content/190/44/E1305.short">such as their home</a>). But this currently only occurs in a minority of cases and increases the complexity of organ donation. Regulating the process is also essential to developing a safe, trustworthy and effective program. Ideally a centralised organisation such as Australia’s national <a href="https://www.donatelife.gov.au">Organ and Tissue Authority</a> would organise, undertake and regulate this. However, this may be challenging given voluntary assisted dying practices are specific to each state. <h2>The challenges ahead</h2> If someone considering voluntary assisted dying wants to donate their organs and is deemed eligible, there is currently <a href="https://onlinelibrary.wiley.com/doi/10.1111/imj.16085">no legal barrier in Australia</a> to stop them. What might prevent them is how their doctor responds, and whether there are the services and organisations willing to fulfil this request ethically and practically. The next step in considering this form of organ donation is to discuss the prospect publicly. Every extra donated organ is potentially lifesaving. So we should make every effort to consider potential safe and ethical ways to increase donation and transplantation rates.<img style="border: none !important; box-shadow: none !important; margin: 0 !important; max-height: 1px !important; max-width: 1px !important; min-height: 1px !important; min-width: 1px !important; opacity: 0 !important; outline: none !important; padding: 0 !important;" src="https://counter.theconversation.com/content/206298/count.gif?distributor=republish-lightbox-basic" alt="The Conversation" width="1" height="1" /> <a href="https://theconversation.com/profiles/robert-ray-1441988">Robert Ray</a>, Affiliate Associate Lecturer, School of Medicine, <a href="https://theconversation.com/institutions/deakin-university-757">Deakin University</a> Image credit: Shutterstock This article is republished from <a href="https://theconversation.com">The Conversation</a> under a Creative Commons license. Read the <a href="https://theconversation.com/people-thinking-of-voluntary-assisted-dying-may-be-able-to-donate-their-organs-we-need-to-start-talking-about-this-206298">original article</a>.

Body

New details surrounding Emma Pattison’s prior arrest

Warning: This article contains distressing content that some readers may find confronting. It is now known that Emma Pattison, the headmistress at a private school in the UK who police believe was shot dead by her husband, <a href="https://oversixty.com.au/news/news/disturbing-new-details-emerge-in-death-of-head-teacher-husband-and-daughter" target="_blank" rel="noopener">made a distress call</a> to a family member just hours before she was discovered. Further to that, new details have emerged that reveal that Mrs Pattison was arrested by Surrey police following a domestic row with her husband, George, seven years ago. Mr Pattison telephoned police one evening just prior to midnight, claiming that Mrs Pattison had slapped him around the face in their home. Only a short time later – two minutes or so – Mr Pattison then called the station back to ask the police officers not to come, saying that the matter was inconsequential and that he had overreacted. However, Surrey police decided to proceed with the home visit to investigate the complaint, and arrested Mrs Pattison on suspicion of common assault. Mrs Pattison was then questioned in the presence of a solicitor, and was subsequently released without charge. While a full investigation <a href="https://oversixty.com.au/news/news/headmistress-husband-and-daughter-found-dead-on-school-grounds" target="_blank" rel="noopener">into their deaths</a> has commenced, Surrey police are currently refusing to discuss Mrs Pattison’s arrest seven years ago in 2016, stating instead that autopsy results on the bodies of all three of the deceased are expected by the end of the week. Police have yet to disclose the official cause of death, but are confident no one else was involved in the "isolated" incident. Detectives confirmed a firearm registered to George, of which he had a license for, was found at the scene and they are treating the tragedy as a double murder and suicide. Detectives suspect George killed his wife Emma, 45, and little Lettie before taking his own life. Detective Chief Inspector Kimball Edey, senior investigating officer on the case, said, “This is an incredibly traumatic incident and we are working around the clock to investigate and understand the exact circumstances which led to this point." Don't go it alone. Please reach out for help. Lifeline: 13 11 14 or lifeline.org.au Beyond Blue: 1300 22 4636 or beyondblue.org.au Headspace: 1800 650 890 or headspace.org.au Image credits: epsomcollege.org.uk

News

Disturbing new details emerge in death of head teacher, husband and daughter

Warning: This article contains distressing content that some readers may find confronting. A headmistress at a private school in the UK made a distress call to a family member just hours before she was found dead, a report has claimed. School principal Emma Pattison, the head teacher of private school Epsom College in Surrey, England, was <a href="https://oversixty.com.au/news/news/headmistress-husband-and-daughter-found-dead-on-school-grounds" target="_blank" rel="noopener">found dead</a> alongside her 39-year-old husband, George, and seven-year-old daughter Lettie on the school grounds earlier this week. As an investigation into their deaths has commenced, the BBC has reported that Emma made a frantic phone call to a relative with concerns about her partner. By the time the worried relative arrived at the house, which is surrounded by other properties occupied by college staff and is close to the prestigious school’s rifle range, all three were dead. Police have yet to disclose the official cause of their deaths, but are confident no one else was involved in the "isolated" incident. Detectives confirmed a firearm registered to George, of which he had a license for, was found at the scene and they are treating the tragedy as a double murder and suicide. Detectives suspect George killed his wife Emma, 45, and little Lettie before taking his own life. Detective Chief Inspector Kimball Edey, senior investigating officer on the case, said, “This is an incredibly traumatic incident and we are working around the clock to investigate and understand the exact circumstances which led to this point." “We understand the public concern and upset, and we will clarify what we can, when we can, while respecting the right to a level of privacy for the families of those who have lost their lives." The community is reeling from the tragedy, as devastated neighbours who knew the "lovely" family shared how "heartbroken" they are. One person said, “It is just shocking and unimaginable.” Chloe Rathbone, a nursery worker who looked after Lettie, told The Times, “I am utterly so heartbroken over this awful news." “They were such a lovely family and Lettie was perfect in every way, everything you could have wished for in a little girl.” <p style="font-size: 16px; box-sizing: border-box; margin-top: 0px; margin-bottom: 1rem; caret-color: #212529; color: #212529; font-family: -apple-system, BlinkMacSystemFont, 'Segoe UI', Roboto, 'Helvetica Neue', Arial, sans-serif, 'Apple Color Emoji', 'Segoe UI Emoji', 'Segoe UI Symbol', 'Noto Color Emoji';">Don't go it alone. Please reach out for help. <p style="font-size: 16px; box-sizing: border-box; margin-top: 0px; margin-bottom: 1rem; caret-color: #212529; color: #212529; font-family: -apple-system, BlinkMacSystemFont, 'Segoe UI', Roboto, 'Helvetica Neue', Arial, sans-serif, 'Apple Color Emoji', 'Segoe UI Emoji', 'Segoe UI Symbol', 'Noto Color Emoji';">Lifeline: 13 11 14 or lifeline.org.au <p style="font-size: 16px; box-sizing: border-box; margin-top: 0px; margin-bottom: 1rem; caret-color: #212529; color: #212529; font-family: -apple-system, BlinkMacSystemFont, 'Segoe UI', Roboto, 'Helvetica Neue', Arial, sans-serif, 'Apple Color Emoji', 'Segoe UI Emoji', 'Segoe UI Symbol', 'Noto Color Emoji';">Beyond Blue: 1300 22 4636 or beyondblue.org.au <p style="font-size: 16px; box-sizing: border-box; margin-top: 0px; margin-bottom: 1rem; caret-color: #212529; color: #212529; font-family: -apple-system, BlinkMacSystemFont, 'Segoe UI', Roboto, 'Helvetica Neue', Arial, sans-serif, 'Apple Color Emoji', 'Segoe UI Emoji', 'Segoe UI Symbol', 'Noto Color Emoji';">Headspace: 1800 650 890 or headspace.org.au Image credits: Getty Images / <em style="font-size: 16px; box-sizing: border-box; caret-color: #212529; color: #212529; font-family: -apple-system, BlinkMacSystemFont, 'Segoe UI', Roboto, 'Helvetica Neue', Arial, sans-serif, 'Apple Color Emoji', 'Segoe UI Emoji', 'Segoe UI Symbol', 'Noto Color Emoji';">epsomcollege.org.uk

News

Easy living at The Alba is the perfect choice for older Australians

Moving into one of the luxuriously appointed apartments at <a href="https://thealba.com.au/?utm_medium=online&utm_source=OverSixty" target="_blank" rel="noopener">The Alba</a> from mid-2023 will give residents the best of both worlds – independent living but with all the services of a resort when needed. For older Australians, this is easy living done well in a stunning setting close to the tranquility of Albert Park Lake. The Alba is a brilliantly conceptualised development where the residents’ privacy and security are paramount. However, premium services, including cleaning, laundry and chef-prepared meals, are always available. Anyone fortunate enough to secure one of the imposing apartments at The Alba will be afforded one of the greatest luxuries of all – the time to please themselves. Without the burden of daily chores, residents can give their creativity free rein by starting a project in the arts & crafts room or finding the most enjoyable way of keeping fit with exercise classes at every level. The development also includes a cinema, a library and a café that is also open to the local community. Some may simply prefer to relax on the spectacular rooftop terrace with views over Albert Park Lake and the Melbourne city skyline. Getting the most out of life At the end of each day filled with stimulating activities, there’s the option of returning to a sparkling apartment without even having to pick up a vacuum cleaner. Or sitting down to a beautiful, chef-prepared fresh meal in The Alba’s elegant rooftop restaurant, where the emphasis is on seasonal produce, simply prepared. Some may care to treat themselves further and welcome each day with a hand-delivered breakfast box filled with fresh delights. Consider it a reward for a lifetime of hard work. Residents simply choose the support options that best suit their needs – and they can be dialled up or down as required. These extra services are being put in place to foster freedom and independence, along with the confidence to go about your life while knowing that help is always available. Should urgent medical attention be required, there are emergency call buttons in each apartment, with nurses available close by at the onsite residential care. An opulent place to call home There are 60 one-and two-bedroom easy living apartments at The Alba, which allows plenty of choice to find the right one to suit every individual. No expense has been spared in creating a space that residents will be proud to call home. The Alba was designed by the internationally renowned, award-winning architects Fender Katsalidis, who have set a new benchmark for independent living in an Over 55s development. Each luxuriously appointed apartment has a sleek living and dining area, a kitchen with premium appliances and one or two bathrooms, plus a laundry. Many have balconies that take in sublime views over Albert Park Lake or the Melbourne city skyline. It’s all about attention to detail here, including superb finishes throughout and everything is at your fingertips whether you want to surf through cable television channels or seamlessly entertain friends. It’s also a thoughtful design to support you in living in your new home as you age in place. A vibrant community awaits within The Alba The Alba is all about feeling connected – not only to the beauty which surrounds the development but also when it comes to socialising. It will be easy to naturally mingle with other residents who may share similar interests as yours at the many activities throughout the day. There are community club rooms, a cinema, a wellness centre, dinners or lunches in the restaurant and a welcoming café within walking distance of your front door. An extra level of care is available onsite The Alba has 95 residential aged care suites for those who need 24/7 care and support in the form of residential aged care that’s well supported with daily activities. The aged care suites are also beautifully appointed with soothing views. It is a great option for couples who are suddenly at different stages of life from one another. With such close proximity, it’s easy to visit throughout the day and reassuring to know that a loved one still remains in the heart of the community. This is just another way that the caring staff at The Alba are able to treat everyone with dignity and respect. Entertaining friends and family has never been easier There are so many welcoming spaces at The Alba where family and friends may come together. This includes resident lounges and the stylish restaurant that serves lunches and dinners daily. Or perhaps a barbecue on the recreational terrace? Everything can be easily arranged by the staff, including organising a special celebration. At The Alba, residents have the confidence and the support to enjoy life on their own terms. After all, they’re not just settling into an apartment here but entering the next phase in their life’s story. *Expressions of interest in <a href="https://thealba.com.au/?utm_medium=online&utm_source=OverSixty" target="_blank" rel="noopener">The Alba</a> are now open. The Alba is scheduled to open in mid-2023. This is a sponsored article produced in partnership with <a href="https://thealba.com.au/?utm_medium=online&utm_source=OverSixty" target="_blank" rel="noopener">The Alba</a>.

Real Estate

Ellen devastated after death of beloved show's DJ

Stephen "tWitch" Boss has died at the age of 40. The entertainer is most commonly known for his role as the DJ on the Ellen DeGeneres Show, where he has been a staple since 2014. His death was announced by his wife of nine years Allison Holker just days after marking their wedding anniversary, as she shared a touching statement about his lasting legacy. “It is with the heaviest of hearts that I have to share my husband Stephen has left us,” she said in a statement received by The Post. “Stephen lit up every room he stepped into. He valued family, friends and community above all else and leading with love and light was everything to him. He was the backbone of our family, the best husband and father, and an inspiration to his fans.” Ellen DeGeneres was among the first to pay tribute to her friend and colleagues, sharing a photo of the two in an emotional embrace. She wrote, “I’m heartbroken. tWitch was pure love and light. He was my family, and I loved him with all my heart. I will miss him." "Please send your love and support to Allison and his beautiful children — Weslie, Maddox, and Zaia.” When Allison Holker discovered her husband has left home without his car, she reportedly ran frantically into an LAPD station, saying the behaviour was unlike him, according to law enforcement sources. Police later got a call about an incident at an LA hotel, where they found Boss. <div id="indie-campaign-rHsIzpAmAj7xkA4llYlH-2" data-campaign-name="NCA ENTERTAINMENT newsletter" data-campaign-indie="newsletter-signup" data-jira="TSN-268" data-from="1640955600000" data-to="1677502800000"></div> “To say he left a legacy would be an understatement, and his positive impact will continue to be felt,” Holker continued in her statement. “I am certain there won’t be a day that goes by that we won’t honour his memory. We ask for privacy during this difficult time for myself and especially for our three children. “Stephen, we love you, we miss you, and I will always save the last dance for you.” Image credits: Instagram

Caring

"He was harassed": Woman tells how son took his life over incorrect Robodebt bill

Jenny Miller has shared the heart-breaking story of how her son Rhys was driven to suicide after relentless "harassment" to pay back a $28,000 Centrelink bill that was dished out under the Robodebt scheme. Rhys Cauzzo, a florist from Melbourne, was just 27-years-old when he took his life on Australia Day in 2017 after he was wrongly billed for the debts he didn't owe. Rhys was just one of over 2,000 Australians who died after received a hefty debt notice under the controversial scheme, which raised over $1billion in debts against 443,000 Australians. Speaking with Nat Barr on Sunrise, Jenny shared the devastating moment she was informed of her son's death. "The police came to our place on the Sunshine Coast early in the morning to tell us that he had passed," she said on Friday. "I arranged to fly down immediately and I found obvious signs of him being under the stress financially." <blockquote class="twitter-tweet"> The families of Robodebt victims are hopeful a royal commission will deliver justice after the scheme unlawfully claimed almost $2 billion in payments from Aussies. Jenny Miller's son Rhys took his own life after he was incorrectly told he owed Centrelink $28,000. <a href="https://t.co/eQ9bkj8RAm">pic.twitter.com/eQ9bkj8RAm</a> — Sunrise (@sunriseon7) <a href="https://twitter.com/sunriseon7/status/1562921013217996801?ref_src=twsrc%5Etfw">August 25, 2022</a></blockquote> "There were pictures of him holding a gun to his head and dollar signs coming out of his brain." Ms Miller said before her son took his own life he "got virtually daily" letters and phone calls from debt collectors Dun & Bradstreet. "He was harassed, he was not given the opportunity to speak to anyone at Centrelink," she said. "They just said ''no, you have to sort out.'" "It was the icing on the cake for him." Jenny went on to thank both Bill Shorten and Anthony Albanese for sticking to Labor's election promise to <a href="https://oversixty.com.au/finance/money-banking/pm-launches-probe-into-unlawful-robodebt-scheme" target="_blank" rel="noopener">launch a royal commission</a> into the "unlawful" scheme, which was announced earlier this week. "Obviously, we are still hoping to get some accountability. I have been fighting this for nearly six years and it is time that there was some answers," she said. During the election campaign, the Prime Minister described the Robodebt scheme as a “human tragedy, wrought by (the Coalition) government." “Against all evidence, and all the outcry, the government insisted on using algorithms instead of people to pursue debt recovery against Australians who in many cases had no debt to pay,” Albanese said. Image credits: Sunrise

News

Suicide rates reveal the silent suffering of Australia’s ageing men

Men aged 85 and older have the highest suicide rates in Australia, but the tragedy has gone relatively unnoticed. This group is growing older, feeling alone and flying under the radar. The tragedy of suicide is recognised as a major public health issue. Yet what may come as a surprise to many is data <a href="https://www.abs.gov.au/statistics/health/causes-death/causes-death-australia/latest-release#intentional-self-harm-deaths-suicide-in-australia" target="_blank" rel="noopener">published</a> by the Australian Bureau of Statistics showing men over 85 have suicide rates more than three times the average rate. Public perception is that men – in particular, young men – have the highest suicide risk. While this is true for the net number of suicides, if we don’t consider age-standardised rates (which account for differences in age distribution across the population) we miss a crucial finding. Adjusting for age Men aged over 85 accounted for a relatively small proportion of all male suicides (3.1%) in 2020 (the latest data available). But the age-specific suicide rate was 36.2 deaths per 100,000 (up from 32.3 per 100,000 in 2019). For women aged over 85, this rate was much lower (6.2 per 100,000). The next highest rate was for men in both the 40-44 and 50-54 age bands (27.1 per 100,000). In 2020, the overall suicide rate was 12.1 per 100,000 people. But this issue is rarely addressed in public discourse or policy directives. The <a href="https://www.abs.gov.au/statistics/health/mental-health/national-study-mental-health-and-wellbeing/2020-21#psychological-distress" target="_blank" rel="noopener">National Study of Mental Health and Wellbeing</a> released last month did not include data on people older than 85. This risk is <a href="https://theconversation.com/elderly-men-have-the-highest-suicide-rate-and-ageism-stops-us-from-doing-something-about-it-46923" target="_blank" rel="noopener">not new</a>, but little has changed to address it over the past decade. In light of COVID and what it has <a href="https://www.frontiersin.org/articles/10.3389/fpubh.2021.679711/full" target="_blank" rel="noopener">revealed about ageism</a> and the value of older people in our society, it is crucial to explore these issues again. <figure class="align-center zoomable"><a href="https://images.theconversation.com/files/477294/original/file-20220803-1926-uuu06d.jpg?ixlib=rb-1.1.0&q=45&auto=format&w=1000&fit=clip"><img src="https://images.theconversation.com/files/477294/original/file-20220803-1926-uuu06d.jpg?ixlib=rb-1.1.0&q=45&auto=format&w=754&fit=clip" sizes="(min-width: 1466px) 754px, (max-width: 599px) 100vw, (min-width: 600px) 600px, 237px" srcset="https://images.theconversation.com/files/477294/original/file-20220803-1926-uuu06d.jpg?ixlib=rb-1.1.0&q=45&auto=format&w=600&h=400&fit=crop&dpr=1 600w, https://images.theconversation.com/files/477294/original/file-20220803-1926-uuu06d.jpg?ixlib=rb-1.1.0&q=30&auto=format&w=600&h=400&fit=crop&dpr=2 1200w, https://images.theconversation.com/files/477294/original/file-20220803-1926-uuu06d.jpg?ixlib=rb-1.1.0&q=15&auto=format&w=600&h=400&fit=crop&dpr=3 1800w, https://images.theconversation.com/files/477294/original/file-20220803-1926-uuu06d.jpg?ixlib=rb-1.1.0&q=45&auto=format&w=754&h=503&fit=crop&dpr=1 754w, https://images.theconversation.com/files/477294/original/file-20220803-1926-uuu06d.jpg?ixlib=rb-1.1.0&q=30&auto=format&w=754&h=503&fit=crop&dpr=2 1508w, https://images.theconversation.com/files/477294/original/file-20220803-1926-uuu06d.jpg?ixlib=rb-1.1.0&q=15&auto=format&w=754&h=503&fit=crop&dpr=3 2262w" alt="older man with head in hands" /></a><figcaption>All the key risk factors for suicide have become even more relevant due to COVID. <a class="source" href="https://www.shutterstock.com/image-photo/senior-man-covering-his-face-hands-701935606" target="_blank" rel="noopener">Shutterstock</a></figcaption></figure> Preventable deaths It is startling that men who have shown resilience to survive to late life are at such risk of preventable death. Many factors contribute, including physical and material circumstances like <a href="https://pubmed.ncbi.nlm.nih.gov/28511737/" target="_blank" rel="noopener">frailty, chronic pain, bereavement</a> and <a href="https://pubmed.ncbi.nlm.nih.gov/23209090/" target="_blank" rel="noopener">financial troubles</a>. However, we cannot assume only external issues cause distress and lead to suicide. In fact, for older people, successful ageing is rarely defined purely by physical circumstances. Ageing well often implies flourishing despite hardship. The silent challenge among men aged over 85 who take their own lives is psychological and existential distress, which can <a href="https://pubmed.ncbi.nlm.nih.gov/20438238/" target="_blank" rel="noopener">reinforce feelings of loneliness and worthlessness</a>. Older men at risk of suicide may feel they are “no longer needed” or perceive themselves as “burdensome” to family and community. These beliefs can overlap with major life transitions, such as retirement, <a href="https://pubmed.ncbi.nlm.nih.gov/31431103/" target="_blank" rel="noopener">stopping driving</a> or <a href="https://pubmed.ncbi.nlm.nih.gov/21500012/" target="_blank" rel="noopener">moving to residential care, where they are a minority</a>. Such stressful events can increase feelings of marginalisation, loss of independence and worthlessness, and also lead to social isolation. Talking about it A reluctance to express their feelings or be vulnerable has long been discussed as an important factor for men’s wellbeing, especially when they’re feeling low. Research suggests gender stereotypes and social norms linked to masculinity <a href="https://pubmed.ncbi.nlm.nih.gov/27664823/" target="_blank" rel="noopener">reduce help-seeking behaviours</a> and <a href="https://journals.sagepub.com/doi/abs/10.1177/2156869317725890" target="_blank" rel="noopener">can increase suicide risk</a>. Many ageing men hold restrictive and stoic beliefs about what it means to be a man. This may make them <a href="https://pubmed.ncbi.nlm.nih.gov/29019282/" target="_blank" rel="noopener">less inclined to share</a> when they aren’t coping. Yet emerging research <a href="https://pubmed.ncbi.nlm.nih.gov/27473200/" target="_blank" rel="noopener">challenges the assumption</a> men don’t talk because they can’t. One reason men are not talking about their mental health struggles is because there’s <a href="https://opus.lib.uts.edu.au/handle/10453/153516" target="_blank" rel="noopener">nowhere for them</a> to open up in a way they see as culturally and socially acceptable. Instead, older men are speaking through their actions. Suicide prevention and early intervention responses that are not tailored to the needs of older men are unlikely to be effective. We need to meet men where they are and listen to their quiet and absent voices by designing programs in partnership with them. This means better understanding men’s <a href="https://pubmed.ncbi.nlm.nih.gov/28871841/" target="_blank" rel="noopener">barriers</a> to suicide interventions. These include a lack of trust in traditional services and an aversion to “formal” supports that frame emotional distress and suicidal behaviours as mental illness. It also means exploring, developing and funding new options that are acceptable, relevant and accessible, such as gendered support, peer-led programs, community-based informal support and programs combining exercise with mental health promotion. The objective is not only to develop more suitable suicide prevention for this specific group, but also to examine broader interactions between ageing, isolation and loneliness; <a href="https://www.cambridge.org/core/journals/international-psychogeriatrics/article/covid19-the-implications-for-suicide-in-older-adults/9890D02E0DA3021FCFE66B9A29F2684E" target="_blank" rel="noopener">all key risk factors</a> for suicide that have become even more relevant due to COVID. More calls for help Increased feelings of distress and loneliness produced by the pandemic can be measured by <a href="https://www.abc.net.au/news/2021-08-04/lifeline-records-highest-daily-calls-on-record/100350522" target="_blank" rel="noopener">increased calls to services such as Lifeline</a>. And more persistent mental health problems are likely to present more slowly, <a href="https://psycnet.apa.org/fulltext/2020-41461-001.html" target="_blank" rel="noopener">over longer horizons</a>, and peak after the most acute phases of the pandemic. Older people have handled much of the burden of COVID, including unprecedented <a href="https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7295320/" target="_blank" rel="noopener">restrictions and ageist sentiments</a>. We must recognise these factors – growing old, being alone and feeling unheard - underpin increasing distress felt by men aged over 85, not only during the pandemic, but more generally. This group must be seen as a priority population for suicide prevention. We must start listening and work together to find solutions so older men can access the help they need in a way that suits them. <hr /> UNSW Ageing Futures Institute would like to acknowledge the research contribution of <a href="https://www.lifeline.org.au/about/our-research/" target="_blank" rel="noopener">Lifeline Research Foundation</a>’s Dr Anna Brooks (National Manager) and Dr Tara Hunt (Research and Engagement Manager). <hr /> If this article has raised issues for you, or if you’re concerned about someone you know, you can call these support services, 24 hours, 7 days: <ul> <li> Lifeline: 13 11 14 </li> <li> Suicide Call Back Service: 1300 659 467 </li> <li> Kids Helpline: 1800 551 800 (for people aged 5 to 25) </li> <li> MensLine Australia: 1300 789 978 </li> <li> StandBy - Support After Suicide: 1300 727 24<img style="border: none !important; box-shadow: none !important; margin: 0 !important; max-height: 1px !important; max-width: 1px !important; min-height: 1px !important; min-width: 1px !important; opacity: 0 !important; outline: none !important; padding: 0 !important;" src="https://counter.theconversation.com/content/187925/count.gif?distributor=republish-lightbox-basic" alt="The Conversation" width="1" height="1" /> </li> </ul> <a href="https://theconversation.com/profiles/rhys-mantell-1350710" target="_blank" rel="noopener">Rhys Mantell</a>, PhD Candidate, School of Population Health, <a href="https://theconversation.com/institutions/unsw-sydney-1414" target="_blank" rel="noopener">UNSW Sydney</a> and <a href="https://theconversation.com/profiles/adrienne-withall-1366339" target="_blank" rel="noopener">Adrienne Withall</a>, Senior Research Fellow, School of Population Health, <a href="https://theconversation.com/institutions/unsw-sydney-1414" target="_blank" rel="noopener">UNSW Sydney</a> This article is republished from <a href="https://theconversation.com" target="_blank" rel="noopener">The Conversation</a> under a Creative Commons license. Read the <a href="https://theconversation.com/suicide-rates-reveal-the-silent-suffering-of-australias-ageing-men-187925" target="_blank" rel="noopener">original article</a>. Image: Getty Images

Mind

Crime scene established after suspected murder-suicide at retirement village

An elderly couple who were found dead in their unit at an Adelaide retirement village have been identified, with police treating their deaths as a murder-suicide. Barbara and Dennis Willshire, both 92, were found on Wednesday morning by a staff member during morning rounds, though police say it is unclear when the couple died. After the staff member raised the alarm, police and paramedics were called to the unit, which is part of a larger retirement and nursing home precinct in Glynde. The quiet village quickly became a crime scene, with major crime detectives working all day to piece together what happened in the leadup to the couple’s death. Superintendent Matt Nairn of South Australia Police said it was believed that the man killed his wife and then himself, though a full investigation would be conducted. “We believe it is a murder-suicide and, at this stage, we believe the man has killed potentially his wife and then taken his own life,” Nairn said. He added that there was nothing untoward known about the couple’s relationship and that their children had been notified. “As you can imagine, this is very tragic for a family,” Nairn said. Barbara and Dennis were known for being social and their deaths have sent shockwaves through their community, with neighbours saying it was “one of those things you don’t face every day”. “Living in a courtyard like this you get to know people,” one neighbour said. “Very sorry for everyone. It’s one of those things you don’t face every day,” another said. The couple’s best friends of 30 years, who moved into a neighbouring unit to be close to them, were particularly affected. “We did a lot of things together as older people,” the couple said. “It’s a big shock to us… it’s hard to accept. “If you wanted to know anything you asked Dennis because he was a very bright person.” Dennis and Barbara’s friends also said Barbara has become increasingly unwell over the past four months. “She was very unwell and Dennis was very distressed about the whole situation, she’d been unwell for about three months,” one said. “It’s hard to accept that they’ve gone… I still can’t believe it.” A spokesperson for Lutheran Homes Group, which operates the retirement village, told the ABC the pair had been living independently in the unit where they were found, and that the village was offering both pastoral and counselling support for those who needed it. “Pastoral support is being offered to residents, as well as counselling support for staff. Our thoughts and prayers are with the family and our Glynde community at this difficult time,” they said. If you are experiencing a personal crisis or thinking about suicide, you can call Lifeline 131 114 or beyondblue 1300 224 636 or visit lifeline.org.au or beyondblue.org.au. Image: Nine News

News

NRL great's cause of death sparks emotional pleas

Content warning: This article includes mentions of suicide. TV personality and mental health advocate Gus Worland has issued an emotional plea to Australians to ask for help when they need it in the wake of the sudden death of Paul Green. The 49-year-old NRL coach was found dead on Thursday, with the cause of death later revealed to be suicide. Police were called to Green’s family home in Brisbane after he was found unresponsive in the garage. A police spokeswoman told the <a href="https://www.dailymail.co.uk/sport/nrl/article-11101165/How-Paul-Green-died-Police-speak-cause-death.html" target="_blank" rel="noopener">Daily Mail Australia </a>that Green was declared dead by paramedics at the scene, saying that the circumstances surrounding his death are not suspicious. Worland - the founder of the Gotcha4Life charity - spoke to Nine’s NRL broadcast in the wake of Green’s death, sharing a message for the nation. <blockquote class="twitter-tweet"> Important words from <a href="https://twitter.com/GusWorland?ref_src=twsrc%5Etfw">@GusWorland</a> on a very sad day. Please talk to someone. I’m always here for my Twitter friends, as I know you all are for me. ❤️ <a href="https://t.co/IWtz3uySuL">https://t.co/IWtz3uySuL</a> — Gavin Flanagan (@gavflano) <a href="https://twitter.com/gavflano/status/1557687402696962048?ref_src=twsrc%5Etfw">August 11, 2022</a></blockquote> “Seven Australian men that wake up this morning won't wake up tomorrow morning, two women, and we have people attempting suicide at such a rapid rate," Worland said. "It was so sad to hear about Greeny, and I think this is a line in the sand as a sport and as a nation to say enough is enough. "Let's stop talking about it, let's stop talking about awareness, let's put some action into place. "It's all about manning up and speaking up now, not manning up and shutting up, which is what we've been told all our lives to do. "Put your hand up if you need some help and support. That's the bravest thing you can do, ask for help when you need it. "Why are we so good in this country at helping people, but not at asking for help? That's what we need to change." Nine News presenter Peter Overton echoed Worland’s message during the 6pm bulletin on Thursday, calling for Aussies to speak up about their mental health. “If you are struggling with your mental health, please talk to someone,” he began. “Ask, ‘Are you OK?’ “Take a friend for a coffee, a walk; confide in your GP. “Share your feelings with your family. “Just talk to someone. You might be surprised how many people you know have the same struggles. “You are not alone. “One of the best places you can call is Lifeline. They are there to listen, they are there to help.” Green’s passing comes 11 months after he was sacked as the head coach of the Maroons, having been in the role, which he described as “every Queenslander’s dream”, for just a year. As the coach for the North Queensland Cowboys, Green took the team to their first ever premiership in 2015 and stayed in charge until the end of 2020, when he was replaced by Todd Payten. Following his departure from the Maroons, Green had been in talks with Wayne Bennett about making a return to NRL and joining the Dolphins, who enter the competition next year. Laurence Lancini, a former chairman of the Cowboys, told the <a href="https://www.couriermail.com.au/sport/nrl/paul-green-death-cowboys-pay-tribute-and-reveal-devastating-detail-of-his-passing/news-story/5e687ee90f3a5e183f618fcd8e407337" target="_blank" rel="noopener">Courier Mail</a> that Green seemed fine when they spoke just three days before his death and said they should catch up for a beer soon. But, he said “the last few years had been tough” for Green. “Greeny mentioned he was keen to coach again and had some options and I asked Greeny if he really wanted to go back into it again,” Lancini said. “I said to Paul, the last club you coached, you took the Cowboys to the premiership and you took us to two grand finals. Just leave coaching behind and do something else. “But Greeny still had that real drive. He wanted to coach again. “Greeny has come from a position where he coached a club to a premiership and a second grand final. He has coached State of Origin. He has coached at the highest levels and I think Greeny was a bit lost and confused about where his life needed to be without coaching. “The thing about Greeny is he was a high achiever and high achievers always want to be achieving something. “The last few years have been a bit tough on him because he hasn’t been coaching in the NRL. “I said to Greeny, just take your time and the right opportunity will come along.” If you are experiencing a personal crisis or thinking about suicide, you can call Lifeline 131 114 or beyondblue 1300 224 636 or visit <a href="https://www.lifeline.org.au/" target="_blank" rel="noopener">lifeline.org.au</a> or <a href="https://www.beyondblue.org.au/" target="_blank" rel="noopener">beyondblue.org.au</a>. Image: Getty Images

Caring

Model dies after battle with mental illness

Model and influencer Niece Waidhofer has died following a long battle with mental illness, something she was very vocal about to her 4.2 million followers. The 31-year-old was found dead in her home in Katy, outside of Houston, in May 2022 after a concerned family member raised the alarm. “Sadly, Niece took her own life after a long battle with mental health issues,” a family member told TMZ. “She was very open with her followers about her struggles, even wanting to help followers who also suffered.” <blockquote class="instagram-media" style="background: #FFF; border: 0; border-radius: 3px; box-shadow: 0 0 1px 0 rgba(0,0,0,0.5),0 1px 10px 0 rgba(0,0,0,0.15); margin: 1px; max-width: 540px; min-width: 326px; padding: 0; width: calc(100% - 2px);" data-instgrm-captioned="" data-instgrm-permalink="https://www.instagram.com/p/Cbht9HduDhj/?utm_source=ig_embed&utm_campaign=loading" data-instgrm-version="14"> <div style="padding: 16px;"> <div style="display: flex; flex-direction: row; align-items: center;"> <div style="background-color: #f4f4f4; border-radius: 50%; flex-grow: 0; height: 40px; margin-right: 14px; width: 40px;"> </div> <div style="display: flex; flex-direction: column; flex-grow: 1; justify-content: center;"> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; margin-bottom: 6px; width: 100px;"> </div> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; width: 60px;"> </div> </div> </div> <div style="padding: 19% 0;"> </div> <div style="display: block; height: 50px; margin: 0 auto 12px; width: 50px;"> </div> <div style="padding-top: 8px;"> <div style="color: #3897f0; font-family: Arial,sans-serif; font-size: 14px; font-style: normal; font-weight: 550; line-height: 18px;">View this post on Instagram</div> </div> <div style="padding: 12.5% 0;"> </div> <div style="display: flex; flex-direction: row; margin-bottom: 14px; align-items: center;"> <div> <div style="background-color: #f4f4f4; border-radius: 50%; height: 12.5px; width: 12.5px; transform: translateX(0px) translateY(7px);"> </div> <div style="background-color: #f4f4f4; height: 12.5px; transform: rotate(-45deg) translateX(3px) translateY(1px); width: 12.5px; flex-grow: 0; margin-right: 14px; margin-left: 2px;"> </div> <div style="background-color: #f4f4f4; border-radius: 50%; height: 12.5px; width: 12.5px; transform: translateX(9px) translateY(-18px);"> </div> </div> <div style="margin-left: 8px;"> <div style="background-color: #f4f4f4; border-radius: 50%; flex-grow: 0; height: 20px; width: 20px;"> </div> <div style="width: 0; height: 0; border-top: 2px solid transparent; border-left: 6px solid #f4f4f4; border-bottom: 2px solid transparent; transform: translateX(16px) translateY(-4px) rotate(30deg);"> </div> </div> <div style="margin-left: auto;"> <div style="width: 0px; border-top: 8px solid #F4F4F4; border-right: 8px solid transparent; transform: translateY(16px);"> </div> <div style="background-color: #f4f4f4; flex-grow: 0; height: 12px; width: 16px; transform: translateY(-4px);"> </div> <div style="width: 0; height: 0; border-top: 8px solid #F4F4F4; border-left: 8px solid transparent; transform: translateY(-4px) translateX(8px);"> </div> </div> </div> <div style="display: flex; flex-direction: column; flex-grow: 1; justify-content: center; margin-bottom: 24px;"> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; margin-bottom: 6px; width: 224px;"> </div> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; width: 144px;"> </div> </div> <p style="color: #c9c8cd; font-family: Arial,sans-serif; font-size: 14px; line-height: 17px; margin-bottom: 0; margin-top: 8px; overflow: hidden; padding: 8px 0 7px; text-align: center; text-overflow: ellipsis; white-space: nowrap;"><a style="color: #c9c8cd; font-family: Arial,sans-serif; font-size: 14px; font-style: normal; font-weight: normal; line-height: 17px; text-decoration: none;" href="https://www.instagram.com/p/Cbht9HduDhj/?utm_source=ig_embed&utm_campaign=loading" target="_blank" rel="noopener">A post shared by Niece Waidhofer (@niecewaidhofer)</a> </div> </blockquote> The influencer rose to fame in 2015 after starting the popular 'Roast Me' trend on Reddit and had fans worried after deleting almost all of her Instagram posts except for three. Her final posts include a selfie complimenting her new blonde hair, a video playing with her pet dog, and the engagement photo with her ex. In her Niece’s honour, the family will be creating a non-profit organisation for mental health awareness which looks to give grants into mental illness research. It will be called “Peace from Niece”. Images: Instagram/TikTok

Caring

Aussie with terminal cancer uses time left to make her mark

An Australian researcher who has been diagnosed with terminal ovarian cancer is busy making plans for when she’s gone - including a contribution she hopes will help advance research in animal studies. Siobhan O’Sullivan was diagnosed with stage 3 ovarian cancer in July 2020, finding out within a year that the cancer had spread and that her illness was terminal. “In the week prior to my diagnosis, I was starting to say to people, ‘I’m not feeling right - I think it’s stress because Dad’s going to die soon’,” she told <a href="https://7news.com.au/lifestyle/health-wellbeing/a-silent-killer-has-left-her-terminally-ill-now-this-aussie-woman-has-a-simple-message-c-6854866" target="_blank" rel="noopener">7News</a>. “The week before dad died, I went to the doctor and said, ‘Something’s not right’.” During her treatments Siobhan suffered multiple strokes - an unexpected side effect - but even extensive treatment couldn’t stop the cancer from spreading. “That was a huge blow for me because a lot of women at that point do get some remission time,” she said. “I’m now at 19 months, which means I’m on borrowed time.” Though she’s living with death, Siobhan has maintained her humour and optimism, as well as her advocacy for ovarian cancer and the legalisation of voluntary assisted dying. She also began making plans, divesting her property and funds to her niece, nephew, godson and his sister, and ensuring her podcast is in good hands once she’s gone. Siobhan has also bequeathed $50,000 to the Australisian Animal Studies Association (AASA), which she is a founder of, and is helpling to establish two awards for future researchers. She is an associate professor of politics at Sydney’s University of New South Wales and was extremely involved in research around animal studies and her other passion, the alleviation of social issues related to poverty. Thanks to her donation, the AASA is offering two new prizes: one for early-career researchers, and the other for animal studies scholars, artists or advocates who have worked to promote their insights and findings with their peers and the public. “This is an exciting way to help the field of animal studies,” she said in a <a href="https://www.inside.unsw.edu.au/awards/new-awards-scheme-advances-the-emerging-sub-discipline-animal-studies#:~:text=As%20a%20founder%20of%20the,be%20established%20in%20coming%20years." target="_blank" rel="noopener">statement</a>. “My own research … suggests that many animal studies scholars feel isolated and their research is not acknowledged by their own institutions. “These awards are a way of strengthening the animal studies community and giving scholars a sense of achievement and recognition.” As she nears the end of her life, Siobhan has said she would feel immensely comforted by the thought that she could legally end her life before her cancer brings her even more suffering. <blockquote class="twitter-tweet"> I was so honoured to speak on behalf of people facing horrible deaths in NSW. Today I'll be watching <a href="https://twitter.com/nsw_upperhouse?ref_src=twsrc%5Etfw">@nsw_upperhouse</a> & <a href="https://twitter.com/NSWParlLA?ref_src=twsrc%5Etfw">@NSWParlLA</a> closely. I hope our political leaders use their power to ease the load of the terminally ill & their friends & family. <a href="https://twitter.com/hashtag/AssistedDying?src=hash&ref_src=twsrc%5Etfw">#AssistedDying</a> <a href="https://twitter.com/hashtag/VAD?src=hash&ref_src=twsrc%5Etfw">#VAD</a> <a href="https://twitter.com/hashtag/nswpol?src=hash&ref_src=twsrc%5Etfw">#nswpol</a> <a href="https://t.co/hecIbBdBAl">pic.twitter.com/hecIbBdBAl</a> — Siobhan O'Sullivan 🥦😸♋ (@so_s) <a href="https://twitter.com/so_s/status/1527089433501405184?ref_src=twsrc%5Etfw">May 19, 2022</a></blockquote> “My view is that there is no benefit that’s going to come to me, or my family, or this world, for me to suffer the last couple of weeks of a death by ovarian cancer,” she said. But the very recent <a href="https://www.oversixty.com.au/health/caring/emotional-scenes-as-nsw-passes-law-on-voluntary-assisted-dying" target="_blank" rel="noopener">passing of the Voluntary Assisted Dying Bill</a> in NSW Parliament might still come too late for Siobhan, since it could take up to 18 months for the law to come into effect. Despite it not necessarily being an option she could take up, Siobhan says her advocacy will help others in the future. “This is for the other people, for the next people - the people in one, two, three years time,” she said. Image: Siobhan O’Sullivan (Facebook)

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